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Fibro fog and pain

Oct 06, 2015 12:34 AM

Hi all,
I was diagnosed in Jan 15. I am finding ways to cope with my daily pain ( meditation, light exercise, medication etc) but I can't find anything to help with my fibro fog. It can be completely consuming. I feel like I am loosing my mind, walking through a thick fog. Can't remember anything, q

Oct 06, 2015 12:38 AM

Hi again...
do simple tasks, I forget words. It is very hard to communicate my thought and be involved outside my house

Oct 06, 2015 5:29 AM

Hi sorry to here that
Im also going through this
I go to do something get destracted and forgot what i was doing to begin with also effrevting my speech and hard to think at times. Found no help so far
I have mentioned this to my gp but they say its part of the condition so still looking for answers hope you find so help soon

Oct 06, 2015 7:26 AM

Lists. Lists for everything. It's the only way I get things done at work and at home.

Oct 06, 2015 8:19 AM

Yes very hard to remember daily tasks

Oct 06, 2015 10:50 AM

Fibro fog had a lot to do with losing my job. Things I should have known I would forget or can't get out what I'm trying to say and then get real anxious/depressed. Hope we can find out answers for this.

Oct 06, 2015 5:17 PM

The fog is the worst. I make many lists at work and home.

Oct 06, 2015 6:47 PM

I feel the same, sometimes the things that I say make no sense, I can't remember co-workers names or if objects= it's horrible, I truly feel stupid! I wish I could find something could help with my memory cuz I have no shirt term at all

Oct 06, 2015 7:14 PM

So glad that this issue with memory and communication issues were brought up. I really thought there must be something wrong with my brain! Well glad to learn that many of you have the same issues. Thanks for sharing

Oct 06, 2015 8:16 PM

Omg! I feel exactly the same way & it's making me crazy!

Oct 06, 2015 8:41 PM

Lots of lists and notes plus I have various timers set on my phone to help me remember things.

Oct 07, 2015 9:49 AM

Thanks for the support. I was feeling alone on this. It is so hard to explain to other people. Before I never forgot anything EVER! Now it is like I don't even know my own brain

Oct 07, 2015 10:21 AM

Someone mentioned doing puzzles in another thread. Crosswords, jigsaw, word search etc. I know this is recommended for people in the early stages of dementia. I think keeping your brain active and solving puzzles is very good. Not a cure I'm sure but it might help. I forget everything and as a child my family said my memory was amazing. I walk into a room and forget why I went on there, have a hard time remembering words it makes communicating with others and my doctors very difficult and leaves me feeling like a dork at times. I have several apps on my phone and use the calendar and reminders/alarms also to help me. I make a list prior to my doctors appointment with each issue I want to discuss in order of priority. It helped me with my first appointment with my new doctor. I wonder if we will ever get any answers regarding the brain fog. I've been fighting since 2007 when I was unofficially diagnosed with Fibro, then told Fibro did not exist, punished and threatened by doctors.each one has their own opinions on Fibro. Hopefully someday they can reach a consensus about how "real" Fibro is and we can get some answers. Blessings and hopes for light or no pain days ahead. ✌️❤️

Oct 07, 2015 11:28 AM

Same here, I set timers, and I can't remember what I used to, working is hard, I'm a medical coder, and have to meet a quota, they have no interest in why I can't, very hard

Oct 07, 2015 11:32 AM

That's awful LisaK, I'm so sorry to hear that. Some people lack compassion and for people who suffer from chronic pain and Fibro fog that's hard to deal with. Especially if your livelihood depends on it. Could you get a letter from your doctor? Are you an employee or a private contractor? I do hope you can get some relief and understanding. Blessings ✌️❤️

Oct 07, 2015 12:03 PM

I do understand were your coming from. I was a billing and check out medical receptionist. Office manager couldn't understand why I couldn't remember or do like I used too, she thought I just didn't care anymore....she was always watching me and would get on to me which made me nervous. I'm so glad I found this app. I thought I was really losing it.

Oct 07, 2015 7:32 PM

I work with public n I feel so stupid when in mid sentence I forget what I'm talkin bout, I forget my Co-workers names......no short term memory at all, I use to remember a lot now nothing! This has totally consume my mind= I pray the find something for it

Oct 07, 2015 7:38 PM

I locked my keys in my car and I busted little back window= I have tape over it and don't plan on repairing it cuz of how much I do forget! Its insane

Oct 07, 2015 7:41 PM

I now have blackboard contact stuck on my fridge. It's titled 'Mums remember to do list!' I find if it's written down right in front of me its easier to remember what I have to do. Also all my contacts have photos next to them so I remember faces and names.

Oct 07, 2015 9:07 PM

Momdukes78, What you and everyone else are describing is exactly what started happening to me in 2009 while working. I worked as a health info tech, medical records doing multiple and varying tasks, with and without computer. I began noticing I was forgetting how to do my job, and coding, and coworkers. Then in 2010 I went out for surgery, and I've not returned to work. I was officially dx with fibro in 2012, along with many more issues to follow.

Because of multiple episodes of getting lost while driving I've had a neuro-psychologist evaluation, who said I had dementia (53 years old). Then because of other symptoms MS was suspected. Last week Mayo clinic said they do not think I have MS or dementia, but they can't explain the memory issues. It has worsened in the last 7 years, but I started using multiple apps, to remind me of appointments, medicines, etc. I also play puzzle games, which I credit for doing better on Mayo's neuro-psychologist evaluation that ruled out dementia.

