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Feeling alone right now

Dec 17, 2015 1:36 AM

My year as been hell ..soeeyvfor language but right now I can't filter. I'm in so much pain physically emotionally spiritually.. My back is being ripped out my by the spine. I've got some bladder infection from out of no where. My mom is still recovering from heart condition. Dad is being clingy since he don't have all attention. My sister has helped for one week and now she gone. Saying its all in her nerves. Leaving me to live with my parents.
So the thought if having to care for parents alone and my pain. Thinking biut my future surgery and going through it alone. And simple having to deal with my pain solo.
Makes me sad and my pain worse

Dec 17, 2015 2:05 AM

Hey put your head up keep your heart strong. It could be better yes, but also could be worse. I don't it might feel like too much, but I'm sure you can make it. Keep hoping!

Dec 17, 2015 2:14 AM

Thank u Paula.. It's just really hard at the moment. Just at a low point. Pain is at 9 and meds nkt working. It could be worse ur right.

Dec 17, 2015 10:58 AM

Newfibrogirl, you are NEVER alone. Granted, we can't be there in the physical but we are here for you. I understand the fear, the sadness, not knowing how you are going to do it all. Since being disabled, I am the one home with my aging parents and they don't ask a lot of me but Dad is 86 and Mom is 80 and Dad needs to be driven places a lot and I may not feel well but, they need me and I do it. I feel that since they supported me now it's my turn to give back. Now, I am one of 5 kids and the others, because they work, feel that since I "don't do anything anyway" that I should do any and all errands for them. If someone else has to go somewhere, then I'm made to feel bad. I understand completely where you're at. The only thing you can do is the best you can do. Remember from a previous thread when we spoke about keeping the lines of communication open. Tell your Sister how you feel. Not in confrontation but in a calm and factual manner. Let your parents know that you're afraid of your pending surgery and getting through it solo, I have a feeling they will surprise you and be more supportive than you think. And as far as support goes, you've definitely got mine and the rest of this wonderful pain family as well. Sending you positive vibes, love, gentle {{{Hugs}}} and prayers for keeping strong and finding peace in your heart and soul. 💕🙏🏻🌻

Dec 17, 2015 12:06 PM

Newfibrogirl, I'm sorry you're dealing with so much stress on your own. I've been there, taking care of parents alone. As hard as it was I did it out of love, and tried to focus on who nerves me instead of who wasn't helping. But when my health began to worsen, I did what AlwayZ suggested and spoke to siblings and parents. Surprisingly they changed and started helping out more, and my dad & stepmom stopped expecting me to do it all. Hopefully when you speak to your family you'll get the support you need. But regardless you have all of us! (((Hugs))) & prayers they will be there for you like you've been there for them. 🙂🙏🌼

Dec 17, 2015 1:45 PM

Thanks alwayz and Paula....as I'm reading this I'm crying because I've just had a huge fight with my mom. She totally lost it on me while shopping. And then drove the car to a restaurant and stood in the parking lot yelling at me saying I was saying to many words and I was being disrespectful and I needed to shut up and be quite.
I told her I was not going anywhere with her while she is in this state. I told her we are in public and I'm not gonna have any conversation with her like this in public. That when she told me to shut up. So I then decide to do just that. I have not said more thr five words to her in the last two hours. As I kept it together while she ordered the food. And she tried to get into another talk while waiting but I did not engage. That ticked her off. I then softly told her that nothing I do is right for her so I'm no longer doing anything. And that was the last word I said to her. All this happened after she had her first visit to rehab. After her surgery. So I can see it may be stress or something. However my mom has these violent out burst often many times I feel as if she was gonna hit me.

Dec 17, 2015 1:46 PM

I'm waiting for my sister to come and pick me up . I'm not gonna stay in my mom's house tonight. I don't feel its a place to be. I've onkynhad 3 hours of sleep in the last 24 hours and I really feel if I stay I'm gonna loss it.

Dec 17, 2015 1:53 PM

I'm so sorry this happened. You do need to get away and take care of yourself. Gentle (((hugs))) & prayers you will get some much needed rest! 🙂🙏🌼

Dec 17, 2015 5:51 PM

I am sorry about all the stess you all go through and the pain! I have been gluded to my tablet readling everyones comments, what a great way to reach out for support and guidance. I haven't really reached out to any support groups anything yet and I need to.
I too, have felt alone for a very long time but knowing Im not gives me hope. I understand what it's like to take care of someone else when my condition(s) has me down. Your not alone!! I take care of my mother who has dementia and Alzheimer's. I also started caring for another family member who has had a shoulder replacement, and has very little rang of motion due to a fall she had last winter. She has also had everything from the knee to her anke rebuild from another accident. She can no longer do much for herself. Physically. I am a single mom with 4 young children. Chronic pelvic pain, and MS. I keep my spirts high and remind myself that one day this is all going to be ok! I keep a positive additude and meditate a lot!! Remember you are never alone :)

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