Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Feeling scared and alone

Dec 21, 2015 12:22 AM

Had a flare this morning, perfect start to the perfect day 😒😧 *sigh*
Anyway, woke up at 2 am after not sleeping and in way too much pain, got in the bath which triggered CRPS pain, but was better than whatever was going on in the rest of my body.
Bad day, tired dad, gotta go

Dec 21, 2015 3:13 AM

Ferretbandit I'm sorry that you're going through this. I, myself, am in the beginning stages of a double flare. CRPS/RSD started first and now the Fibro flare is starting. I'm fairly sure it's a combo of stress and the fact that I've verb sick for so long. I'm tired and drained so I understand what you are going through. I hope that you get some rest and that your pain subsides. Sending gentle {{{Hugs}}} to help you feel a bit better (or at least, not so lonely or frightened). Hang in there, you got this!! πŸ’•πŸ™πŸ»πŸŒ»

Dec 21, 2015 3:25 AM

Sending more gental hugs amd good vibes your way.. Just some more support here for ya'all and understanding.... I to am up late going on 3 days straight with a bad flare up. Worst one I think I have ever had so far. The pain in my bladder, pelvis,hips and lower back have me flat down in bed, yet wide awake. The meds help keep some pain at bay but I dont know what to do about the cramping in my joints. My hips and lower back :(. Any suggestions?

Dec 21, 2015 6:20 AM

I think it must be the time for flares lol. I'm going to see my new pain doc this morning, so hopefully things will go well. Say a prayer and I hope that all of your day are better. I'm so sorry you guys are having to go through this, but you're in my thoughts and prayers! Genital hugs

Dec 21, 2015 6:21 AM

Omg that was supposed to say GENTLE hugs.... wow. Embarrassing

Dec 21, 2015 2:20 PM

Thanks everyone. My dad is working 12 hour days again, and it's hard on us. He's trying to get through the days, but he's dressed too. My grandparents keep asking "what do you want for Christmas?" and all I can think is, I want you to let me keep my dog, I want you to let us live in this house, I want you to get over your hate.

Not gonna happen, but I'm also seeming to have a phase of semi-PTSD from family things, can't really sleep, jumpy just from cars driving and splashing through puddles. My mom has been messaging me, which sucks cuz I just can't deal with her right now. Not with everything...

Apparently, I get to learn how to cook and try to start learning driving rules so I can get a permit. The ironic thing is we only have one working car, but now it's shaking like the other one did before it broke. We're also looking into housing options, and one of the main ones has a several year waiting list. Perfect. I'm getting to know some of the stupid things that meant adults think I shouldn't even know about, but my family has basically refused to help because of my father's relationship. Ugh.

I really love my dog, but since we have so little money right now, we'll most likely have to let her go to get a place. We'd be fine just calling out in someone's garage but that's not gonna happen. My dog, Gussie, was the only thing grounding me last night, so my mind would stop replaying my dad's exhaustion from construction work, and losing the house with my mom, and earthquake fears, and hiding from the counselors at school because they never listened anyway.

"Life is pain, Princess. Anyone who says otherwise, is selling something"

Always and Fires,
So sorry you're dealing with flares. It does seem like they're common this time if year though. Fires, I'm also having lower back/pelvis/tail bone pain. I had magnolia root, kava kava, and a few other things that made me able to fall asleep around 5 am.

Phoenix,
That's fine, especially with the weirdness of typos. I've tried to right school papers, and then have to edit out really weird sentences...just kinda weird

Dec 21, 2015 4:07 PM

Ferret, you're in my thoughts and prayers. In in a bad flare right now from the weather and overdoing it. Thank you for forgiving the horrifying weird typo. My phone hates me lol. You should see some of the horrifyingly embarrassing things I've texted to my son! I am praying that things stabilize and get much better for you very soon. Gentle (got it right that time) hugs β˜ΊπŸ’–

Dec 22, 2015 10:45 AM

Lol phoenixrising! Stupid "bad" auto correct!! 😱

Taming2fireswithin, has your doctor given you any muscle relaxers? I have Parafon Forte and break them in half. Try a warm moist towel (microwaved) on the areas, but don't get it too hot.

Ferretbandit & AlwayZ, you're both in my prayers! I think this crazy yo-yo weather has a lot to do with it. It's been cold here (GA) since last Friday, and my hands hurt like crazy, and cold like ice. We're expecting storms Christmas, as our temps soar into the 80's!

Ferretbandit, it's a shame you are seeing so much of the reality in adult lives. But you will come out stronger in the long run for it. You stated what your like to respond to your grandparents question of "what do you want for Christmas." Why don't you tell them how you feel? Christmas shouldn't be about giving trivial gifts. It should be about giving meaningful gifts to those in need. You might be surprised at their reaction, and I'm sure they will be surprised at your request. But if you don't ask them you'll never know if they would help by giving you these gifts you ask for. The worst they can do is say no. But what if they do something, anything to help? You are a very strong young lady. You can do this! (((Hugs))) & praying they will hear you with their hearts! πŸ™‚πŸ™πŸŒΌ

Dec 22, 2015 11:21 AM

I to am in a flare, exhausted, over the top pain, testy, snappy, just won't to be left alone, but need care. The worst is thinking I did something or should have did something. It can make things worse. Now I have the flu and whatever hopes I had of getting out of bed are gone. I wish you all love and light. Healing, gentle soothing voices of kindness. Gentle care, warmth and comfort. I know what you mean about your dog giving you comfort, sometimes my cat rocky is my only friend and I am in good company.

Ready to start relieving your pain?

Join Community