Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Fibro pain West of Scotland

Aug 11, 2015 7:54 PM

Are there any other fellow pain catchers from West of Scotland? I'm having a nightmare of a time getting Rheumatology to actually see me again, they cancelled my GP's referral on the grounds of you have fibro and that's not what rheumatology treat. GP referred me again as three lots of bloods had some kind of high inflammation markers, family history of rheumatoid arthritis(on both sides) and on going excruciating hip pain.
I suppose I have doubts that enough elimination was done before just putting my pain down to fibro. I'm not seeing any pain specialists, I've just been left to deal with it as it's not really in anyone's remit... Just getting really frustrated as I'm using all my energy to work and really got no life and NHS think that's okay 👌

Aug 11, 2015 8:23 PM

rj210, I am in the U.S. and I just want to welcome you to the group. I am sorry you are having such a hard time getting appointments. It sounds as if with your blood results and RA on both sides of the family, you may not be dealing with Fibro at all. I can only imagine the frustration you feel in being told that you can't see a rheumatologist because they don't treat Fibro. Well, I would tell them you want to see them based on your RA blood results. Then, while you are there, you can ask anything you need and the doctor should be able to give you the answers or guidance that you need. You may also want to try to get an appointment with a neurologist. I hope you are able to see the doctor(s) that you need to see and get some much desired relief. Best of luck to you!!

Aug 11, 2015 9:25 PM

Rj210, welcome to the community! I live in the USA also. That's odd that your primary referred you but they refused to see you because of the fibro. When I first saw my rheumy doc I only had fibromyalgia, but I also kept having inflammation markers in my blood. I also kept hurting and suspected hypothyroidism, which I was diagnosed with this year. Now I also have Sjogrens disease (which was hinted at but not diagnosed until i got the oral rash and they biopsied it) and my rheumy doc keeps seeing me every 3-4 months. If that doc won't see you, ask your primary doc to refer you elsewhere or to write a letter to that doc explaining the reason you need to be seen. You'll be in my prayers, that you are seen soon and find the answers you need! 🙏🌼

Ready to start relieving your pain?

Join Community