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Fibro, female hormones and complete exhaustion

May 19, 2016 4:15 PM

Do any other women get completely exhausted before thier monthly? I get something beyond exhausted where I sleep almost round the clock and when I am awake it is a fight to stay that way. When I get up I feel so weak and like I haven't slept in days. This lasts anywhere from 3 to 7 or more days before my cycle. It just doesn't seem right.

May 19, 2016 7:50 PM

Shammagren, I wish I could help you on this but Ive been in surgical menopause since 2003, before my fibro. I hope others can help you. Hugs& prayers! πŸ™‚πŸ’•πŸ™πŸŒΌ

May 20, 2016 4:18 PM

Thanks flappy, I am starting to feel like it is just me.

May 20, 2016 4:41 PM

I don't think so. Coincidentally my daughter mentioned being really tired with a headache. When I asked if she was getting sick, she said it was about 1-2 weeks before her cycle. Just rest and take it easy when you can. πŸ™‚πŸ’•πŸ™πŸŒΌ

May 20, 2016 5:01 PM

Yes! It's exhausting! but once I start it seems to go back to my regular old exhaustion!

May 20, 2016 5:05 PM

I get really exhausted for a week (pre-period), then feel really happy (first day/ night before) and then it crushes me for 7 to 10 days. I guess I'm lucky to have a "period high" the first day but honestly it's just my body trying to compensate for the blood loss...

Are you using a hormone supplement or birth control? I know those can affect periods. Is the exhaustion new, or something you've had for a long time.

On a side note, I'm 15 so my body is probably doing different things than yours, but I think it's definitely worth talking to your doc about. I have caffeine pills for days I just can't get going, but I'm kinda a zombie anyway...Good luck and let us know if you figure out what's happening❀πŸ’ͺπŸ˜ͺ

May 20, 2016 5:23 PM

I'm 32 and when I was your age I didn't have any period symptoms at all. It just seems to get worse as i get older. I don't take birth control bc it effects my mood too much. I honestly feel like I've been exhausted my entire life. I was diagnosed with depression and anxiety around 18 yeas old. Just recently I was diagnosed with fibromyalgia. Though I've probably had it for years. I don't take anything for it bc I'm sensitive to side effects and I'm looking into a more natural approach.

May 20, 2016 8:34 PM

I am 47 with a tubal ligation. After my cycle starts I typically feel better probably the best I ever feel out of the month with the exception of the day 2 extreme blood loss dizziness. I am lucky my cycle only lasts a few days.

When I was 15 I had terrible cycles with extreme bloating to the tune of gaining 10 to 15 pounds. By about 17 my cycles straightened out except the migraines started which by the time I was 24 I discovered it was the birth control pills. From then until a few years ago I had no issues with my cycles.

Hopeful...i agree doing fibro as long as you can without meds is best. I was diagnosed years ago with fibro until 2 years ago I avoided medications but it has reached the point where nothing works. More recently I had to give into pain meds because I was living in bed and crying all the time in pain. Stay healthy, know your limitations and don't over do.

May 20, 2016 9:19 PM

Thank you for the advice! Did you ever try natural supplements? I'm hoping my doctor will help me figure out a diet and vitamin plan. I'm unsure how he'll react... I feel like doctors like to perscribe meds more than anything. As of right now I've been prescribed robaxin and cymbalta. I've never taken the cymbalta bc of very poor reviews on asksapatient.com. "Brain zaps" scare me bc I took Effexor years ago and experienced brain zaps and don't feel like I've ever been the same since. I take the robaxin almost every night some times it helps sometimes not. I'm currently not taking anything for my depression and anxiety. I hurt every single day physically and emotionally and one just makes the other worse 😣 I'm starting to feel more hopeful being able to come here and read other people's struggles and the comforting words people have for each other. We will see what happens tomorrow. Day by day...

May 20, 2016 9:27 PM

Also has anyone ever experienced a swollen neck lymphnode with fibro? I've had one since July of last year that I see an ENT specialist for. I've had a fine needle biopsy done (kill me) that came back negative for cancer but I couldn't let him get the amount of lymph he wanted bc I'm terrified of needles. He was a student and there isn't enough Xanax in the world to let him stick another needle in my neck πŸ™ˆand recently at CT scan bc the lymphnode refuses to go down. I get the results Wednesday. Just wondering if anyone has experienced the swollen lymphnodes with fibro as well.

May 21, 2016 4:03 PM

Hopeful...yes on swollen nodes In my neck. I thought it was thyroid related.

Cymbalta made me really sick. I compared it to when I had H1N1.

I avoided supplements other than multivitamin, vitamin d and c. I tried to eat healthy forks over knives is a great book.

I also wouldn't give in to anxiety meds but I got to a point where panic attacks were sending me to the ER as it felt like a heart attack. You do get to the point you can't control it and it does bad things to your body systems. I started and still have Loranzapam. I swear by it and I only take half to 1 pill when the anxiety is bad. I like it because I only take it when I need it.

The pain is tough. For years they told me nothing was wrong and I pushed myself Extremely hard and would have terrible crashes. Knowing your limits and working within them is very important.

May 22, 2016 6:56 AM

Your pain is real and the hormonal fluctuation is true. It's very difficult. Yes, try a low-dose birth control pill to prevent hormone spikes. An SSRI helps a lot too.

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