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fibro is ruining my life....

Feb 28, 2018 10:00 PM

my husband is frustrated and unsupportive aggatated and wont except my condition. I caint work. my quality of life has been all but depleted. I feel alone. unexcepted. and who will wanna be with someone like me wit my problems? obviously im good for nothing seeing how my own supposive loving husband is acting like its total termoil for him. he can easily move on an be active an have fun with someone else. I will be stuck wondering how i will support myself an who will wanna be with a gimp woman. my spirit is becoming brocken. an it feels like my life is on a downward spiral. I caint pretend im ok an go at anything like i use to. cause tha pain jus reminds me that im 44 and a problem to others and at a young age still. a problem even to even myself cause i caint make this stop. so depression is becoming my best friend.

Feb 28, 2018 10:14 PM

I jus wanna scream loud. jus empty it all out!! people say that its a struggle for loved ones to understand this. I say bullshit! thats a cop out. its ignorant an unexcuseable! jus cause they caint see it er feel it dont mean it aint there! loved ones dont get a free pass to say i caint support something i dont understand. well if thats tha case. hit google an educate yurself!!! its a chronic condition jus like heart disease! why is heart disease dually noted an understood an excepted an loved ones care for that person with tha heart disease but shun an turn out loved ones with fibro? it makes no sense! is it cause no test can see it??? an if so does that leave dought in tha minds of those we need to turn to for support? bullshit! they maybas well call us liars an munipulators an fakers! an then remove thierselves from us so that at least we can b mentally sound without critasism bien handed to us. qe have nuff to deal wit. the way i see it is if they believe an trust in things they caint see like tha air they breathe ( that caint be seen ) just felt. then why the heck caint they believe an except a thing like fibro. they caint feel it but we can. an they wanna go make our lives harder by questioning our pain. as if we are really jus making it up. as if we dont wanna enjoy our lives! dang people who question. I thought love was more than that. an i thought love comforted an supported. such a struggle. 🤢

Mar 02, 2018 4:32 AM

I feel the same, my partner left me with my 4 children to try and raise because he said he loved me so much he couldn't bear to see me in pain anymore, but was happy enough to leave me to struggle with my pain and raise the children alone. I feel like a lost cause to myself and my children and that I'm no good to even be looked at never mind one date just once in the rest of my life. All I can say is to be able to talk about it with people in similar boats to me gives me hope that as a community we can all help each other to try something that may work and change our lives even if it's to smile for 5 minutes that someone has given you the time of day xxxx

Mar 02, 2018 4:48 AM

I’m 12 and struggle to go to school daily and can’t be homeschooled
Trust me your not alone I felt the same for years
Do u know that there is someone out there who would love a women like you you may struggle like you do but ppl will except you for who you are

Hope you get well soon

Mar 05, 2018 6:36 PM

My dear all,

We really seem to be in this boat all together...I have been a real social person all my life and now I feel more alone than ever, because everyone is doing their life and me, I'm left behind. An of my partners have been able to cope with anything and the only guys that are interested are for you know what. I barely go outside anymore...and you know what I'm sick and tired for feeling sorry about myself!!!!

Fuck them all! We should stop caring about them and put us first. I already ditched everyone that didn't care about me and yes I'm more alone but I don't know about you girls, but I have no time or energy to spend in that people anymore.

We should design a future for ourselves, one where we are surrounded by caring people and one where we are useful, and I bet that starts by believing that we have the right for it.

Your husband, sorry to say that, is dumb. He should go to a therapist to teach him about love and empathy. And you dear are just one step away from accepting your illness to start understanding it and also little by little teach your children about it in a way they can understand. They will be your best allies. And concentrate in you, not what the rest of the people of our ages are doing. Our sicknesses might be invisible for everyone, that's a burden but also a protection. We are special...because 90% of the global population most likely couldn't bear our pain for more than one hour. So we are strong too...so let's show ourselves that we can live without feeling sorry that we exist!!! We have so much right to live and be loved by anyone. From that beds, sofas, chairs, blankets of ours...be sure that you are not alone, be merciful with yourselves and keep your chin up.

Mar 05, 2018 7:27 PM

AissiaMovac. Perfect response.

Mar 07, 2018 9:16 AM

absolutely perfect. thank yu!

Mar 08, 2018 11:48 AM

Today is women's day, chins up! Let's love ourselves. Hugs!!!

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