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Fibromyalgia

Aug 27, 2014 2:29 PM

hi have not been diagnosed with this condition but suffer from a lot of the symtoms since an electric shock almost 4years ago, does anyone suffer from intense internal burning in their problem areas I would be grateful for any feedback.

Aug 27, 2014 3:00 PM

horrible nerve pain in my shoulder blades. trying Lyrica

Aug 27, 2014 4:43 PM

good luck hope it makes a difference for you

Aug 29, 2014 3:51 AM

hi I have fibromyalgia and Lupus.. my fibro is getting worst -.- nerves pain, burning, cold and hot at the same time.. and it hurts everywhere .. I can't listen to music/ noisy voice bc I will get headache or it will be getting worse.. and I can't even see the light such as car bc it hurts and burning. left Side of my body (head to toe) is really paainnfulll. *list continue* sorry for my english ^^v oh I ate lyrica too.. so good luckkkk

Aug 29, 2014 7:21 PM

I often feeling as though someone has peeled the skin off of my shoulder and stomach (my pain areas) and it burns like crazy. I've had fibromyalgia for over 6 years now, and got diagnosed with it in June this year.

Aug 30, 2014 8:35 AM

sorry to hear that do you have this burning every day or is it triggered by anything

Aug 30, 2014 9:33 AM

Personally, I have it every day, just to different intensities. I'm never not in pain, it's a constant for me.

Aug 30, 2014 9:58 AM

like yourself I'm never without pain, the burning is not a daily occurance for me, but happens more often than not, when it does happen my whole body is affected which is most distressing and goes on for hours


Aug 30, 2014 5:38 PM

That sounds horrible. My pain all started from my stomach, and apparently the shoulder and back pain is due to 'pain smudging' as my body wants me to hunch to protect my stomach. My occupational therapist explained that to me. I know it doesn't fix anything, but it does make you feel better to at least understand your pain more, you know?

Aug 30, 2014 5:38 PM

That sounds horrible. My pain all started from my stomach, and apparently the shoulder and back pain is due to 'pain smudging' as my body wants me to hunch to protect my stomach. My occupational therapist explained that to me. I know it doesn't fix anything, but it does make you feel better to at least understand your pain more, you know?

Aug 31, 2014 5:51 AM

Jung,
I know this is HIGHLY unusual but I wanted to know if we could correspond privately? I am not a psycho or anything like that it's just my mother has Lupus and Fibro and I was wondering if we could talk and I can ask you some questions that might help me guide me and my mom to the right dr and the right course of some kind of treatment. for starters my mom also died on December 9th from an abscessed colon and she is still sick and with the Fibro she is still really bad. I myself have had Fibro for almost 10 years. I had 2 near fatal car accidents that destroyed all the vertebrae in my spine damage my brain stem my entire central nervous system and the list goes on. I am asking if we can talk privately via email? my name is obviously Rich. my email is rodierno76@cfl.rr.com. I hope to hear from you and I wish everyone a safe and a somewhat comfortable Labor Day weekend! 😀 I hope to hear from you!!!

Sep 03, 2014 7:25 PM

I couldn't take Lyrica due to rare reactions to it. Doctors gave me Neurontin (Gabapentin). It has helped me from the maddness of the nerve pain

Sep 05, 2014 3:24 PM

hi, i was diagnosed with fibro yesterday :( i also have small fibre neuropathy which makes my skin painful to touch, it feels burnt

Sep 06, 2014 4:45 PM

I'm sorry. I don't wish fibro on anyone. I'm on my couch now on a heating pad, full of meds and still in pain!!! I have two braces on my wrist to help with numbness. I have a muscle spasm that feels like something with sharp teeth is knawing at me. I know though or hope this too shall pass. You have to keep your head up. It's hard but being down doesn't help. Take one day at a time so important!!

