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Fibro flare kits

Aug 22, 2016 6:11 PM

How i felt this week. Thank god thats over! For now!
I was browsing pinterest & it was talking about fibro flare survival kits
What would you have in yours?

Aug 22, 2016 8:29 PM

I don't have anything I don't think. I ride each one out as they come but I have so many other "issues" shall we say, that I use mindfulness, biofeedback, listen to music, dance (yes, dance), rest when I have to, use a TENS Unit, guided meditation, gentle stretching, heat, my massage chair, etc. (I guess maybe I DO have stuff in my kit after all.. LOL!!!😜🙄)

Aug 22, 2016 8:47 PM

Can I pack a masseuse into my kit? A nice massage, hot bath, relaxing book or movie and all the right oils and meds. Oh! And something to make me laugh!

Aug 22, 2016 9:57 PM

I guess i'm learning and traying everything to see what works. For now, usually it's a good bottle of wine with happy festive people! 🎉 💃💃

Aug 22, 2016 10:25 PM

I don't have a kit but I need to make one, especially for traveling, which makes it worse. I'd put a heating pad, muscle rub cream, oils to relax me, my "bunny blanket" (a super soft blanket that feels like bunny fur), a neck pillow, meds obviously, my tablet, and chargers for my tablet and phone.

Aug 23, 2016 4:26 AM

Sounds like a mighty fine kit to me Cassi 😚

Aug 24, 2016 6:48 PM

Id have in mine
Heatpack, muscle aching cream, essential oils to help me relax and a mini diffuser, strong pain releaf, coffee (cause i am trying so hard to give it up but still need it!) A glass of wine for really bad days, a good book, some crystals, a journal, my phone charger and headphones so i can shut out the world, a soft blanky, and id park myself in my bed.

Aug 25, 2016 2:49 AM

In mine I have: paper and pencils for doodling, meds, braces, 2 teddies which I like to cuddle, nail varnish and face masks, moisturiser, a book, sweets (my favourite are boiled sweets like lemon sherbets) and photos to make me smile

Sep 08, 2016 2:54 PM

I'm so glad the tens unit was brought up. We have one too and it can help with the neck shoulder pain. That youa

Sep 08, 2016 11:11 PM

Tens unit, ice packs, massage pad, blankets, meds, crystals, tincture. My husband. Epson salt bath. Magnesium spray. I have fibo so I'm sure I left out alot.

Sep 09, 2016 8:42 AM

I'm just starting Pregabalin on a as needed only basis for flares. Since my diagnosis in April, I've had one flare that lasted about 5 weeks. The Pharmacist on my pain team tells me it will take about 3 days to feel the full effect. We'll see how it goes. Today is day 2. If this works, this would go in my kit, along with favorite blanket, rice bag & iPad.

Sep 09, 2016 3:45 PM

If you start using a TENs unit & become allergic to the sticky stuff on the electrode pads as I did, doc said put a thin coating of Vaseline on the pads before applying to body. Now why did'nt I think of that?? Hope it doe not happen to u.

Sep 09, 2016 5:35 PM

Omg awesome idea,thank you for sharing that!!!

Sep 15, 2016 11:55 AM

Okay, strike Pregabalin (Lyrica) 25mg twice daily as needed for fibro flare from my fibro kit. Made me high, unsteady on my feet & interfered with my speech. Now I know why it has a high street value.

Sep 25, 2016 8:51 PM

I'm pretty sure that my kit would contain;
Current medication (including a joint or 2 or 5, naah maybe a dozen !) 😂😂
My super warm and super soft blanket
Pillow from the physio
My battery operated massager
Virgin cold pressed Coconut oil for massage
My classical and relaxation music
Lavender oil
Disposable heat pads
My dog Bella, my sanity and my happy smile maker!
Could probably list a few more but that'll do for now😊🌻🌼

