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Fibro flare

Oct 29, 2017 7:36 PM

I need ideas on how to put myself in a flare before my Drs appointment. I've been in chronic pain for over 5 years. I've been to countless Drs, and had so many tests done. I'm so close to being diagnosed with fibromyalgia and it's become extreamly frustrating. My dr even said I have fibro but won't officially diagnose me yet because of the trigger point test. I usually have a flare in one thing at a time and it's rare that I'm in a full body flare. I'm currently in a full body flare and my appointment is in a week. I just need ideas to keep me in a flare so that I can finally pass the trigger point test.

Oct 29, 2017 8:02 PM

Let your doctor do blood work on you that's what my doctor did to me to find out that I have fibromyalgia

Oct 29, 2017 8:11 PM

My dr has done so many rounds of bloodwork and she says that fibromyalgia dosent show up in bloodwork. The bloodwork just helps rule out anything that causes the same symptoms. She wont give me the official diagnosis until I pass the trigger point test

Oct 29, 2017 8:13 PM

I done that to so good luck on that

Oct 30, 2017 3:23 PM

I wrote everything down while I was in a flare. I mean everything! And showed this to my hospital, they took one look and said it’s defo fibro!

Oct 31, 2017 7:34 PM

Are you keeping track consistently in your pain Journal? If so have the report sent to your doctor. Also does exercise affect how you feel? If it does that's a great way, also make sure you cook everyday, and that you use as many spoons as you can. Don't make simple things, things that are going to take a lot of work. If you can take it that's the only suggestion that I have. It's going to be hella painful but at least you'll be in full body flare.

Nov 01, 2017 12:37 AM

I am keeping track of everything as consistently as I can. My dr says that I have fibro but won't write it on any of the paper work. It's just frustrating because she has told me its fibro but on all of the forms she just writes chronic low back pain, even though everything hurts. If I don't get answers this visit I might switch Drs. I hate switching because every time I switch the Drs want to run the same tests over and over again. I feel like with the way I've been keeping track of my pain, the symptoms I've directly explained to her and all of the endless tests should be enough. Thanks for the advice, I'll definitely try to excersise and cook more. I've also been eating worse than usual, drinking coffee and I took a week break from physical therapy... That's mostly because I have to wait for the insurance to approve more visits though lol. It's definitely been a rough week already but hopefully I will get a diagnosis and it will all be worth it.

Nov 01, 2017 8:21 AM

Let me know how the flare progresses. Hugs and spoons 🥄🥄🥄🥄🥄🥄

Nov 02, 2017 8:08 PM

Blood tests rule out other possible health conditions that may be causing pain; the diagnosis is mostly rule out everything else, and that’s what’s left. Yes, the trigger point test is a diagnostic tool also.

Nov 04, 2017 3:30 AM

Ask for reports on all the tests they run on you- it’s your right.
When you need to switch drs just share the reports with them- this way you won’t need to repeat most tests.

As for onsetting a full body flare up.... serious body workout, a run, cleaning the entire house, or dancing all night for at least 3 hours... that will definitely give you a full body flare up the next day.

Nov 04, 2017 3:54 PM

Thanks for the advice 😁

Nov 06, 2017 2:22 PM

Thanks again for everyone's advice, it worked! After over 5 years of being in chronic pain I was finally diagnosed with fibromyalgia

Nov 08, 2017 9:19 PM

That's weird that the doctor insists on the trigger point test since new standards of diagnosing now shifts towards general consistent widespread pain. The test is now no longer necessary for diagnoses the medical community now realize it isn't as accurate in studies and isn't realiable. Pain shifts from points in Fibro all the time and the 18 so called points are inconsistent in studies. Also it angers me that your doctor won't take your word of widespread pain that you have repeatedly spoke of in numerous previous appointments.

Nov 11, 2017 9:33 PM

When I got diagnosed a few months ago, after nearly five years of trying to figure out why I hurt so badly, the dr did the trigger point test on me and luckily it was a really bad flare that day and I had 18/18 trigger points. And then he took a straight pin and poked me all over my hand, arms, feet and legs and asked me if I felt anything sharp and I could tell in some places that something was touching me but no sharp feelings at all. I had never heard of that being part of the test before, has anyone else had a dr do that??

Nov 12, 2017 5:25 AM

Probably testing you for neuropathy

Nov 12, 2017 5:04 PM

Neuropathy test. Yes I have had that. If you are not feeling the needle and nerve pain he will probably send you for the test that will confirm neuropathy. My neuropathy is so painful I can't stand it

Nov 12, 2017 5:11 PM

@christinemswain I’ve had the needle test before. When I was being treated for post heretic neuralgia the dr would poke me repeatedly with a safety pin on my feet legs torso and arms

Nov 12, 2017 8:08 PM

The neurologist will do an EMG test to test nerves working right. Needles and electrical impusess.

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