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Feeling kind off emotionally

Dec 21, 2016 4:22 PM

So I can't really explain it totally. Just feel extremely tired and slightly irritated at the smallest thing. Had a long visit from uncle today. I love his visits he tends to stay for hours though and I've still not graduated to where I can sit up for a long period of time. I did or tired to do some straighting up in my room which needed almost as fast as it started. Got short winded lightheaded and all so I stopped and rested more. I've been attempting to do a limited each day to help build my strength but I'm starting to see what the doctor was talking a lot. The nerve damage from the tumors and retraining of the nerves and muscles on that whole area. Weaknesses and numbness on my left side feels so odd because it's as if I don't have a hip on that side. The feeling is almost nonexistent.
So I'm feeling kind of like isolating trying to keep reach out and attempt to help others who feel the same way. But it's hard to get everyone to engage. I suppose all I can do is my best. Sorry for the ramble. Thanks for your attention if u made it to the end of this.

Dec 21, 2016 6:22 PM

Oh Newfibrogirl I wish there was something I could say or do to help you. It's going to be a long road to what will be your new you will be, there was soo much going on with all the tumors and how big they were so it's going to take time for everything to settle and to regain your strength so please don't push yourself too much, do enough to help strengthen your muscles and you will start to build yourself up again.

Know that I'm thinking of you and sending you prays and spoons to help you on your journey to finding yourself after this surgery.

Sending you positive vibes and warm healing hugs xx

Dec 21, 2016 6:50 PM

Im sorry sweetheart hugs i hope you feel better

Dec 21, 2016 8:34 PM

New, I might be going through a rough patch right now, but I'm still here for you. I understand how hard it is for you to do so little when you've been pushing yourself for so long, but remember, if you over do it now it will take so much longer to get back on your feet. I'm sure your uncle would have enjoyed visiting with you sitting up or lying down. Be gentle with yourself! That's an order! :-)

Dec 22, 2016 5:35 PM

Gentle hugs!!
Sounds likes you body has a lot to adjust to. .. how odd a sensation your left side sounds like. All my nerve issues are on the left as well.

It's all up hill now, maybe a bit slow to start and lots of rest breaks but you'll get there.

Be kind and gentle to yourself while you heal. Gentle hugs!


Dec 23, 2016 12:08 AM

@newfibrogirl I really wish there was some way we could all help to take the pain away...

The only thing I can say is that you need to remember that you are not your pain...

Sending gentle hugs, love and light 🌸

Dec 23, 2016 7:49 AM

Newfibrogirl it's never easy recovering from a major surgery!! This time of year is hard for many (I for one get horribly depressed and sad and spend much of the time crying). Don't take it on yourself that nobody wants to engage, it's just hard. We all care, believe me, we do. Sending you healing {{{Hugs}}} and well wishes. You know where I am.πŸ˜ŠπŸ’•

Dec 23, 2016 4:25 PM

Ditto all the support from previous comments & add mine to it too. You are not alone and your sharing will be someone else's encouragement. Rest enjoy the fact that you can. Let your body heal. And please continue sharing as I relate with much of your issues as they are similar to mine. I think you are very brave.πŸ˜™

Dec 23, 2016 4:29 PM

Thank you everyone, I'm working hard to find a balance with the life I live now. And attempting to get some kind of health back. Surprisingly,the adjustment to coming off hormone therapy and chemo is almost as hard as it was when I started it. But I'm dealing with it.

Dec 23, 2016 4:55 PM

Remember you are not alone all of us here want to make sure your taking things slowly and want to give you encouragement to help you on your new journey. When you've had a routine where you've had a set treatment for however many months that becomes normal so it will be hard now that has stopped and you'll probably go a bit stir crazy while healing because you've got to build up your muscles and retain nerves that weren't able to do their normal functions due to the tumors.

Please lean on us when you need support or if you just want to talk, we'll be here for you x

Sending you positive vibes and warm healing hugs xx

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