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Fibro flares and the hospital.

Jun 11, 2017 12:41 PM

So I just got home from the ER. I was throwing up since 1 this morning and in an excruciating amount of pain in my whole entire body. From my toes to my head. I called a nurse hotline and they told me I should go to the ER so I did. They took blood, a CT scan, and everything came back fine. Which i mean thank god for that. I thought maybe it was the food I ate last night, but I mean they didn't say anything other then it was vomiting and nausea. They gave me nausea medicine and Fetanyl for the pain, but literally only my headache went away and I'm still barely able to walk because of how much my body hurts. I just started going to the gym because I keep reading how important it is to get muscles strong so that flares aren't so bad, but that it does get worse before it gets better. At this point I'm wondering if I just sent myself into a severe flare up because I was having tummy problems throughout the week already. I'm to the point that if this is how flares are going to be to where I'm so worried i have to go to the hospital, I guess what I'm wondering is how do you guys deal and basically accept, because right now accepting that I'm going to be doing this forever is really weighing hard on me. I've just cried all night and day because I had so much planned for life and now I'm just like defeated😭

Jun 11, 2017 4:08 PM

I think we've all been there. Exercise is the most difficult component of treatment for me to figure out, and I'll be honest, it's because it scares me. I can't tell when I've done too much. If I hurt from my workout, then I'm screwed for a couple of days. I get the same type of full body pain you're describing.

I have a great doctor who coached me through starting up an exercise routine. He suggested that I start with five minutes a day for the first week and slowly increase the time and intensity each week. At first, even five minutes was a challenge. Now I can walk for 45 minutes and do yard work and other physically demanding things throughout the day.

I think the best advice I can give you is to remember that this is a slow process. Your body is demanding that you give it the exact amount of rest, nutrition and exercise it needs - but no one knows what those quantities are. You have to figure it out for yourself, and that takes a lot of trial and error. You'll learn your trigger foods (no meat, soy, grapes or sugar for me! They cause major pain reactions). You'll learn how to pace yourself. You'll discover which meds and supplements work for you. You'll find ways of releasing stress so you don't trigger yourself.

Knowledge is power. Quite literally in the case of fibromyalgia. Once you know what your body needs, you'll have the power to avoid a lot of the pain. I still have flares, but it's not nearly what it once was. Hang in there. You can do it. You are not alone.

Jun 11, 2017 4:13 PM

Thank you so much FatiguedFighter this literally brought tears to my eyes. Thanks for the hope because I was definitely feeling hopeless.

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