Sep 08, 2014 12:07 AM

I am 39 years old. I have been diagnosed with fibro since 2007. I also have OA (including In my spine), degenerative disc disease etc. Etc. Etc...I have gotten to the point of not knowing where one pain ends & another begins. I do know that Lyrica used in conjunction with Cymbalta, Celebrex & Celexa was a great "Cocktail" for me. But now with business men/women running our insurance companies getting it. Not to mention pain management is under so much scrutiny that even when you learn what works for you & your body,if you ask for it you are 'Pill Seeking' or just an addict looking for a fix.
I'm sorry if this sounds discouraging to a lot of you, But it's what i go through daily. Learn anything &everything you can about what is happening with your body & be prepped to fight for it. I've been called a hypochondriac, junkie, addict, drama queen, internet doctor...(Those in the medical field do not like when you tell them you did your research & know what you are talking about. Be ready too back it all up with legitimate sources. And most of all...find a positive support system. First & foremost! Best of luck to you all!

Sep 17, 2014 12:22 AM

Hi everyone:) I'm sympathize with you all. Mine started almost 15 year ago but was diagnosed about 7 years now. It sucks. My skin as well hurts so bad most of the time and my husband or kids can't even touch me to give a simple hug. I too have that k naming feeling with spasms and feel like ya just want to pull your arms off and times because the pain is so bad. I have finally gotten with and good doctor that didn't make me feel like it was in my head. And was and table to work up until 2 years ago. It's a struggle but don't give up. I suffer from chronic migraines almost weekly with the last one lasting 3 weeks before the cycle broke. Have been thru painful botox injections (total of 31 in my head and then had severe reaction , so please do lots of research if and doc says they want to try that) lyrica helped me a little with the sensitivity but then stopped working. I think the only relief I get is many night just sitting in a hot shower until it runs cold and then it lasts only a short time. Has anyone found anything else that helps. Best wishes for everyone. Hang in there and just take 1 day at a time.

Sep 17, 2014 1:53 AM

hi, for my cymbalta works.

Sep 17, 2014 10:49 PM

supernal- I know how you feel. I have super sensitive skin and find it near impossible for anyone to touch me. my daughter hugged me last night and I thought I was going to pass out with the pain. I did have a muscle spasm which I'm still struggling with. I have these fairly often. they're horrible and I wouldn't wish them on anyone. I have found over the last six months that loud noises affect me to. my smoke alarm went off three weeks ago and I collapsed with the pain, if the gardener starts the lawn mower I have to close doors and windows to reduce the noise as the noise from this has me curling up in pain and just not knowing what to do with myself. does anyone else get this problem and if so how do they deal with it. I have suffered with back problems for 25 years. I have 2 slipped disc in my neck and a bulge and tear in a lower back disc, and also suffer from severe muscle spasms, I have all over nerve plain and frequent migraines. I was diagnosed with fibro myalgia and raynards syndrome last month.

Sep 18, 2014 9:43 AM

hi all! I was diagnosed in 2010 but looking back have probably had this since I was around 11. at one point my entire right leg was completly numb for over 18 month and no one could explaine why! my family recently paid for a private appointment because my spine started to bend in February and people (specialists) were telling me that I was just not handle ing my pain very well! as you all know if you have fibro we all Handel are pain really well no matter what we are not able to do!! I had to say that "If having Fibromyalgia means I will never have anything else wrong with me then fantastic" to which he replied "of cause not" "My Point Exactly!" I have now been diagnosed with degenerative disks, OA in hips and Hypalgisia! after 8 months my spine looks like a question mark and I can't leave my house! I have tried lyrica, ametriptaline, gabapentin and none of them worked for me they just mad me fat!!!! I have just been give a new one called Duloxetine so fingers crossed!!

Sep 18, 2014 8:08 PM

have any of you ever heard of a center that threats fibromyalgia in a manner as a rehab clinic? is there such a thing? i quitted my job and will be free since december and i am looking for a place where i might put all my efforts in recovering the most from ten constants pains and lack of sleep, i know there is no cure for this condition, but at least something to enhance my situation, i was diagnose in 2012, but no medication has helped not even remotely. i will appreciate any suggestions of centers you might have heard of! thanks in advance!

Sep 19, 2014 6:53 AM

I do know that there is a fantastic pain management course that changed my life! it's in liverpool it's at the Walton neuro centre! they are amazing and it's being run by people with cronic pain! and also people who really understand pain!

