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Fibromyalgia and chronic fatigue

Sep 04, 2014 8:07 AM

Was diagnosed 13 yrs ago recently the pain fatigue and exhaustion have gotten way worse.

Sep 04, 2014 8:10 AM

I have a lot of chronic pain that covers a significant amount of my body. The pain started in my low back, back of the left leg (sciatica) but now its in so many locations that I think there's something else going on with my body. How did they test and confirm you have Fibromayalgia?

Sep 04, 2014 2:43 PM

I got diagnosed with Fibromyalgia 6 years ago. I thought I was going mad with all the different pains and other things I had. My disc then collapsed in my L4/L5 region and I had to have a discectomy which unfortunately has not worked. I am in chronic pain constantly. The intensity varies from day to day. Insomnia is one of the bad things I suffer with also.

Sep 04, 2014 7:55 PM

I was diagnosed 2 years ago with both and find it very difficult to function some days OK some days worse. I seem to get everything that is going around but it hits me worse and I'm I bed for days. Hope there will be a treatment oneday.

Sep 08, 2014 12:13 AM

I was diagnosed with Fibro in 2007. The only acceptable diagnostic test right now is The trigger point test. There is a total of i think 18-22 trigger points. If there ids reaction to a certain number of them then you are diagnosed with it as long as other criteria Are met as well. I have a copy of the DSM V...I would be more than happy to post the diagnosis criteria on here for you.

Sep 08, 2014 12:15 AM

Also, Fibromyalgia is a degenerative disease. So, basically you have your good and bad days, But this is the best your body is ever going to be....That's what my Rheumatologist told me when i went to see him.

Sep 09, 2014 3:30 AM

hi MamaWolf. Was a Rheumatologist helpful? I have appointment on Friday. The Rheumatologist will be Doc #8 and I still don't have a proper diagnosis. My current D.O. says maybe Fibro.

Sep 09, 2014 3:50 AM

I also have I fibromyalgia. seeing that you've gone to 8 Dr's. your probably getting frustrated. it took me over a year. and my GP was the one who said fibro in the beginning and now the end. be patient you'll find the right one, but also be persistent when you feel up to it. clearly I have a hard time sleeping too. since I have to get up at 7 to take children to school

Sep 09, 2014 4:13 PM

i finally been diagnosed with fibro and because of other health issues it seems like no one wants to treat me. my primary put me on one med then because of other condition a different doc took me off. how do i hey them all on the same level

Sep 11, 2014 1:59 AM

my doctor told me that I have fibro, what is that and how it's treat, I take cybalta every day which help me to control my pain, any other idea ?

Sep 11, 2014 6:03 AM

I was diagnosed with Fibro about 15 years ago, some Drs are educated about Fibro and others are not, I'm glad you found one. this disease is very cruel, just when you think you are over the bad it reminds you it's there.

Sep 11, 2014 4:23 PM

what should I do that pain don't come again, any recommendation ?

Sep 12, 2014 2:17 AM

first diagnosed in 2013, looking back probably had it since teenager and watching my 18yr daughter she is exactly like I was at her age. all docs put my symptoms down to having thyroidtoxicosis and finally had my thyroid taken out. but hey guess what pain still there. after seeing 4 different rhumis they all said fibro and me and osteoarthritis. I'm now on fentanyl patches, tramadol, meloxicam not to mention thyroid meds and VitD supplements.

Sep 12, 2014 10:16 AM

First diagnosed with fibro 15 years ago.

Sep 13, 2014 11:04 AM

The pain associated with fibromyalgia is un relentless. I'm in pain 24 hours a day. After several years my primary doctor gave me the diagnosis. Before I was prescribed medications that affected my ability too function. I refused the meds because I have the need to drive as well as live sleeping all the time just wouldn't provide anything close too a quality life. Two years ago my doctor found a newly released pain medication for people that suffer and need to be treated for long term pain relief. This new medication is a godsend I'm able to drive and function much better. While my pain is not gone it's controlled better. The pain is not going away so it's up to you to take whatever steps necessary to find the best treatment that helps you. The medication I'm taking for pain is a narcotic med with extended release. The name is Opana ER, there are different strengths from 10 mg to the strength I take 40 mg. Look into it you will not be sorry. Good Luck and Be Well!

Sep 13, 2014 11:30 AM

so happy to hear that your able to find relief with the Opana. I'm in pain 24/7/365 and ON meds my pain level is around an 8 and it sucks. I take Morphine and roxycodone for breakthrough. I get very little relief and sleep less and less and am often fatigued. I have degenerative joint/disc disease, spinal Spondylosis, scoliosis, Fibromyalgia, RSD, Graves Disease (my thyroid was removed) and suffer from depression and horrible anxiety. I hope you ALL find a way to manage your pain. I'm hoping when the medical marijuana comes out that it will help. until that time, bless you all.

Sep 26, 2014 1:29 PM

Living in Scotland means agony to me all year round, so' along with all the usual medication I take daily, I now recieve what's called Lidnocaine infusions. this treatment is done under hospital conditions, taking around 7/8 hours to administer through an infusion. Lidnocaine is the substance that dentists use to freeze ones mouth for tooth extraction etc. I recieve this treatment every 6/7 weeks which for me works. I get 3/4 weeks restbite from my pain, although the pain is still there the Lidnocaine seems to comfort the pain meaning for a short time I can feel half normal!! again. why not ask your GP about this treatment, I only received it because I was at my wits end, my next treatment is a three week pain management program at the chronic pain specialist unit in Bath, ENGLAND.

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