The fog lapses are very frustrating. I've found that explaining it to those who need to know has helped a lot too. I'm no longer embarrassed by the episodes, but rather try to laugh them off as "one of my moments." It keeps me from stressing about something I have no control over. Hopefully you can take suggestions from everyone to find a coping methods that's less stressful for you; and everyone else may also. 🙏🌼

Oct 12, 2015 7:59 PM

Today was not a good day. The pain and fog was so bad I was forced to leave work early. I couldn't function today and accomplished nothing. I even forgot the login for my computer and couldn't remember where I stored it. I couldn't focus on the reports I had to complete, in fact, I could barely read them. I couldn't even focus on the numerous lists I have floating around my office. Finally I gave up and left work early in tears.

Well, there's always tomorrow.

Oct 12, 2015 8:13 PM

Praying for a better tomorrow.

Oct 12, 2015 9:32 PM

Shiovahn, I'm sorry your day was so rough. Praying you'll get a peaceful night's sleep, restorative and refreshing sleep! (((Hugs)))... been there. 🙏🌼

Oct 13, 2015 3:49 AM

I feel the same way . I don't have much sleep with the pain . Do any one know what the doctor will do ?

Oct 13, 2015 4:36 AM

clarke1959, the doc will probably put you on antidepressants for the pain. Maybe anti-inflammatory tablets as well. It all depends on your doc. I've been on two, Lyrica and Cymbalta also an anti-inflammatory none of which have worked for my pain. Gentle exercise seems to help but it's slow going walking with the dog. Tramadol slow release tablets help a little as well.
Hope this helps you out a bit. If you find anything new please let us all know 😊

Oct 13, 2015 7:24 AM

Hi, the brain fog and not being able to concentrate is 110% hard on us. I am learning just to take it slowly but continue asking for help when am completely stuck.

Oct 14, 2015 10:33 PM

Today has been a good day for me. I would say out of a five day work week, I maybe have 2 decent memory days. The "fog" is unbearable sometimes and so embarrassing. Not only is it due to fibro itself, but the meds don't help either! I'm right there with you. Here are some things that have helped me:

Lists-Wunderlist App is great, and let's you customize it however you need. And it's free!
Reminders-set reminders for whatever you NEED to do, like pick up the dog from the groomer, the kids from school, whatever. My reminders are tied into either my Wunderlist or through the calendar app on my phone (Outlook). It has a distinct ringtone that is not startling but not soothing either.
Buddy-you need a confidant, friend, buddy, whatever you want to call them, to help keep you accountable. Make sure this is someone you can trust with your life and won't sell you out. If they care about you, they will understand and will help.
Tag Words-this isn't a real term, just what I call them. These are frequently used words that I keep typed on my Notes App on my phone. My recall issue is usually finding descriptors so I keep a list close by.
MD-talk to your MD about the Fog and ask them too for suggestions. My neurologist is wonderful and takes the time to sit and really listen to me, and allows me time to find my words. Oh-before going to an appointment, make notes of what you need to discuss so you have it handy.
Coffee-strangely enough, coffee really helps me to focus most likely because the caffeine is a stimulant 😀. I don't drink any carbonated drinks so the only caffeine I get is through my morning coffee.
Yoga-some people will argue, but I have better days when I can get myself up in the morning and do at least 15 minutes of "beginner" yoga. It's mainly stretching, balancing and centering your body and mind. Keeping both in balance really and truly helps.

This is a long list, but since being diagnosed in 2004, this is what I do. Some days are just bad days, and there's nothing you can do about it but ask those around you to be patient. I was a regular speaker and presenter in the healthcare industry, teaching and training classes of up to 500 people at a time. When the fog started rolling in (pardon the pun!), I had to find a new career. Now, I can surround myself with employees that I trust and will have my back on the days that I'm not all together. It just is what it is. Once I accepted that reality, the more at peace I am with so many things in my life.

Y'all, I'm sorry I have rambled on but hopefully there is something helpful in my diatribe! Blessings to you and everyone else here. I wish all of you a peaceful night's rest and a beautiful day tomorrow. ☺️

Oct 15, 2015 6:11 AM

Hi I'm new to the group although I've been using this app for over a year now. I was diagnosed with degenerated discs and spinal stenosis, which can make your body hurt like fibro. Not sure if you've tried Lexapro or not, they do give that to fibro patients. It is a mood stabilizer. It has helped me tremendously with some of my body aches, my mood and to be able to think more clearly. I hope you get relief soon.

Oct 15, 2015 8:05 AM

Hey everyone thanks again for the advice. I have been on unpaid sick leave for over 8 months and still not finding relief from my fibro fog or my pain. I am fighting with my insurance company and have not had any income for most of that time. I work in a busy institutional pharmacy, no desks or even a quite area to gather myself. 10 - 15 people in s big room with phones ringing, faxes, people talking, doorbells etc...you get the picture. I am doing relaxation tech and stretching but nothing helps 😞 every time I go to the Dr something else is wrong with me. Now I have fibro, depression,anxiety,diabetes, high blood pressure, high cholesterol, sleep apnea, PMDD that treatment is to put me in menapauze so I am also on HRT. My biggest problems are fibro pain and fog and my blood sugar. I see the fibro specialist next Monday and I am hopeful he may have some insight for dealing with all this. Thanks for listening, your well wishes and ideas. Hope you all have a pain free day

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