As I'm someone who suffers with fibromyalgia, FND etc I really struggle with fatigue to the point I rarely leave my house or even the thought of popping to the shop just down the road exhausts me, So I'm trying to learn to not let it control my life and I'm wondering if you all may have any suggestions? Xx
VintageButterfly, I fully get where you're coming from. I've gotten so bad that sometimes I can't even get myself to go across the street to visit my neighbors because I'm so tired and in pain. Sometimes I'm able to push myself and others not so much. I've gotten to the point that I only go out if I NEED to. I tend to isolate, sit in my room with the a/c on and close the blinds and watch tv. I suffer from depression and anxiety as well so I know that is part of the problem. I just want to sleep. I mean, an honest to goodness 8 hour night of sleep!! Maybe I'd feel better in the morning. I wish I could give you some suggestions to help you along.
VintageButterfly, months ago I was constantly napping. They dx me with sjogrens and hypothyroidism, put me on meds, and it helped until recently. I've been napping again or getting extremely fatigued with activity. The doc ran blood tests and I'm anemic from iron and my B12 is low. Is there a chance your iron out B12 is low? Of course not sleeping well can be the cause. Sometimes I get into a period of broken sleep (waking often) during flares. When I do it exhausted me and makes me grumpy. Have you talked with your doctor? You'll be in my thoughts and prayers. 🙏🌼
Well my two granddaughters spent the night last night. We enjoyed our time with them. They noticed Granny wasn't quite up to everything and kept yawning. The oldest asked what was wrong with me. I tried to explain in short details and she goes, "On, well just take a nap. We'll play on our tablets.". Sweet!!! We ended their visit by making milkshakes then took them home. They asked when they'd get to come back and we told them whenever mom & dad let's then. I treasure every moment because in a few more years we will be the last ones on their minds. But boy was I glad to get home and get my feet up. 🙏🌼
I can agree with u flappys. My sister who broke her arm last week spent the whole day withe and my mom today. It was nice but I struggles with keeping up with them even just sitting at the table and talking was hard. My legs kept going numb and back was hurting. But with so many people in my home being I'll or under stress it was still nice. Also funny..my sis left arm is broken and right arm has an impigenment ..lol so we are a sight to see. But once she left and I was able to finally strexh out and stop talking it was very restful.. Ventage butterfly..I would say to not think of it as control. But u should study your new pattern. Find what works best for u during your day and do what has to be done to get the proper rest Learn to spread out your duties and realize that its OK if it all does not get done today.. Tomorrow has room for it.
When my fibro was controling me I would fall to sleep on and off all day just sitting around doing nothing. When my younger grandkids came over they would just color or just play with the toys. One day I though oh my god these little ones will have no memories of me playing with them , like my older ones do. So I just make myself push through and enjoy them and my family as much as I can.