I have a couple questions about fibromyalgia. As you may have seen from my other post I haven't truly been diagnosed with fibro but my primary doctor says that's something to keep in mind. So I wanted to talk to some of you that has been diagnosed and see if you all think I might have it too. So I wanted to share my symptoms, tests, and all that lovely stuff! Mirgraines, my biggest problem. I have pretty bad aches and pains usually in my neck shoulders and back. the very bottom of my back those two little bones above my butt ache so much sometimes I get lucky and they will pop which I know people say you shouldn't do but it helps. Ps sorry idk what they are called. Days that I'm feeling worse my elbows, knees, and ankles will hurt. Any time I am on my feet for a little bit I end up feeling like I've been ran over by a truck. Another symptom is nausea, not every day but I get nauseous pretty often. It's always random out of the blue. Also I get chest pains I don't have them too much but I'll get them from time to time. When u get one it will be a really sudden sharp pain almost like a stab, it makes it kind of hard to breathe then it just goes away. I've had that happen a few times where it has scared me pretty badly. I do have a heart problem and I've talked to my heart doctor about this. I told him it felt like the pain was in my heart but he said it sounds like it is in my chest and that it's nothing to worry about. Which I can't help sometimes when it feels like I've just gotten stabbed. I would also say that I have sleeping problems. I can never get a good nights sleep. I always wake and go back to sleep then this happens over and over again. Umm I'm trying to think something I've had or have going on with me that could be relevant, if I add something that's not relevant to this I apologize I'm just trying to see what you all think and if anyone has similar problems.. I was diagnosed with adhd when I was 7. I use to have a tic in my neck it wasn't really bad it was actually hardly noticeable but that eventually went away on its own. Another thing is my eyes. My vision changed dramatically! I use to be able to see for miles and now I can't read a sign 2 feet away from me. I never noticed this until someone said something to me but I blink a lot and if I pay attention to other people's eyes I realized how much I do! one day my grandmother (who is a nurse and is helping me through all this) told me something was wrong with my eyes then she figured out it was when I close my eyes my right eye closes slower than my left eye.
Now onto the fun doctor stuff! I have had a cat scan and mri of my head because of amount of mirgraines I have. They were both fine. I went to the chiropractor and when he took an X-ray he noticed a slight curve at the top of my spine up towards my neck. Then I had a mri of my neck because he thought maybe the problem was starting from there. Also fine. I have an tons of blood work of everything under the sun my doctor thought could be causing this. Everything turned out okay. It was kind of on the low side for b12 and iron but doc said it was fine and now I take vitamins for those 2. I've gone to 4 different neurologists, biofeedback, and the chiropractor. All of them were a waste of my time. All the neurologist did were put me on a new medicine and saw me every 6 months. The biofeedback was a joke I'm not sure if it was the lady I went to or what but I wasn't a fan. She was trying to tell me I could just think my pain away and take deep breaths and everything would be ok. The chiropractor was okay it never improved my migraines but it was nice to get my back and neck adjusted but it was pointless to go with 0 results.
My last thing!! I have this place on the top of my shoulder close to my neck and I'm assuming it is a cyst or something but I'm not positive. It is like the size of a little marble and it doesn't hurt unless I press on it. When I showed my grandmother she said she thought it could be a pressure point because some people with fibro have certain pressure points causing pain. Idk if it has anything to do with it but it's on the same side that my head always hurts when I get a mirgraine and that side of my neck hurts worse. Does any one else have something like that?
Please comment back and tell me your fibromyalgia symptoms and let me know if you have any questions or thoughts about mine! I wanted to add I'm only 19 so I can't say it's my age causing the pain. I should be living a healthy happy life!!!!!
Sorry for writing so much, but I hope you all can help!!! 😁