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Fibromyalgia

Sep 21, 2019 7:42 PM

I Dont see Any posts from fellow fibroers...
I have several chronic Pain conditions inc. Fibro and was wondering if RFA has worked on anyone else?

Sep 22, 2019 5:43 AM

Hi Pamela I’m getting the RFA eventually soon after therapy o September 24 . I’ll let you know how it goes when I get mine done βœ….
Im gave it done fir my Back L4 and L5. Left and right side first right .
I’m really nervous about but slowly getting hurt answers about it . Ty to Animal Lover )))))) Hug to you all ShoreπŸ¦‹πŸŒˆβ€οΈπŸ€—πŸ€—

Sep 22, 2019 9:59 AM

Welcome to the community PamelaJax! I'm sorry you are dealing with chronic pain conditions with the rest of us. I've suffered from fibromyalgia since about 2007-2008, along with Sjogrens, multiple autoimmune issues, & other chronic pain issues, some for over 25 years (I'm 58 now). I've been disabled since having a major abdominal surgery that involved multiple organs in 2010, which I'm convinced the inflammation triggered all my AI issues. My early year's chronic pain issues have to do with my spine & major joints; the rest have hit me since I got fibro. I've never had RFA but many have, and had success with it for spinal issues. I may have misunderstood, but were you asking if the RFA helps with fibro?

In regards to treating my fibro, I was first put on Cymbalta but it caused me to spiral into severe depression with suicidal wishes (ideation the doc called it) & it also increased my overall pain intensely. Then I went on gabapentin daily & tramadol for flares or breakthrough pain. Then I was dx with sjogrens, which causes joint pain along wth the typical dryness issues. Plaquenil was prescribed & it reduced a lot of pain, but I get flare up of sjogrens pain that begins with burning tiny bumps in my mouth & joint pain increases, then my fibro flares. Recently I was dx with CTD that is the cause of tendon injuries. My rheumy doc told me to start every day with gentle slow stretches & a warm shower, to help loosen my muscles & joints due to the fibro & sjogrens stiffness, & OA. She also told me to move around & stretch every 30-60 minutes. She said, "the longer you don't move the stiffer you will get." Her advice has been helpful for me. Following the suggestions of others on this site & outside the app & reading information, I have changed my eating to less sweets & more healthy eating. Also place your activities with rest periods. Others may have more suggestions to help you. Hugs love & prayers you have a good week ahead!πŸ™‚πŸ’žπŸ™πŸŒ»

Sep 22, 2019 11:47 AM

I had the nerves burned in my lower back a year ago. It really helped. But nerves grow back. I'm going to have it done again this Wed. I'm going to have shots in my neck to see if having the nerves burned will help.

Oct 03, 2019 10:17 AM

Thanks everyone!!! I have my cervical RFA scheduled for next week and nervous for some reason my neck area is so much more sensitive then my lumbar I thought the nerve blocks were just horrible in neck (the procedure itself)

Oct 03, 2019 2:31 PM

Hi Pamela I’m getting my RFA in my right sudelower back next Wednesday . I’m also getting iv sedation. I’ll let you know how it goes it’s Wednesday in the morning..8:30. L4 and L5 ..
Hug gently to all hug Shore πŸŒˆπŸŒˆπŸ™πŸ€—β€οΈβ€οΈ

Dec 06, 2019 2:55 PM

Hi well it didn’t go well at all . So I went to my dr this morning ,to see if I had fibromyalgia, she said possibly among other things and my arthritis in my lower back . But no more shots in my back didn’t help..
Ty for asking though I am )))) Hiw are you ?
I’m going to be take medication for it and other things to help so I’ll let you know how it all works out πŸ’ͺ ok )))) Happy Holiday πŸŒˆπŸŒˆπŸ™πŸ€—πŸ€—β€οΈhi time everyone hug gently Shore

Dec 07, 2019 3:10 AM

Diagnosed w FM in '94. Getting worse. I'm 59. Lidocaine infusions used to help, now only last a few hours. Nerve block injections unto neck x 5yrs. Used to help. No more. Last one hit a nerve, huge "electric shock", triggered severe flare up, extreme pain, suicidal thoughts, still 2 weeks later. Nothing brought relief until I took Maxalt 10 mg. From 10 to a 5. Staying at a 5-6.
Next, want to try Ablation in Jan. 2020. Maxalt unsafe to take every day. Rx THC/CBD 2.5 mg (through a Cannabis Clinic) helps for a few hrs, wears off suddenly, back to maintenance misery. Expensive. On very low income, using grocery money to pay for it. Also RLS is severe and constant, not just at night. Trying Gabapentin 50 mg for that. Too soon to know yet.

Dec 07, 2019 9:32 AM

Hopeinhim, I'm sorry to hear what you've gone through. I hope the gabapentin will at least curb the neuropathy back to a controllable level for you. Maybe the ablation will be successful for you. Hugs love & prayers!πŸ™‚β€πŸ™πŸŒΌ

Dec 07, 2019 9:37 AM

Thanks FlappysLady81. Am unable to text much, increases pain so have to use economy of words.

Dec 21, 2019 2:44 PM

Hopeinhim, when you see your keyboard, do you see a microphone icon anywhere on it? If so you can touch the microphone and talk-to-text.

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