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Fibromialgia

Aug 17, 2016 11:41 AM

Hola! I'm new here and new to share my health issues. I've been sick since i was 12, now i'm 43. First i deal with rheumatoid arthritis, located mostly in my knees (i had 12 surgeries on both of them). Now for a little more of a year i started having all kind of crazy simptoms that end up beeing fibromialgy! And really what a shock to learn that each day is worst thant the one before when you thought you couldn't bear to endure the level of pain and the suffering of your family seeing you suffer. But there are good things, like i hope this place is.

Aug 18, 2016 6:35 AM

HOLA Mish 🌷
& welcome to the family. 😊Thank u for ur post! πŸ€—there are plenty of threads🐫 to read up on...🌻 if it applies to u... πŸͺor just a few fun ones 🐴thrown into the mix... (cos im in pain...😢 im not dead!)...😁to make u giggle... so watch out... πŸ“–i have a "naughty book"... 🌷and u may become a tena lady 🐌by the end of the week!πŸ˜‰

Aug 18, 2016 6:56 AM

πŸ˜‚πŸ˜‚πŸ˜‚thanks!!!! What a great welcome. If you teaxh me to post pictures, i'll introduce myself

Aug 18, 2016 6:58 AM

I love your smileβ—πŸ˜ŠπŸ˜ŠπŸ˜‰πŸ˜‰

Aug 18, 2016 10:12 AM

Ty so much... πŸ€—
In the text box where u post ...there is a paperclip icon to attatch pix 🐴 we love smiley faces in our community 😚

Aug 18, 2016 7:34 PM

Welcome to our community family Mamish! You'll find lots of support here! We laugh, was cry, we vent, we pray or provide positive thoughts & energy, and we never judge each other. We all get enough of that outside the community family.

I'm 54 with fibro and a long list of other chronic pain causing conditions. I'm recuperating from neck surgery do it's taking me days to catch up with all the posts. Even on bad days I try to find something to be positive about our laugh at. Lulabel is very helpful with the laughter. And her smile is what they call an "infectious" smile, it rubs off on others. Hugs love and prayers as you settle in and find new ways to cope! πŸ™‚πŸ’•πŸ™πŸŒΈ

Aug 18, 2016 7:54 PM

Hi! I'm Siren. I have also been recently diagnosed with Fibromyalgia. So far everyone here has been very friendly to me, and welcoming.

So, welcome! :)

Aug 18, 2016 8:52 PM

Thank you so much flappylady and siren!!!!!!!!! It really is a relive to know that i'm not alone. I'm blessed by the husband and family that i have, but pain is so subjective, plus the heat/cold waves, the fybro fog, not been able to wear anything because of the burning pain, and so on so on....... they try but only someone that has been there can truly understand.
Thanks for beeing there!! I'm also here for all you😊😊

Aug 18, 2016 8:56 PM

I can't find the clip Lulabel, on my box nothing shows😟

Aug 19, 2016 7:13 AM

You can only attach pictures if you are using the Pain Companion App, if you're using the Catch My Pain app it won't work. You can use the same log in details for both apps 😊

Aug 19, 2016 7:13 AM

R u using the pain companion app? Im not sure that the catch my pain one has it... its free and on android and iphone too! @Daniel is that correct? He will know our Daniel πŸ€—

Aug 19, 2016 7:14 AM

Hehe SNAP! πŸ˜™ JAH πŸ€—

Aug 19, 2016 7:22 AM

Welcome Mamish lovely unusual name. This is me. First pic here. Hope to get to know you all better xx

Aug 19, 2016 7:39 AM

Hello!! You mentioned the "not being able to wear anything" and it reminded me of a recent experience. I was having a high pain day and my clothes were driving me crazy! My husband got home and found me in a bad way, the house a mess and all four kids cranky. He turned straight around and left! I was not impressed. Ten minutes later he's home with pizzas and breadsticks and soda. He settles the littles in with a new movie, helps me upstairs to our room and locks the door. Then he says, with waggling eyebrows, "Let's make the most of this flare. I'm thinking this calls for naked movie night!" I laughed so hard! And what a wonderful naked movie night it was!!

*As a side note, this success was due in large part to the 1500 thread count sheets I have. They are amazing and well worth it for anyone with sensitive skin. I ordered them off Amazon and they were less than $30 for a California King size set. Even on my worst days these sheets never feel scratchy.

Welcome!

Aug 21, 2016 10:05 PM

Hi mysticmum!! I wish i could not only take, but look this great on pictures!!! Love how confident and beautiful you areπŸ˜‰πŸ˜‰πŸ˜‰πŸ˜‰

Aug 21, 2016 10:10 PM

Fatiguedfighter, how lucky you are to have such a loving and supporting husband! I win the lottery too with mine, thank God!!!
I too have been changing my sheets,pillows and pjs for softer ones. Anything than can help get throught a bad or even a good day, means the world

Aug 21, 2016 10:11 PM

*sorry for my english. I read all the time in english, but never write or talk it, so don't be shy to correct me, please!!!!

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