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Fibro suffer

Jul 15, 2016 5:42 PM

Hi there
I'm new on here. I have suffered with fibro since 2009 and it's only getting worst. I tried to keep working but my dr and family have force to give it up as it was just to much for me as I am a single mother too, and have to put my Daughter first. Is there anyone else suffering like me X

Jul 16, 2016 1:48 AM

I think we all have had a similar situation in one way or another. I've not been able to work in over a year so I do understand.

Jul 16, 2016 5:19 AM

Hello sweetie...⚘

😊 there is a whole bunch of good folks in ur boat... and none of us got the memo to bring the ****ing paddle 🤗🤗🤗 so welcome to this fine community 🐴 so nice to meet u x

Jul 16, 2016 7:46 AM

Hey, I'm in a similar position, except that I only have myself to take care of. It's awful to have to give up working, as well as having to explain to people why it is you don't have a job.

Jul 16, 2016 10:03 AM

It's nice to meet you too. Yes it's a lot of us out there . Which is why it's so surprising there is not more advancement in how to help us. But at least we have each other .
The only thing that is more frustrating then explaining why we can't work is explaining to the healthy how or why we hurt so much. I live with my parents who are of course older. So I have the same conversation evey morning. How are you? Where do u hurt and why are u hurting today. I know they care but it's so hard to have to be patient when ur in agony.

Jul 16, 2016 11:05 AM

Lots of us have those conversations with loved ones. Our diagnoses may not be fibro but they still all seem to have a common thread. The idea of repeating your reasons yet AGAIN is too much some days when the pain is bad, even when the person has the best of intentions.

Jul 16, 2016 7:20 PM

Hi guys
Thanks for your kind words it's nice to talk to people who are in the same situation, I do get very frustrated when people look at me and say you don't look ill or having to explain over and over why I limp or walk funny, even to my family who say they understand, my sister always has a go because my house isn't as clean as she wants and not up to her standards, my depression seems to get worst when I'm arguing with my family and friends, I wish fibro was more out there and people knew what it was, my stepdad try's to compare it to his arthritis but doesn't get it I always think people think I'm lying or making it sound worst than it is, my mum tells me don't worry you will get better soon no matter how many times I tell her I will never get better and I will probably get worst my 7 yr old seems to get it better than anyone and is a big help, I don't know if I said but I also have epilepsy since I was 9 always think I'm 38 yrs old what have I done to deserve this life

Jul 17, 2016 12:04 PM

FinroFighter78, I'd like to welcome you to our community family. There are many of us who suffer with chronic every day pain. I was also diagnosed with fibro but after several years, and many different doctors (neurologists, rheumatologists and orthopedists) I was diagnosed with RDS/CRPS, Degenerative Joint Disease, Degenerative Disc Disease, Lordosis, scoliosis, cervical spondalytic myelopathy, spinal spondylosis, Costochondritis, long thoracic nerve palsy among other things (anxiety/depression). I feel sorry that you couldn't keep working. I, too, tried to work as long as I could but finally has to listen to my body and stop. I'm not a single Mom (or a Mom at all for that matter) except to the four legged kind. It's very hard to get through some days but that's what we are all here for. We help one another, make one another laugh, hold each other up when we need to cry and celebrate every victory no matter how small. Wishing you the very best and hope you settle in and find the support and information you are looking for. Sending gentle {{Hugs}} and prayers for better days ahead. 💕🙏🏻🌻😊

Jul 18, 2016 5:03 PM

Welcome to our community family FibroFighter78! You are not alone. Though many are struggling to continue working out of sheer necessity, many of us have not been able to continue working. Fibro & so many other chronic illnesses have caused all our lives to change in one form or another.

I've had OA and spine issues since the 90's, DDD. I raised my girls then got my degree and went to work. I worked nearly 7 years after my kids were grown, & I loved my job. But during 2007-2008 I started having fibro symptoms, especially stiffness, all over general aches with tender spots, and fatigue. I took off work in 2010 to have unrelated surgery but it turned into 5 in 1 ops and additional complications & dx. Fibro was officially dx in 2012 after the surgery, and like AlwayZ, I've developed so many other diagnosed (dx) that I've been unable to return to work. Coming to the point of seeing "disability" as my life, no longer able to do what I use to, when, where, and how I wanted, that took me until October 2014 to accept. I'm still fighting for disability benefits, but I'm blessed that I don't have small children to care for, and my hubby has a good enough paying job that we haven't lost out home or vehicles, like some members here.

My advice to you would be take it one activity, one hour, one day at a time. Plan activity with rest periods in between, called pacing yourself. Rest when you need to, and do things in small increments when you're being active. Depression & anxiety are suffered by many of us. We are all here to support each other. Hugs love & prayers as you find your best way to cope with chronic illnesses! 🙂💕🙏🌸

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