Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Feeling overwhelmed

May 18, 2016 9:31 PM

I'm sorry I haven't been online in days to support and help anyone. I'm trying to catch up, but it's likely going to take days. It's been very hectic since my sister's stroke. Another sister does in to sit with our dad while our stepmom went out of town. She caught him taking electronics apart because they weren't working right. He's not able to operate even the tv now. I was suppose to go down but got sick with sinuses and sore throat. His Alzheimer's is readily taking a toll on all of us.

I've had so many appts myself, with PT on my neck. I follow up with the spine doc tomorrow to see if therapy has helped, and what he thinks we should do next. Every time I move my head/neck I hear and feel grating. I just finished PT on my left hip 3 weeks ago and now my right hip is hurting the same way when I walk. I'm also having new pain & tingling in both forearms & fingers.

I followed up with the gastroenterologist surgeon yesterday. We weren't really surprised that I need surgery. The test results however were a shock! According to the demeester scale, usually indicates needing surgery if you score a 14 or higher...I scored over 80! No joke! He said he rarely sees patients with GERD as bad as mine, but some of it is the hiatal hernia. He's doing a "Nissan fundoplication" & gastropexy as part of the procedure, to repair the hernia, repair the widened diaphragm hole, and build support to my damaged esophagus. I won't ever be able to throw up after this surgery. It's very similar to gastric bypass he said. He said I'll lose weight for several months because the repair needed to the esophagus will reduce my stomachs side. Yippee, I can tolerate those two things at least!

By docs orders I started a crash"sugar busters" diet today, until the surgery on the 26th. After surgery I'll be on liquids for 4-7+ days, then milkshake consistency foods another week or two. He told me to try and stick with the sugar busters diet after I'm able to chew and swallow normal food, to reduce inflammation and be easier to digest. This diet takes away everything I normally eat, putting me on foods I rarely eat on a regular basis (especially meats & eggs). I love fruits, veggies, & yogurt, but i also love rice, potatoes, & bread. I rarely eat much meat. I can't have peanut butter or jelly, or honey! And I'm suppose to limit my sugar intake to 3 grams or less per meal. That is so incredibly hard!

Not only do I have to change my eating, but all my meds are affected. If I can't crush the meds or sprinkle it on/in food or liquid, or replace it in fluid form, I have to stop taking it (until I can swallow them again). This includes my daily citrucel& Psyllium fiber; too much sugar& too thick to swallow for first 1-2 weeks postop. Then comes the IBS-C like a raging bull in a China shop! My rheumy doc told me to stop the Plaquenil until 2-3 weeks postop. Now I'm worried about pain from sjogrens& fibro spiking, as that med was a blessing for me with my pain med allergies. Can you tell I'm stressed? 😲 I'm very stressed. I want the surgery because I know it will help in the long run. But I've never ever had so much changes just to have any of my previous 20 surgeries! Omg, I need positive energy& prayers, suggestions, advice from anyone who's experienced this... Thanks in advance! And hugs& prayers for all of you, even though I've not read all the posts I'm behind on yet! 🙂💕🙏🌼

May 18, 2016 9:43 PM

Oh geez. No wonder you are stressed. Hugs

May 18, 2016 11:57 PM

Prayer's for your my friend! I would be stressing out as well! Just take one day at a time and put your faith and trust in him! Prayer's, love and hugs! 🙏💕

May 19, 2016 8:29 AM

Your strong flappy. You will pull through and you will be thankful that you did it for the fact that you don't have to worry about GERD as much. I'm certain of it.
I wish you luck, love and support

May 19, 2016 1:22 PM

Oh Flappsy, I so wish that I could come down and take care of you. I'm sorry you are so stressed. I'm sure you're frightened and I absolutely will be praying for you. I were close I would sit with you at the hospital so you would have company other than hubby and I'd do my best to help sooth your nerves. Sending you much love, gentle {{{Hugs}}} and you're in my daily thoughts and prayers.💕🙏🏻🌻

May 19, 2016 8:31 PM

Thanks for the hugs, prayers, love & support! And it will be wonderful not to have GERD out have to worry about the Barrett's Esophagus worsening. AlwayZ I know you're be here if you could, but you'll Apollo be with me in my heart. 😘.

I totally forgot to add I have to be at the hospital lab tomorrow(6:30 am). Because my cortisol level is below a 1, meaning very low, I'm having an ACTH test on my adrenal gland function.

And today my Ortho started to send me for more spinal nerve blocks, until they tested my strength and saw my right hand is getting weaker. So now I'm scheduled for an MRI of my neck on Tuesday, and follow up with him Wednesday. He's rushing the test in case the anesthesiologist needs to know anything about my neck. He said if there's damage showing we'll likely skip the injx and head to surgery, but there's a lot of people& cons to go over first.

Well I'm about to take my meds (including anxiety meds) & hope my eyes close for the night! Hugs love& prayers to all of you!! 🙂💕🙏🌼

May 20, 2016 3:48 AM

My prayers & good wishes are with you!

May 20, 2016 10:23 AM

Flappsy, I hope that the anxiety meds are helping you even if just a bit. You've got an overflowing plate right now and I can sure understand why you're so stressed. I thank you for saying I'll always be in your heart became you sure are in mine. I'll keep praying for you, my dear friend, and if you need me, please feel free to call or text or email or whatever makes you most comfortable. Much love, {{{Hugs}}} and prayers.💕🙏🏻🌻😊

May 20, 2016 12:25 PM

Absolutely, the Tranxene is helping, and I've got your info. Thank you! Has the ACTH test this am, getting stuck by needles 4x...omg! The med they injected caught me off guard because it burned so badly. 😵 I almost said a ugly word...lol! 😯 I actually think it hurts more than a Toradol shot! Lol. And I've got 3 pretty bruises where they took blood. But at least that's one thing off my plate. I'm praying the results aren't something that will cancel our delay my surgery on Thursday. Hugs!! 🙂💕🙏🌼

May 20, 2016 8:22 PM

FlappysLady, sending you a gentle hug. Remember to breath.
Beets

May 23, 2016 11:20 AM

Beets, I have to say that although I'm still nervous about the surgery, I feel much calmer than I did last week. I credit all the support, love, and prayers from you all. And of course the song "Just Breathe," & knowing God's got this! Hugs love & prayers to all! 🙂💕🙏🌼

May 30, 2016 2:05 PM

Oh Flappsy... I can't imagine you saying an ugly word.. Next time take me with you and I'll say it for you..LOL!! 😳 God knows I have a mouth like a sailor and I can make a trucker blush. That's just part of my charm I guess.. LMAO!!! No, but seriously, I hope that there isn't anything that will cause them to cancel the surgery either. Love, {{{Hugs}}} and prayers.💕🙏🏻🌻😊

May 30, 2016 6:48 PM

Lol, OK I'll do that AlwayZ! 😁 I actually never heard back from the ending doc, so I got a copy of the land myself. Pre injection my cortisol was low, but it went up over twice as much in 30 minutes, and over 3x as high an hour post injection. I guess no news is good news. 🙂💕🙏🌼

Ready to start relieving your pain?

Join Community