I'm sorry I haven't been online in days to support and help anyone. I'm trying to catch up, but it's likely going to take days. It's been very hectic since my sister's stroke. Another sister does in to sit with our dad while our stepmom went out of town. She caught him taking electronics apart because they weren't working right. He's not able to operate even the tv now. I was suppose to go down but got sick with sinuses and sore throat. His Alzheimer's is readily taking a toll on all of us.
I've had so many appts myself, with PT on my neck. I follow up with the spine doc tomorrow to see if therapy has helped, and what he thinks we should do next. Every time I move my head/neck I hear and feel grating. I just finished PT on my left hip 3 weeks ago and now my right hip is hurting the same way when I walk. I'm also having new pain & tingling in both forearms & fingers.
I followed up with the gastroenterologist surgeon yesterday. We weren't really surprised that I need surgery. The test results however were a shock! According to the demeester scale, usually indicates needing surgery if you score a 14 or higher...I scored over 80! No joke! He said he rarely sees patients with GERD as bad as mine, but some of it is the hiatal hernia. He's doing a "Nissan fundoplication" & gastropexy as part of the procedure, to repair the hernia, repair the widened diaphragm hole, and build support to my damaged esophagus. I won't ever be able to throw up after this surgery. It's very similar to gastric bypass he said. He said I'll lose weight for several months because the repair needed to the esophagus will reduce my stomachs side. Yippee, I can tolerate those two things at least!
By docs orders I started a crash"sugar busters" diet today, until the surgery on the 26th. After surgery I'll be on liquids for 4-7+ days, then milkshake consistency foods another week or two. He told me to try and stick with the sugar busters diet after I'm able to chew and swallow normal food, to reduce inflammation and be easier to digest. This diet takes away everything I normally eat, putting me on foods I rarely eat on a regular basis (especially meats & eggs). I love fruits, veggies, & yogurt, but i also love rice, potatoes, & bread. I rarely eat much meat. I can't have peanut butter or jelly, or honey! And I'm suppose to limit my sugar intake to 3 grams or less per meal. That is so incredibly hard!
Not only do I have to change my eating, but all my meds are affected. If I can't crush the meds or sprinkle it on/in food or liquid, or replace it in fluid form, I have to stop taking it (until I can swallow them again). This includes my daily citrucel& Psyllium fiber; too much sugar& too thick to swallow for first 1-2 weeks postop. Then comes the IBS-C like a raging bull in a China shop! My rheumy doc told me to stop the Plaquenil until 2-3 weeks postop. Now I'm worried about pain from sjogrens& fibro spiking, as that med was a blessing for me with my pain med allergies. Can you tell I'm stressed? 😲 I'm very stressed. I want the surgery because I know it will help in the long run. But I've never ever had so much changes just to have any of my previous 20 surgeries! Omg, I need positive energy& prayers, suggestions, advice from anyone who's experienced this... Thanks in advance! And hugs& prayers for all of you, even though I've not read all the posts I'm behind on yet! 🙂💕🙏🌼