Sep 20, 2014 7:14 AM

Hello there everyone, I have had vicious Fibromyalgia for years now so know exactly how you all feel.I live in SCOTLAND so cold winters can push a person to the brink when it's flare up after flare up, due to cold and wet. I went through all the usual channels re chronic pain, from Psychologists to Pain Associations. I then throught my GP was sent to the Pain Clinic at my local hospital where I was examined etc then offered treatment using Lidnociane. I have now been on Lidnocaine infusions which don't kill the pain but does seem to me' comfort the pain that cripples me. I get around 4/5 weeks of less pain which to me feels like no pain. Lidnocaine is what dentists use to freeze ones mouth fir tooth extraction or fillings. It's administered through an infusion at hospital which takes about eight hours to administer. I now know that there's Lidnocaine patches available out there now, either on prescription or over the counter. The patches are no use to me as I would need to cover my body with them, they seemingly are applied for 12 hours on the skin then 12 hours without. Please read up on Lidnocaine for pain or ask your GP about it wherever you are in the globe, I does work for me, but to for all. A few weeks of less pain is like a few weeks without pain, I hope my input helps someone out there. John

Sep 20, 2014 7:17 AM

Due to Lidnocaine helping lots of chronic pain sufferers over here, I now attend hospital for my infusions every 7/8 weeks, when I first received my infusions it was every 4/5 weeks. Looking at that statistic alone Lidnocaine seems to make a difference to many many folks here in SCOTLAND. By no means a cure but a help.

Sep 20, 2014 10:53 AM

thanks fir the reference Rufusboofus! i am going to check said center, perhaps it might change my life too! hope you all visiting this comunity have a great day today, or at least a tolerable one pain wise!

Sep 24, 2014 7:54 AM

there's a specialist chronic pain hospital clinic in Bath, which seems to get good reports from pain sufferers.

Sep 24, 2014 11:08 AM

I have had fibromyalgia for probably 9 years. Recently my pain went through the roof. I was diagnosed last month and they started me on 600 MG gabapentin once a day. So far still in pain and plan on returning to doctor. My main pain is back of head, neck, shoulders and spine that feel like someone is sticking a hot poker in joint or like they will explode with secondary in elbows, wrists, hands, knees, ankles and toes that feel the same as others but to lesser degree. And the constant popping..i feel like i spend half the day wanting my painful joints to pop and the other half in pain because they did. I am so sensitive in can't use heat or ice for pain in makes it worse. At times my husband and son can't touch me at all. My skin hurts and feels like I have bugs on me. The constant headache is terrible and gives me a stomach ache it is so bad. When I do sleep I wake up in pain either moaning or crying. You are not alone in pain I am learning we all just have it a little different with a lot of similarities.

Sep 29, 2014 5:36 AM

anyone woken by body shaking and pain?

Sep 29, 2014 11:46 AM

I take Gabapentin 3x a day at 500mg. You are on a really low dose. It helped me greatly with nerve pain. It does have side effects though. I choose the side effects over the pain

Sep 29, 2014 12:32 PM

Scarboroughk1 I have woke twitching and throwing myself around in pain so bad my husband thought I was having a seizure. I explained to him it was uncontrollable extreme pain like my body kept moving trying to find a position that didn't hurt. Afterward it would leave me completely drained. Not sure if that is similar to what you are experiencing.

Sep 30, 2014 10:20 PM

my hips have been awful just a real deep pain hopefully it will subside I am finally seeing my rheumy tomorrow, he I'm sure will want to shoot me up with prednisone. I have noise sensitivity issues and what helps me somewhat are noise cancellation headphones. physical therapy sometimes helps.

Oct 01, 2014 4:19 AM

er65 Clearly it's 5:00 a.m. and I don't have to get up til 7, love fibro. any ways does the prednisone help? I've heard that fibro isn't an inflammatory problem, so prednisone doesn't help. I can't do prednisone I could kill someone it makes me so irritable. I'm not normally like that either lol

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