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fibro sufferers

Mar 19, 2015 6:38 AM

Not fibro, they don't know what i have but I'm in 9/10 pain daily and a lot more along with that.
I'm in the uk

Mar 20, 2015 6:54 AM

I'm in the UK Panther. I have fibro and osteoarthritis. Hope you and Reece are not in too much pain today. The sunshine here in Somerset is taking my mind off my pain today. X

Mar 20, 2015 7:42 AM

I'm in a lovely (sarcasm) 9 today, as usual. Struggling to get my Dr to send me to the pain management I want and just so tired of this. .. I need to get tested for CFS/ME

Mar 20, 2015 8:43 AM

Panther lady I live in What everyone calls Deep East Texas. I'm approximately 120 north of Houston.

Mar 21, 2015 6:04 AM

Pantherlady, I'm from Georgia, USA. But I have fibro and I'm in a flare with the rain.

Mar 21, 2015 10:35 AM

Pantherlady,I have Fibro,osteoarthritis, Syringomyelia .

Apr 20, 2015 6:10 AM

I live in Florida, but lived in the UK for 1 1/2 years prior to moving here. I can't imagine the weather being any good for your fibro. I think the sunshine here in Florida helps quite a bit. I think I've had fibro for several years, but had a huge glare up shortly after finishing chemo for breast cancer (was diagnosed and treated in Cambridge). I now have a team of rheumatologist and pain management specialist. Nothing has helped the fibro. Oxycodone twice a day keeps the pain in a manageable state. I'm hoping to add a neurologist and physical therapist to my team. I also suffer from severe depression and anxiety which is not helping the fibro.

Apr 20, 2015 9:37 AM

BonBon I am so you had to go thru all that Chemo. With the Fibro have you tried hot packs made with plain white rice.I make mine with two wash cloths sew three sides together pour the rice sew up and put in microwave for 3 min. Some of the community put them in the freezer also for cold packs. I can't handel the cold packs makes me hurt worse. I also use ointments, and rubs,tigers balm is good or Walmart brand roll on it works pretty good for me.

Apr 20, 2015 7:46 PM

My. Dr initially thought I might have a low threshold for pain (fibromyalgia). Then she thought I must not understand the 1-10 scale. I explained it like this, I'm a mother. At 3, it's like I felt at 3cm dilated. A little panicky, pacing distracted, in pain, but still thinking and mobile. At 5, I'm in bed, watching tv, computer bingo, but I'm only up for bathroom breaks and 3 20 min. work sessions easy, timed & exhausting. At 7. I'm only up to bathroom breaks. I'm whipped. At 7cm dial aged, I was beyond hurting. I felt like I was under attack. I wasn't 100% rational. And, the nurse started to teach me to push. I never chart 10. That's when a baby is delivered. There isn't anything easy about it..I wasn't thinking, planning, communicating. I was physically trying to crawl away from the pain.

She never questioned me again about pain level reporting. When I chart pain, I try to remember what it was like to feel good. I search for any part of my body that feels good then, I identify the places that really hurt the worst and ask where it would be on my birth experience. Everything else is easy,from there.

Apr 20, 2015 8:01 PM

Mausse, that's a great way of describing it! I've had 2 babies and you nailed it! I rarely get to a 10 but that would be a trip to the ER for me. And there's always minimal pain present that I function around.

Apr 21, 2015 11:05 AM

WOW... I never gave it thought that way. I have never had children but had menstrual cramps that used to land me in bed, vomiting and doubled over with pain so bad, I would sweat, be incoherent and pass out. I remember my mother telling me that if I had a kid, that would stop because it did for her Well, I never wanted kids because I didn't think I would be a good mother. That aside, I totally understand from what I went through, what you are talking about. I am currently menopausal and after 6 months of no cycles, I got one on Friday with a vengeance. Now, usually, I am done in 4 days but with this one, I am JUST starting to slow down after 5 days. I'm a bit nervous because I never bleed like this and the cramps are bad. I'm sorry for any gentlemen out there if this is TMI... LOL!!!
At any rate, perhaps this will be the last hoorah (I can only hope, right??) and then there will not be any more. I am very drained, weak and tired and on top of that my pain levels and anxiety levels are really up... I have also been very weepy the last couple of days. Thanks for a new way of explaining the pain scale, any woman who had kids would definitely get it. All the best and be well.

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