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Jun 21, 2019 8:39 AM

Early morning fatigue is not new, just more intense. I also realize now, as it was very acute today, depression is enhanced significantly. Ideally, next week's surgery will mitigate these symptoms in addition to the pain, to which I am most certain these are attributable.
Also new is a unique sensation of "disconnection" from everything but the physiological issues. Empathy, concern for others, charity, are all visible but not connected as before. Possible results of long term pain and nerve damage. Quite stressful for those around me as well. I do my best to curb comments, but they do slip out, more often now than before.
All said, however, until the physical is remedied or mitigated, the psychological can only be masked by Rx or behavior, not resolved.
Man... is it Monday?? ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ

Jun 21, 2019 8:48 AM

Hi BLL nope itโ€™s only Friday , I hope that your surgery and recovery after are good Next week.
Iโ€™ll be praying for you and all the others to ..
My follow up on my back is July 17 ? Surgery to Iโ€™m not sure yet I will let you know.
Hug to you. Gently have a nice day Shore๐Ÿฆ‹๐Ÿฆ‹๐Ÿ™๐ŸŒˆ๐ŸŒˆ๐Ÿค—

Jun 21, 2019 8:49 AM

Btw may I ask what is your suergery on? Mine is about my back lower laterhugShore ๐Ÿฆ‹๐Ÿฆ‹๐Ÿ™โค๏ธ

Jun 21, 2019 9:21 AM

We are removing 4 screws and shortening the rods from C2-C3. Original fusion is C2-T3. The opinion now is the screws and rods are impinging on the occipital causing perpetual headaches (a bit dramatic, but they are my headaches and thats how I view them ๐Ÿคฃ ). So far, the lumbar fusion, L3-S1 (?) is perorming as advertised.

Jun 21, 2019 9:22 AM

and โ€œperFormingโ€....

Jun 21, 2019 9:33 AM

Bll, I'll be praying your surgery is successful! What day is your surgery? I'm guessing they are cutting through from the backside. If so, is that hard to get through? That's how my doc wants to redo the non-healing C3-4 & C7-T1, but he also wants to fix a facet at C2, and from C7-T3 now, with a very long 6-8" cut down the back of my neck. I'm not sure I'm willing to do it because it sounds so extreme, very limited movements for a year, and painful. Hugs love & prayers you will have a quiet restful weekend! ๐Ÿ˜Šโค๐Ÿ™๐ŸŒผ

Jun 21, 2019 9:35 AM

Hi BLL ty btw with mine itโ€™s minimal invasive suergery lower back . I have a rod in my back it will be at the bottom of it .
I wish you good recovery from your and relief also. Hug gently If you need to vent Iโ€™ll try to write back hug Shore๐Ÿฆ‹๐Ÿ™๐Ÿ™๐Ÿค—later

Jun 21, 2019 9:43 AM

Yes, we will then have matching scars. I have , 9" on my upper spine and 2 6" parallel scars straddling my lower spine. Additionally, 2 on the left lower oblique (to access the lumbar). 2 left and right on throat from 2xACDF. Tuesday is the 10th surgery, one of which was revision of the cervical fusion in order to treat 2 infections which were undetected for about 5 months.
3 months on a PICC for that followed by replacement and extension of hardware. When they were discovered, they did not go without a fight, for sure.

Today, I have 40 screws, 2 plates and 4 rods. Sounds horrible, but - know of much worse so do not complain about it.

Hope that answered your questions. All said, I would do it all over again considering the past challenges.

Jun 21, 2019 10:12 AM

Hi BLL ty it nice chatting with you . I donโ€™t like back surgery but if it helps I will do anything for relief.
Maybe when Iโ€™m in there get mine done I can chat with you guys and make the time go faster who know...
I always say if I get it done but Iโ€™m sure it true this time Surgery .
Iโ€™m going soon at 12 to lunch with my pastor and my fiancรฉ at a cafe where I live it real close to me..
Hug gently Shore๐ŸŒˆ๐Ÿฆ‹๐Ÿฆ‹โค๏ธ๐Ÿค— have a nice day ok ))) later btw would you want to know my real name ? If not that ok to later

Jun 21, 2019 10:13 AM

Btw mine is from the heck all the way down scoliosis then another soon .
Hug Shore ๐ŸŒˆ๐ŸŒˆ๐Ÿ™๐Ÿ™โค๏ธโค๏ธ

Jun 21, 2019 7:30 PM

Well, anything I have is no comparison to a full spinal fusion. More power to you. Did yours start at C1 or C2? I have mentioned before, but I find my entire experience to have been a great education and demonstration of the patience those around me possess. There was no avoiding the pain, so I tried not to allow it to take total control. I have heard and read about continued pain and other problems post-surgery, but as I said before, I would not hesitate to do it again. The pain now is hardly the pain from before (I believe Flappy said something about that as well).