Dec 26, 2016 2:05 AM

I actually have a flare kit that I carry in a backpack on my person at all times (combined with my purse it is so very heavy and subsequently worsens my pain! Gotta love that sweet, sweet irony) and in it is;
• several types of over the counter pain meds (aleve, tylenol arthritis, extra strength regular tylenol, aspirin, advil, motrin, and two kinds or robaxacet. With the frequency I take them I hav to alternate and take MORE DAMN MEDS to keep the lining of my stomach from being eaten away by stomach acid, to keep my ulcers from returning, and to keep my filter organs as functional as possible)
• an electric heating pad (I got mine on sale at loblaws for just under $40CAD and it is WONDEROUS)
• icyhot pads? Like the sticky ones you slap on amd they leech chemicals or meds (I just refer to it as magic because I'm too afraid to look into what I am actually absorbing into my body) into your skin and have the effects of a hot pad and an ice pack at the same time???? M A G I C
• granola bars to keep my blood sugar from crashing and burning when I'm in too much pain to remember to eat
• a really soft fleecy sweater that
1) keeps me warm
2) makes me feel safer and lessens anxiety
3) is reaaaaaaaaally soft and not only is sensory stimming heaven but helps distract me from the pain that comes with the fact that I have to wear practical and socially acceptable looking clothes when my skin is screaming at me because everything is scratchy and hurts
• a couple bottles of quick drying nail polish for when the fibro flares trigger my anxiety prone ass into a dermatillomania relapse and I just have to scratch something off but it can't be my skin
• two tubes of voltaren cream (one regular and one targeted for joint pain)
• birthday cake chewing gum for when I need to stop clenching my jaw and grinding my teeth (because TMJ)

And then 35lbs of normal things most people keep in their purses + a full wilderness first-aid kit because you never know when you're going to need a thermal blanket or fifteen kinds of bandaids

😅😅😅

Dec 26, 2016 2:07 AM

WOW that was so much longer than I expected it to be please accept my deepest condolences for the smothering of your post by means of my wall of text

Dec 28, 2016 3:19 PM

I am too slow. Nobody likes to walk with me

Feb 22, 2017 9:48 PM

I am single and still working full time to make ends meet so I wear what I call my uniform: soft leggings, tunic, sketchers and a wireless sports bra! My purse always has Tylenol arthritis and ibuprofen in it as well as next to my bed and desk. At work I have a heating pad, soft wrap and fuzzy slippers, and lidocaine spray, D-ribose and a host of vitamins in my drawer. Lately I have gotten into floating in an immersion tank full of warm Epsom salts. It is heaven! It is just as relaxing as a massage but not as painful as you are buoyant and just float there in the dark. I always fall asleep 😴

Feb 23, 2017 5:52 PM

I wish I could make up a flare kit 😓. NOTHING works, and I have to go into the hospital for a pain shot each time, it's been so bad recently, they've kept the cannula in my vein permanently so I don't have to deal with the pain of a fresh needle each time. Hugs from my daughter used to help, but now even that hurts too much 😩😩😩

Feb 24, 2017 10:29 PM

I'm A backpacker to... feels safer to always have it handy, despite the weight.

Feb 27, 2017 11:43 AM

Peppermint oil and crochet blanket for warmest snuggle. Pain meds as last resort. Hot bath with a little bit of peppermint oil

Feb 27, 2017 7:29 PM

I have a heating blanket, multiple pillows on my bed at all times so I can move in multiple positions and prop up my legs or anything that may help ease the pain. And I use Epson salt in my hot baths. I was wondering has anyone tried weighted blankets? I think I'm going to try one soon to see big it helps the pain.

Feb 27, 2017 7:37 PM

Wow! Im going to make one. Perfect idea!

Mar 13, 2017 9:49 AM

The last cold front that just came thru was horrible. I finally had sex and a hot bath full of Epsom salts and a Percocet. Wish I could put a bath and sex in a kit!

Mar 16, 2017 6:33 PM

I love all these ideas! What a fantastic feed.
I never ever thought of having a fibro pack for travels. However, I always have my meds for the day with me at all times. If I am going anywhere at night, I take 3 days worth / "just in case" / & a jacket & blanket!

I always have to be warm, calm, body relaxed (as much as possible)... so I would need my 1) phone, kindle & headphones/chargers 2) 3 pillows & 2 blankets 3) medications & knowing when the refills are due 4) 2 pups white boxer & fawn french bulldog 5) softest most comfy clothes, socks, panties 6) TENS unit 7) batteries 8) creams & lotions

May 20, 2017 9:44 PM

Interesting especially for me with the dermatillomania bit. Been looking into this because of a rash I have had for months where I did it constantly without meaning to leaving me covered in scabs and scars

May 21, 2017 3:57 AM

Lets see my fibro flare kit would include:

-a sound proof, windowless, lockable room (so I can't hear all the noises at any time of day it strikes, lock out the family {my teenaged girls because even sheets or cloths hurt to have on so I can sleep in the buff with only my 2 pillows})
-soft bed and silky smooth bedspread
-my long body pillow and memory foam pillow
-my phone set on airplane mode (no calls or emails or texts) so I can play my soft music playlist
-my tablet if I wanted to watch a movie if I wanted or journal.
-my meds
-small fridge for cold drinks and few reusable ice packs
-some special dark chocolate bars (yum)
-my thermaphor (electric self moist heating pad)
-my TENS/EMS unit
-My essential oil hand blown glass nebulizer diffuser & essential oils cabinet
-some very low dimmable lights
-my massage table & sheets for it and bolsters
-my massage therapist
-my shiatsu neck massager
-my chi machine
-my neck tradition unit
-Palmer's Coco butter formula cream
-my large pad massager
-my service/therapy dog Sandy
-my vitals meters (blood pressure, temp, pulse oixmeter, PT/INR, glucose
-my high pressure oxygen tank
-CPAP machine
-remote control switch to turn on my oxygen condenser which is outside the room (its noisy)
-my Keurig machine and breakfast blend K-cups
-a sink in there and bathroom And shower with shower chair (why not lol)
-my hot tub

You know what.... How about I just send the girls out shopping and stay home that's my fibro flare kit.... That's much easier to say!!!! LOL

P.S. I have a hot tub in the pool but the heater broke. I have a massage therapist but no money to pay her. I don't have the sound proof windowless room. But I have everything else!!!

May 21, 2017 11:50 AM

I could not have said it better. The perfect "kit".

May 21, 2017 2:37 PM

Totally! You said it all!
Id gota have my music, cats, kava tea, ice packs, biofreeze, lots marijuana, lighter, bowl & maybe my husband Lol

May 22, 2017 4:28 PM

Firm massage, warm blanket, ice packs, lots of chocolate, films that I can put on without getting out of bed/couch, my meds, a steady supply of juice and tea, and enough time to recuperate properly without the demands of life

May 24, 2017 9:50 AM

I have to say...Reading all the above has made me feel normal (for once). I need the super soft blanket and Calming music to try. I also taught myself how to crochet from YouTube. It helps me to concentrate on something besides all the pain. It's like meditation.

May 24, 2017 11:24 AM

Crochet is good but exacerbates my shoulder neck & arm pain if do it long. The distraction is helpful I agree.

Jun 11, 2017 12:33 AM

Great ideas :)
For me I would pack, arnica gel, heat pads, ankle boot brace, meds, paper, pens, phone, chargers, e cig, headphones, youtube, salt and vinegar rice cakes, cheese, crackers, cherry pepsi max, ooh and tv series of miranda, mrs browns boys, hero, sponge bob, would I lie to you and one foot in the grave :)

Jun 11, 2017 5:18 AM

Emu oil bottle(natural pain killer! This , applied topically, quickly eliminates pain, reduces inflammation and soothes psoriasis and rashes !)

Coconut oil to pour in hot drinks (helps moderate my mood);

Salt for foot soak;

Vitamin B complex tabs (Neuroton brand);

Finally, Guaifenesin . I am having success on Dr. StAmand's Guaifenesin protocol. Although this also exacerbates flares, after a while, I feel like I am walking on sunshine 🚶 ☀! Now Guaifenesin has to be in my kit because it has cut my fibro symptoms down tremendously and I am continuing on the path to complete health 😊. After 30years, I had given up and had never thought it was possible!

I strongly recommend this protocol.

Jun 11, 2017 5:31 AM

Thanks BonnieBells for bringing up dermatillomania. I had never thought of this as a problem or as a symptom of anxiety. I will be looking out for it in the future.

Jun 24, 2017 8:04 PM

Netflix, hot bath with magnesium flakes, essential oils, electric blanket, snuggie, TENS machine, hot sweet tea and (not for everyone but) by wonderful boyfriend :P

Jul 04, 2017 5:53 PM

My 7 month old Boston Terrier, Maggie, my game phone, my cell, pens, stencils, my Bible, Tylenol PM, muscle relaxer, ice cream, a soft blanket and back pillow, along with my regular meds and vitamins. Oh, yeah, my husband.

Jul 05, 2017 1:52 AM

I would leave out the hubby unless he was extremely supportive.

Jul 05, 2017 7:15 AM

Hi Everyone, I have fibro and I am going through a bad fibro flare right now. Is there anyone around that can talk to me? I live alone and dont have any friends at all and no family. Please message me if you want to chat. I cant do anything but stay in bed. :(

Jul 06, 2017 5:41 PM

Oh I so relate. I have been in a flare since Christmas. Inflammation markers are high. Never had that happen. It's more like rheumatoid arthritis.

Jul 06, 2017 5:46 PM

Are you being evaluated regularly? What are you doing for pain. The Lyrica is no longer working. Can't take NSAIDS as it causes IBSIBS flare. I have oxucodone 10 mgs which helps for a few hours. What does your med packet. Include for fibro?

Jul 25, 2017 10:10 PM

Lol 😅I needed that LoL it's true

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