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Fibro and temperature sensitivity?

Mar 05, 2016 3:18 AM

I've been temperature sensitive since I got back surgery when I was 11 years old. It's also when my chronic pain started. Is temperature sensitivity part of fibromyalgia? If I get too hot it's hard to get cooled down and vice versa. I get my thyroid checked every year and it's fine.

Mar 05, 2016 3:21 AM

Yes it can definately be a symptom of fibro. I also have reynaud's (a vascular syndrome categorized by swelling, itching, pain, numbness, and color change of the skin in cold to red white or blue)

Mar 05, 2016 3:24 AM

I was unaware of this. I've had fibromyalgia for at least fourteen years without being diagnosed in that case. I don't know what to say.

Mar 05, 2016 6:21 AM

I should clarify it is one of over 100 symptoms that can show up in fibro, but the diagnostic must be present:
Pain in all four quadrants of the body for greater than six months... That is localized to the 18 original trigger points.

If you do have reynauds then you need a rheumatologist panel run once a yesr and to see a dr
This should coincide with a maintnence appointment looking for rheumy factors- AnA, anti-dna, etc.

Mar 05, 2016 12:13 PM

I have pain in all four quadrants for at least ten years undiagnosed at the trigger points. I don't know if I have reynauds though. I'll look into it.

Mar 05, 2016 12:58 PM

I do find that when the weather changes, especially the barometer, I get more pain.
I always have a light sweater with me (made of soft bamboo!) so I can be comfortable. Of course now I get hot flashes, so all bets are off

Mar 05, 2016 3:05 PM

When I over heat , I find it hard to get my temperature down , I suffer from fibromyalgia too , it's a nightmare at times

Mar 05, 2016 3:52 PM

I love heat but I'm incredibly intolerant to the cold. I don't even like to drink cold things because I'm worried it will make my pain spike

Mar 05, 2016 3:52 PM

I've had temperature sensitivity since I was a teenager. Purple toes even in the summer and red faced and sweating even in the winter.

Mar 05, 2016 7:21 PM

I have temperature sensitivity for years figure it is the hypothyoidism not fibromyalgia. My thyroid was off for years with doctors telling me it was "fine" and one day a doctor looked at my blood work and said your thyroid has been off for years how are they treating it? All that and it runs in my family to boot! They just lowered the positive for hypothyoidism not that many years ago but not all doctors go by new standards. There is evidence that thyroid issues and fibromyalgia may be linked and have many of the same symptoms from brain fog to pain.

Mar 06, 2016 6:59 AM

I have Fibrro and CRPS and those systems I have too

Mar 06, 2016 8:41 PM

I am also very sensitive to temperatures. I have fibro, sjogrens & hypothyroidism.

Mar 06, 2016 9:23 PM

Hot blooded check it and see! Hot blooded! Menopausal crazy ...hail to the V.

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