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Feeling helpless πŸ˜”

Jul 20, 2015 8:01 AM

I'm 14 years and there's so many different problems with me, but I can't find any answers πŸ˜’ the doctors really just don't know.

At school in physical activity it is hard because I want to do everything but sometimes I just can't. But at other times I push myself and do it cause I enjoy it but find myself aching for days afterwards. πŸ‘ŽπŸΌπŸ‘ŽπŸΌ

People often ask why I'm not doing something it so hard to explain and I don't even really know myself. 😢

I don't know way but I find it really hard to talk face to face about my pain and problems to people. I always feel like they don't understand, but that it's my fault at the same time. 😞

I have swimming to help, which I really enjoy and am quite good. 🏊🏼 This is about the only sport I do, I have had to stop everything else. 🚫❌

Sorry about my rantings on, just needed to let it out.

Jul 20, 2015 8:12 AM

I seriously feel like I am incapable of doing anything. What really annoys me, is when adults say "do this, cause your so young, fit and healthy" and go on about how old they are and that they can't do anything but are happy to say that I am more then capable. Which I am not, I struggle just to walk up a flight of stairs without pain. But no one seriously understands at all πŸ˜“πŸ˜ 

Jul 20, 2015 8:31 AM

Zam, It's so very hard to have chronic pain as an adult, and I believe more so for children and teens. My daughter kept complaining of headaches and not being able to see, at 7yo. We took her to the optician were used for years. He examined her and said there was nothing wrong with her eyes, that she just wanted glasses like her friend. She is over 25 and has worn contact and glasses for 15-18 years. Her eyeballs are shaped like footballs, causing issues with refraction and visibility. When we finally got her diagnosed her vision was 20/200 & 20/240.

As a pre teen she complained of all over joint pain. The doctor passed it off as growing pains. Three years later she was diagnosed with arthritis. We pushed forward until a doctor took her seriously both issues.

I'm very sorry you hurt and have yet to find the answers as to why! It's frustrating, I know. I can only advise you to 1) jot down symptoms daily, 2) what you were doing after/when they occurred, 3) what helps reduce the pain, 4) get second of third opinions, 5) use a physician the specializes in rheumatology for children and youth. Do what you can when you can, but don't overdo it and rest afterwards. And try not to feel guilty because you do need rest. (((Hugs))) & prayers you'll soon get answers! πŸ™πŸŒΌ

Jul 20, 2015 8:38 AM

Thanks Flappyslady, the doctors do keep saying to me its growing pains as well but it's seriously not! Thanks for the advice as well :)

Jul 20, 2015 12:22 PM

Great advice FlappysLady. I continue to struggle with getting enough rest. I feel guilty when I can't do things everyone expects me to be able to do. I push myself then pay for it with increased pain.

I've been living with migraines since my early teens and body pain since my early 20s. Everything seems to be a trigger; weather, food, stress, menstrual cycle, noise. I look healthy so people don't take me seriously. Doctors don't seem to really hear what I'm saying. Medication masks some of the pain but leaves me in a fog or causes more problems.

Trying to get a referral to a rheumatologist is like pulling teeth.

I'm glad I found this forum. Not that I'm happy there are others in pain but at least I know I'm not alone.

Hang in there Zam. I hope you get answers and find an effect way to treat your pain.

Jul 20, 2015 3:27 PM

Zam,
I remember every doc just saying "growing pains", and everyone else would say "Carpal Tunnel?" I had a wrist issue, and no one understood. No, it's not broken. I've never broken a bone....no, it doesn't get better. No, it's not Carpal Tunnel.
It took several years of nonstop doctors appointments before I even had words to describe the pain. I'm 14 too, and expecting an extra year of high school. My high school has been great at trying to accommodate me, but I really hate needing help.
There was a scribe in math and my other classes, but I learn through writing so it was tough. I've never been athletic, or played sports.
Know that nanny adults will react as if you don't have pain, or won't believe you. I remember needing a wheelchair, and one of my family members who'd recently gotten I've great cancer thought I was faking it, and just using a wheelchair for fun.
I had another guy (not family luckily) that I didn't know what pain was, and I should join the military. He didn't even have a chronic illness yet. It just sucks. My sis (she's 12) is having to come to terms with the fact that she has the same issues as the rest of our family.
She always hides everything, knowing that she'll be treated differently. People really don't understand overall. It's not your fault. It's easier for me to talk to older people a lot because they're more open about medical problems. I only have a couple of friends.
One is hyper and very ADHD, one has needed many surgeries, and has Lupus, and the other has chronic pain in general.
Good luck, and I hope there's something to help manage your pain.

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