Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Fibro pain and migraine

Jul 06, 2016 10:05 PM

I'm so tired of being in pain all the time with no one (not even my family) believing or supporting me. I am trying to work full time, drive 40 minutes one way to work, and I'm still expected to clean house, make dinner, do laundry etc. I'm exhausted. Laying in bed crying. Don't know if I can take much more.

Jul 07, 2016 4:13 PM

I'm so sorry to hear you are suffering alone. That's simply terrible! I suffer every single day myself, thankfully I have a supportive family. I truly wish I could give you a hug, even though we've never met! Maybe there's a group in your area that can help. Don't give up! Remember you've survived 100% of your worst days so far!! Are you a Bible reader? If so you might find comfort in this verse: "God is greater than our hearts and knows all things"- 1 John 3:20. Hope this has helped you a little ❤️

Jul 07, 2016 8:14 PM

PamelaHarvey1966, I'm so sorry you are hurting and lacking support! You can count on the community for support, always. Do you have kids old enough to designate some chores to, like the laundry? I taught mine how to wash & folks at 12. Now they're doing the same with their kids. I'm going to share a link with you. Hugs & prayers it helps, and that you find the support you need here! 🙂💕🙏🌼


Jul 09, 2016 7:23 AM

I have Fibromyalgia and chronic pain from bad discs in low back, then I broke my back on top of that. I saw comment "stupid stupid stupid doctor". We must have the same 1. 😀😂😂😂
I'm tired of being in pain. Help????

Jul 09, 2016 8:05 PM

KScott, I'm so sorry to hear this. Trying to stay relaxed helps keep the muscles from tensing up on the nerves. Do you do relaxation? Deep breathing with nature sounds out soft music playing, focusing on your breathing, and as you exhale imagine a specific muscle group letting go (arm, leg, back, etc). Heat packs, warm showers, and gentle stretches to remain limber is good too, if you are able to. Hugs & prayers you can get some relief started soon! 🙂💕🙏🌼

Jul 09, 2016 8:06 PM

I've been doing all that and more. Nothing helps much anymore. Thanks friend

Jul 09, 2016 8:14 PM

Have you seen a pain specialist, or gotten 2-3 opinions? I've gone for second opinions a lot, and thankfully so. I'm having surgery on my neck in August by a third opinion doc, no 4th opinion, because all the others agreed I need surgery...but they won't do it due to the risks. There's a high risk for permanent damage or paralyzing with and without the surgery. And it's possible the surgery will relieve pain and multiple other symptoms going on in my GI tract & bladder. If a doctor isn't helping them find someone who will.

Jul 09, 2016 8:17 PM

My Dr isn't much help. I broke my back and all other pain management treatments stopped. I'm going for pool therapy hopefully soon. Thanks for your reply. Good night.

Jul 09, 2016 8:52 PM

I've heard of good results with aquatic therapy. I'm so sorry you're hurting. Have you tried a Tens unit? They have some cheap disposable types at the drug stores that you could maybe try. And if it helps ask your doc for a rx one. I use to use those Thermacare patches when I worked, with the magnets in them. It felt so good. I'll be praying something will come along to help you!

Jul 09, 2016 9:16 PM

I have a TENS unit, been using it for many many years. I've had back injections, chiropractor, PT, OT, home exercises, all of it. Right now all I have is pain meds and they don't help as much anymore either.
God is in my 💖 and He keeps me going. I'm engaged to a wonderful Christian man too. He's great and helps me, supports me. I know God sent him to me.
God bless you Mam.

Jul 11, 2016 7:11 AM

Good bless you too KScott! Good gets me through every day, one at a time. (((Hugs))) & prayers! 🙂💕🙏🌼

Jul 11, 2016 9:05 AM

Hey Pam! I can't believe I randomly ran into you here on this site! This is Mandy. (Gladewater 2008). I've been going to chiropractor for 8 years and it seems it helps the migraines. Jason and I got married and have the two kiddos. He doesn't understand my pain either and although I say I hope he never has to endure it, one day in my shoes would be like a miracle. Facebook message me and I'll give you my number.

Sep 26, 2016 5:29 AM

Throwingvit out there have u tried FIR disability? It's not easy but curious.. I faught FIR 9 years with the board alone... This is first time I had a lawyer, I'm 7 months into another fight.. Glad I have representation now but it is still a fight u gotta Keep pushing them... I since March have been unable to work due to illness it's that bad.. It's hard but just keep swimming just keep swimming

Dec 16, 2016 6:32 AM

Pamela,. You pain is as real as diabetes or arthritis. We suffer with unbelievable pain, fatigue, confusion, migraines, irritable bowel. I also have trigeminal neuralgia and bipolar disorder. Here is how I cope.
Prayer and absorbing myself in other people's pain. My empathy for them seems to put my suffering in perspective. Your in my prayers

Feb 10, 2017 10:31 AM

Sounds like my life, best thing that ever happened to me was getting fired oct 21 2016. 13 years i worked there, the commute alone was tiring.i have no idea what is around the corner but i could not keep up anymore. I am more focused on my self than ever.

Feb 11, 2017 12:52 PM

I am so sorry to hear you are suffering period!!!!, never mind alone!!!!!!! The same thing happened to me, except I broke my back. No one came to help me and I had 2 children and 1 was handicapped due to a hit and run of a drunk driver when he was 3.
After 5 years I was told the break in my back never healed and I was severing my own spinal cord with the broken bones.
I had to have 12 Hours of spinal surgery and cut from a**hole to breakfast, for someone to call and ask if I needed anything or could they help me.
I get where you are coming from, just know there are people out there that will talk to you and talk to you in her that are going through the same as you.
My thoughts and prayers are with you

Feb 12, 2017 3:59 PM

So sorry for the miserable pain and the toll it's taking on your life. It sucks even more when you realize you don't have anyone else to depend on. While I have 19 descendants, only two care and they live out of state. In October of 2015, I underwent extensive right shoulder reconstruction. Three and a half months later, underwent total left knee replacement. While food was prepared and brought in, I live by myself and there was no one to help with day to day things.

It's was a difficult recovery, especially since my sarcoidosis went into a major flare up. Still no help with day to day and Medicare won't provide home health assistance in this state.

With numerous other chronic medical issues, now suffer from heart failure and pulmonary hypertension. Guess what? Others are dependent on me instead of offering real assistance. The thing is that when we go through issues like this, we tap into our character and sometimes discover a wonderful surprise. We are more resilient than we ever realized!!!!

My disabilities have caused me to look at life differently. It's not what happens that counts, it's how we deal with it. There are days where we are extremely resilient and others when we want to jump off the rooftop. It's all okay as long as we survive. Sorry this is so long, but give yourself time to make the adjustment to your recent diagnosis. Dig deep into your character and discover the real you!!!

As for me, have had to put off right knee total replacement because still in sarcoidosis flare up and the other shoulder is going bad. With all the metal I have, will have to call myself the bionic great grandmother.

Mar 18, 2017 11:58 PM

Hi I'm Donna. I totally understand where you are coming from. I have no support from my family either. My fibromialgia is getting worse and worse. I think if God doesn't heal me I will be in a wheelchair in 5 years. I hate that you and I have to go t
Through fybro pain with exhaustion every day and my family thinks I am a hypocndriac and all I need to do is walk it off and get a job. Gee thanks for the emotional support. They just don't get it. I am sorry 4 you.

Ready to start relieving your pain?

Join Community