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Fibro and not being able to work

Oct 04, 2014 10:17 PM

I have had four days off work and feel amazing. My job is very physically taxing. However I had no idea how much pain it caused me. Any advice how to make it with two children and not working? I could have a much better life!! My fibro is very extreme, if there is a symptom I have it to the fullest. I've never been a lazy person so I try so hard to push through. In the end it's only slowing me down. So conflicted.....ugh

Oct 05, 2014 8:05 AM

hi C- I just wrote a post this week about working and having fibro. I have cut down my working time to about 2/3 of what I was doing. I like you feel guilty and lazy! I am trying to work on that and look at it like it's something I have to do to not get a flare or sicker. so the key for me is not to stop working but do less. is this a possibility for you? I wish they offered disability for part time workers!!

Oct 05, 2014 8:13 AM

I went from working 50 hours to 45. I'm a nail tech, I also schedule time between clients and more time with them. My pay has changed drastically. My pain has only increased. I'm going to have to switch jobs. It's just not that easy. I could start the disability process but you don't get very much money :(

Oct 05, 2014 10:44 AM

Hi everyone I had to go from fulltime to parttime 2yrs ago with no support of benefit has takenmy husband had open heart surgery at the time so both of us have medical problems with help of our mortgsge company and stepchange I can honstly say after 2yrs I am now relaxed about our finances but during that time I felt nothing but guilt that my health had put us in this position. Now 2ys on am free of this guilt . I still have days off work but they now understand the reasons why.

Oct 05, 2014 11:22 AM

I haven't been able to work for almost a year..I feel your frustration..I had an awesome job and a good life...now I am a useless blob taking up air....the more I move the worse I feel..haven't figured out what type of work would let me go at my own pace....not much I'm figuring

Oct 06, 2014 12:26 PM

I used to work in A&E as a nurse but have had to change jobs to desk work, I won't give up work I enjoy it!!!

Oct 06, 2014 1:48 PM

just went down to 4 hours a day

Oct 06, 2014 3:02 PM

If your a nail tech your sitting bent over most of the day. That's really hard on a Fibro body. I suggest getting up and moving as much as possible. Take notice of your posture also. It sounds silly but it's amazing how sitting in a bad position can cause your whole body to become in pain.

Oct 06, 2014 5:03 PM

Boy do I understand. In the past I ran a Subway restaurant and worked at lest 50 hours a week (and had two young kids). Before that I worked with young kids and lifted, carried, crawled on the floor, and played with them. Only five years after the manager job I haven't worked in over two years and final convinced myself out was (mostly) all right to apply for disability. It still feels looks giving up, but I realized I couldn't be there for my kids if I spent all my time being totally miserable.

Oct 09, 2014 6:43 PM

I had to quit working a simple corner shop job as I couldn't move for days after just a four hour shift. Now I cant work at all and I'm struggling just to keep from going crazy

Oct 09, 2014 8:15 PM

that is where I'm at now too

Oct 09, 2014 8:19 PM

Ugh my job is so physical. I'm trying to cut my hours! My clients are already freaking out. I'm not good for them when I'm in pain. I love my clients it's hard for me to pick who I can't do anymore :(

Oct 09, 2014 9:16 PM

I lost 3 jobs, I had to switch from social services focused on children and family, and an overnight shift working with runaways to working with elderly and disabled 3/4 time work. I even lost a job working in a convenience store, I could not seem to focus enough to keep my till straight.
I do know you cannot apply for disability while your still working. My hubby has fibro plus other debilitating conditions he applied 2 years agogot turned down, reapplied and now is waiting for a court date.

Oct 10, 2014 8:57 AM

not all didabilities are visable thats my saying now i hVe a sticker in my car with it on x

Oct 10, 2014 8:57 AM

not all didabilities are visable thats my saying now i hVe a sticker in my car with it on x

Oct 10, 2014 8:55 PM

I take codine 1000mg and that makes me as high as a kite, but I would love to try weed but it's not legal and they don't do medical in our country, plus I can't afford it illegally. :/

Oct 10, 2014 10:03 PM

I am 47 and been unable to work for the last 5 years. I am currently having counselling because I felt worthless and helpless. iI am trying to pace self with daily chores, but found doing things such as jigsaws and painting helpful to keep me still for a while. re money, I used to be an impulse spender. I cut my monthly spend by a third just by shopping on line and only buying what I needed rather than what I fancied at the time.

Jun 27, 2015 10:38 AM

I understand fully. I haven't been able to work at all for years, so kudos to you for working the way you have! My husband, fortunately, makes enough for me to be able to stay home. I have the same problem with chores. I am actually a neat freak but to look at my house you'd never know it! Lol. I go through feeling absolutely worthless alot. I have to cry it out about once a month.

Jun 29, 2015 6:08 PM

I lost my job a year and a half ago. I was blessed to get disability in 3 months from when I applied. My job defined me so it has been hard. I do volunteer work and keep up with technology so I can go back some day. Maybe I will do freelance work but for now I am enjoying life and recovering from years of working through my pain to exhaustion and having to give up on any other activity. Getting my house and life back in order little by little and feeling good about making little steps of progress. Staying positive and focusing on the good stuff rather than the pain and the fact they people just don't get how others can look ok, but be in pain and live with it.

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