Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

feeling defeated.....

Jul 10, 2014 7:50 AM

As a child I was diagnosed with mild scoliosis. In 1995 I had a breast reduction which medicaid paid for....I gave birth to my 1st child that same year. After the birth of my 2nd in 1997 I saw an ortho about lower back pain. He said it was a stress fracter in lower vertebrae..... it would heal. After baby #4 I had repair surgery on my ankle after breaking it in 3 places. The back pain has continued. In total I had 6 children and pain got worse with each pegnancy. In between all of this I was hit with multiple incidedents of " wry neck" (torticollis). Between 2006 and 2008 I balloned to nearly 400lbs ( I've lost 140 lbs since then). After multiple ER visits, xrays and MRI I have been given various diagnosis.....bone spurs, arthritis and recently I'm just fat.. I had a doctor that finally heard me. She suggested nerve damage. Then I had to move. After a year of minimal pain I could finally function. New doctor took me off all pain meds and said lose weight. Well I've gained 15lbs back in just 2weeks :/. I've attempted keeping a pain diary and have noticed other things going on as well. Most recent episode had me in a standing fetal position shaking as my entire body shook. I don't sleep much, have to rely on kids to take care of the house( no easy feat mind you) and my lack of being able to sleep is causing issues between husband and I. Feeling defeated by mybody and my doctors.

Jul 11, 2014 6:34 PM

Hannah, I just wanted to let you know that I am praying for you. we live lonely enough lives with our pain and I wanted to let you know that I read your post and will add you to my list of friends in daily pain. stay strong!

Jul 12, 2014 3:04 AM

Hannah, you've got another prayer warrior here. I prayed for you just now, and will continue to do so. I'm praying that our God will heal you, physically, emotionally, spiritually, relationally—in every dimension of your life, and that He will encourage you and give you all the strength you need. Good for you on the pain diary! Keep it up! And know you are not alone!

Jul 12, 2014 2:21 PM

Sadly neither doctor would even look at the diary. Maybe the new pain care doc will

Jul 12, 2014 3:14 PM

if they won't look, make a complaint. you have a right to decent care. you need to fight for it! thinking of you xx

Jul 13, 2014 6:39 AM

I'm pretty sure its because they've already made up their mind lol. I'll get back on it when I can manage to get out of this " funk". Thanx everybody

Jul 13, 2014 6:41 AM

check out the above link. we have the right to treatment

Jul 19, 2014 8:56 PM

Hanna I almost cried reading all of this. I'm 35 4'11" and 115 lbs. I have pain so bad I can't function....crazy I thought about showing my Dr. my pain diary as well.....my true feelings day to day. I have been judged as a drug addict by many for my pain. I would love to need no meds for my pain no one has any idea!!!! I only take a very low dose of vicodin along with several dollars spent on icy hot patches, roll on pain relievers, Advil at 12 a day, gabapentin for nerve pain (makes me more confused and off balanced than anything), and Cymbalta. pretty sure no drug addict does all that. Yet I'm still judged.....

Jul 19, 2014 8:56 PM

I also feel so defeated!!!!

Jul 22, 2014 10:29 AM

I feel you! Today's pain level has me shaking, yet only relief I'm being " allowed " is a low dose muscle relaxer and ibuprofen. Since my MRI was normal she took me of my pain meds......still waiting for my medical to authorize the cymbalta my doctor wants me to try. My frustration is off the charts today! Today I am hating life!

Jul 22, 2014 12:37 PM

I had a weekend like that. Hang in there this too shall pass. Just today I started Lyrica, I'm hoping for the best! my nerve pain is awful. My doctor thank goodness is compassionate about my pain. He is also very careful about My pain meds so that I don't go down that slippery slope. I appreciate that as much as the compassion. Drug addicts have made it almost impossible for people who need these medications for legitimate reasons to get help. They have also made it very hard on Dr's to treat patients and not know who trust. No one should have to suffer and I'm sorry you are. I totally feel your pain literally.

Try to keep your head up

Jul 22, 2014 6:57 PM

Uhg.....just got the denial for the cymbalta.......

Jul 22, 2014 11:55 PM

What about Savella? Think it does the same thing. I'm sure there is other alternatives, there is so many anti-depressants out there. I'm sorry

Jul 23, 2014 6:38 AM

Not like I have a choice lol. She was trying g to give me a catch all I think

Ready to start relieving your pain?

Join Community