Question to the forum: has anyone with spinal challenges tried Tai Chi as a physical therapy? Results/thoughts/opinions are most welcome.

Jun 21, 2019 8:52 PM

Hi BLL I had physical therapy for my lower back and injections and I also at one time tried tai chi ..
Mine is L4-L5 and degenerate disc . I hope BLL your doing good . Iโ€™ll keep you and everyone in my prayers. Hug Shore ๐Ÿฆ‹๐Ÿ™๐Ÿ™๐Ÿค—๐Ÿค—

Jun 21, 2019 9:00 PM

Hug have a nice day Che night all Shore๐Ÿฆ‹๐Ÿฆ‹๐ŸŒˆ๐ŸŒˆ๐Ÿ™

Jun 24, 2019 7:40 AM

Thanks Bll! My neck issues started at C5-6, following a bad accident. And then C4-5 after a second accident (MVA). I've had multiple doctors tell my that my cervical disc are thicker in height than normal, which makes my whole neck longer and heavier and more unstable than 85% of the population, and that's why I have so much cervical issues. I don't regret my past surgeries either. But I sure wish my cervical fusions would heal so I can avoid anymore. I'll be praying everything goes well for you without complications. Hugs love & prayers! ๐Ÿ˜Šโค๐Ÿ™๐ŸŒผ

Jul 05, 2019 9:16 AM

I hesitate to post this, but am sincerely curious if anyone has experienced the same or similar. This is difficult to logically explain. Whatever is causing this current discomfort and pain (existential anxiety coupled with chronic pain from numerous surgeries and subsequent recovery and rehabilitation?) is happening right now. It is a combination of full-body weakness, anxiety, dread, and depression along with physical pain and nausea. This could result from some interaction between two or more of the eight Rx and, even if not fully responsible, I think it a bit naive not to expect some level of that. Without getting into an out-of-scope discussion, does any of this sound familiar? The only other metric applicable now is I am two weeks away from two years of near constant surgery (8 of the 10 spinal), recovery and rehabilitation. There we have it.

Jul 05, 2019 11:06 AM

I had very similar experience from Cymbalta, which caused increased all over pain, extreme anxiety & worse depression from the increased pain, and general unwell feeling.

Jul 10, 2019 8:21 PM

So, 2 more injections to the lumbar area. Anesthetic effect lasted about 24 hours, paralyzing nerve โ€œpinchโ€ still here. I got a chuckle from the PA trying to get a reflex reaction from the left leg. The right nearly kncked him over. The left was almost going in reverse. If there is a negative reflex, we have witnessed it. We went ahead and decided on surgery number 12 in a few months. at this point it seems to have become a persistent life event that I may miss if ever actually fixed. I suspect that may be a common occurrence.
An adventure worthy of Livingston. And on we march.

Jul 11, 2019 10:10 AM

Bll, I couldn't help laughing at the right leg reflex! I know it's discouraging to know you are facing more surgery. But at least you have an outlook that will help you get through it. We do what we must, even when we are so tired of it all. I'll be praying this surgery will be successful in relieving pain and problematic symptoms. Keep us posted. Hugs love and prayers you have a good weekend! ๐Ÿ™‚โค๐Ÿ™๐ŸŒผ

Jul 12, 2019 9:12 AM

Thanks! It is bad enough we must endure our afflictions without making those around us suffer more than they already do.
I may have mentioned this before, but the hands-on anatomy lessons I have gleaned are without equal! i do believe the health industry could make this a bit easier if they offered incentive cards like certain sandwich shops; after the 10th surgery (10th card punch), get 5 days of PT, or something like that. Not making light of the situation, just grasping any silver lining.
Have a great weekend as well.

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