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Fibro Sufferers, Is this a symptom?

Jan 19, 2015 1:07 AM

I have Fibromyalgia and have many of the symptoms described on this site. I am havine a symptom that could be related ot Fibromyalgia or it may have nothing to do with it. I wanted to see out there if anyone else is familiar with this symptom. I have lipomas and that is what my doctor told me they were. Lipomas are suppose to be movable and non cancerous. But on further inspection by me, The bumps or nodules are attached and on my muscles. They do not move at all. When I pick sometthing up or flex my muscle, the bump gets really big. You can actually feel it expanding. They start off as a tiny dot of a bump. Maybe the most the size of a freckle and slightly raised. Then when you flex your muscle or lift something that is heavy like weights, It starts to come out of your muscle like it was hiding the whole time. It expands to the size of a dime. There are probably 25 to 30 bumps on the one muscle. They are spreading to my lower arm and to my upper arm on the left. They are all over. The thing to is that they are very painful to touch and move my arm. Has this happened to anyone else with Fibromyalgia? Whatever anybody knows about this, I would really appreciaste anthing on it.

Jan 19, 2015 3:05 AM

I have lipomas myself. I had a huge cluster of them on my left flank and they were removed and I have a 15" scar. Then, not long after I started getting more on my right flank. They were removed and I got a bad staph infection and had 104.4 fever and the doctor had to open the incision. It became so bad that the infection ate a hole down to my pelvic bone. I have pain on both sides that does not go away. Lipomas can be either just under the skin and mobile or they can grow in or on muscles (sometimes but rarely on organs). I don't think there is a connection as doctors don't know why they happen. I have another new cluster of growing lipomas on my right ribcage. They are tender and I would love to just take a scalpel and get the biggest one out but I don't know how deep it is. I have seen video of what you describe on YouTube. I believe they call it Dercums Syndrome when you get them in quantity like that. You need to see a doctor and find out with either an MRI or CT Scan what's going on. I hope this was helpful. (By the way, I forgot to mention that I do have Fibromyalgia). Best of luck to you.

Jan 19, 2015 7:32 AM

I don't have them that I know of. I do have one place to the back right of my right knee that does as you described. But I was wondering if its something connected to ehler danlos, because I scar horribly inside & out.

Jan 19, 2015 9:35 AM

Update, I learned on further inspection, that not only do they little bumps grow big on my muscle when I lift something or flex my arm. But the ones that hurt are the the ones that in the process of retracting in the muscle are much much slower that the other ones. They also have hard very hard bumps at the very end twards you. I sent a message to my doctor. I hope that they don't just dont blow it off like the other doctors do. They always say it is Fibromyalgia. Don't get me wrong, I believe I have Fibromyalgia, but I feel doctors use that diagnosis too much because they are to lazy to look any further for any other problems. But when I read the symptoms from a reputable website, I was like that is so me. But when I first started searching, they gave me that diagnisis withot even searching when I had a positive ANA and a history of high sed rates. So there was reason to look further. Well, enought about me. I will see what happens No need to worry until the time comes. I hope you all have as a good a day as you possibly can. I know it is rough. But try to find something to make you smile. Best wishes.

Jan 19, 2015 11:32 AM

I have small ones the size of peas all over my thighs. Hurt to touch but you cant see them. On my lower back hip area they are the size of quarters and the move when massaged. Very painful on my hips when touched. I will be talking to my doctor about them in a couple of weeks. Btw i have fibromyalgia too.

Jan 19, 2015 11:45 AM

I hear that our fascia is affected. When I do get a massage she says I feel grainular. Have you tried a massage to work that out with somone that is familiar with your symptoms? If I had the money I would go every week!

Jan 19, 2015 12:21 PM

What's very interesting about what you said, Jesswoo, about feeling granular. Lipomas that are soft and smooshy sometimes "crunch" when you press them. They are made up of fat cells called in the medical field, "Adipose Tissue". The ones I have close to the surface will crunch or crackle when I press on them. You can see videos of what they look like on YouTube. The ones on my ribcage are getting very tender but I really don't want to risk another infection by having a other surgery. I hope all of you find some resolution. I'm now wondering if there is a connection between the Fibromyalgia and Lipomas. I'll have to do some further checking.

Jan 19, 2015 5:08 PM

Let us know what you find, Always. :)

Jan 19, 2015 8:19 PM

Believe me, Jesswoo, whatever I find out, I will certainly share with the group. I find it very interesting and baffling that we all have fibromyalgia AND lipomas. Documents I have read claim that some can form from trauma and several of us have had surgery (some multiple). I'm going to have to do some reading and also contact the doctor that removed the clusters of lipomas I had before. Information and knowledge are power, as they say.... I'll be sure to let y'all know what I find out.

Jan 20, 2015 11:38 AM

Good afternoon. I'm new here and have been reading up on some of this information, I too been diagnosed with fibromyalgia. I noticed i have dime size knots pretty much all over and was wondering how and where they came from. But my masseuse said they were stress knots. Should I be concerned? And is this just a part of having fibro.

Jan 20, 2015 5:15 PM

Good evening. I'm new to fibro been diagnosed in September 2013 I've been on all kinds of medication from trimadole, codine, gabapentine, Lyrica, stilroide, hydrocodone, flex a rile, I did physical therapy 2 times aqupution, knee surgery . My pain start from my spine and travel through my whole body especially in my buttocks and I have nerves damage in my L4 left and right oh my God my doctors said it never goes away I'm 48 and I've been out of work since 2013 I'm missing my life

Jan 20, 2015 10:54 PM

Hi Shady. I've been off from work since 2012 and also really miss the feeling of being productive, and a contributing member of the work community. I'm 52 and never thought I'd be in this situation. I'm trying to come to some level of acceptance to chronic pain, fibro etc... And some days I'm ok but then others I get really frustrated, mad, disappointed with myself and then some. It ain't easy!

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