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Fibro feels like a roller coaster that never stops

Sep 06, 2016 9:43 PM

I'm SOOO exhausted by the constant ups and downs. I feel like just when it levels out, here come the twists and turns. I feel misunderstood and like everyone thinks I'm faking it. I spent all day in bed yesterday feeling like I'd been hit by a truck.

Sep 06, 2016 9:58 PM

Amen! That's exactly what it's like. It gets easier...and then harder....and then easier again. You're not alone in this life experience. I believe you're really hurting. I believe you when you say it's too hard to get out of bed today, even though you were ok yesterday. I believe it all, because I live with it too.. Hang in there. Sending hugs your way!

Sep 06, 2016 10:05 PM

yes! the exhaustion is too real even after doing a simple task like showering or eating. The battle against Fibromyalgia sucks at times, because it always feels like we lose, especially when people don't believe that we are truly in pain. Some days are harder than others, but we have to keep going. Not everyone understands our reality, but that doesn't make it any less real. I hope tomorrow is a better day for you😚

Sep 06, 2016 11:08 PM

When asked how's my day I just say better than yeasterday. I have a whole family that thinks I'm just a complaner. I believe you and hugs. Tomarrow will be better.

Sep 07, 2016 12:15 AM

Hello sweetheart 🌹
Changing the cover on my duvet...😓 wipes the floor with me for the day!😲 It certainly is a rollercoaster aMy 🤗...but sweetie...😉we are all riding the train with u...so u r not alone 😙

Sep 09, 2016 12:22 AM

Thx everyone. I'm very frustrated as in the last 2 years my daughter was diagnosed with thyroid cancer, which led to 45 days in hospital, then I lost my job, had to move 350 miles back home, lived in my parents house for a year then out of the blue they kicked us out so yet another move, my kids moved out and my sisterinlaw moved in, in appeal for disability. It's been so hard on me physically and mentally.

Sep 09, 2016 7:25 PM

It's so true that is how it is! And when we have a decent day you decide to get more accomplished because hey you feel okay..then bam you are down for days because you over did it!( And over doing it could be as simple as doing your laundry and your dishes) something other people take for granted! It's also hard to hear someone else complain about a headache or a bad night sleep or a sore neck! It's like Shut the *@&# up! Imagine always having a headache or always being in pain and NEVER sleeping!! Sorry I digress! Rant over! Bottom line I get what you are saying that's why when I have a decent day or even a decent hour I hold on to that so when things are bad again I remind myself that I will have a good day or hour again!! Hang on !

Sep 09, 2016 7:52 PM

Welcome aMyinal! Yes I'm in a flare now so I feel you. There are good bad & ugly days. Enjoy the good without over doing if you can. Pace yourself between rest & activity. Hugs love & prayers you find ways to cope better! 🙂💕🙏🌸

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