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Fibromyalgia and its' baggage

Jan 17, 2016 9:53 PM

I hate the cold. It makes me feel 90 some days. Then again my stress level is through the roof! My son has some issues with depression and has tried to commit suicide within the last 3 months, almost succeeding this last time. So that has exacerbated the symptoms as well. It seems like it opened the door for these other issues to come though and attach themselves to me. I would give anything to have one pain free day. I don't know what that is anymore. This is such a take over kind of condition to have. I know it could be worse so I am thankful it isn't. God Bless each of you out there dealing with chronic pain!!! Love you all.

Jan 17, 2016 10:45 PM

Lovinlife..I'm sorry to hear your haveing challenge with your child and having to deal with fibromayalgia. I'm glad u found us. I don't have children and probably won't due to one of my diagnosis I have. But I know that it hard to see someone u love struggling. Have u spoken to your doctor about all the issues at home . I ask because I care for two elderly parents plus fibromayalgia and several additional Diagnosis. My general practice Dr helps monitor all my levels and what not so that I stay as healthy and calm as possible. It's important that u keep track of your feelings and pain so u can strong and healthy for your son. And I'm praying that your son gets the help he needs.

Jan 18, 2016 2:43 AM

Lovinglife, I am so happy you joined our community. It looks like your are dealing with a lot. I have two kids. I can't imagine what it would be like for one of them to be depressed to the point of trying to commit suicide. That must be very hard on you as a parent to see his depression and not really know what he is going to do at all times. We want to be able to fix whatever is wrong because we love them so very much. I am sorry you are dealing with that.

You are right about your symptoms being worse because the stress you are under. I am sure you must have depression over this. I guess I am imagining myself. Everyone is different. One thing you said I can really relate to is wanting that break for one day. I would even beg for like twenty minutes. Just enough.for me to refresh my mind for another battle. We just need to have a break from all of it at times. I hope that you get one soon. Take care and my best wishes for your situation to improve.

Jan 18, 2016 7:50 AM

Lovinlife85, I'm so sorry you are under so much stress, and that your son is so depressed he wants to die. Dealing with your own health issues is hard on the body, mind, & soul. But like Profiler said, as parents we want to rescue our kids from any danger, even to the detriment of our own health.

There have been suicides in my family & friends, and I've even fought through the ideations twice myself. Speaking only from my own experiences, I didn't realize what was happening to me; my thoughts or actions. Both times a doctor picked up on it and interceded. The first time I was hospitalized with a total nervous breakdown. It took me 12 years to find myself and function as normal as possible as I could again. And I stayed under the care of my psychiatrist and a counselor the whole time.

The second time was 2 years ago this Spring, and it was actually brought on by my Cymbalta, given to me for the fibromyalgia and depression. After 6 months I started having bad side effects but I didn't know it. I didn't want to take my life (like first time), but I was wishing death would come so I wouldn't hurt anymore. I'd been ignoring the depression symptoms, thinking I was super-human enough to handle all this medical decline on my own. I'm now under the same psychiatrist and a different counselor. And finding this group of wonderful supporting friends has been a lifeboat! I realized I wasn't alone; that others experiences chronic issues and understood too; that I had a great support to get me through on bad pain days or high stress days. I'm so glad you've joined us, because I'm sure you'll get support here. And when you feel you can't go another step, just hold on to us & God. Does your son go to counseling? If not, try to get him under a good counselor. I'll be praying for him, and you.

Question: how long have you had fibro symptoms and diagnosis? The reason I ask is, your symptoms could be more than just fibro. My fibro started in 2007 but wasn't dx until 2012. I left work in 2010 for abdominal surgery that turned into 5 in 1. After that my body started getting worse and I haven't been able to return to work. Like you, I think it all jumped on board and exacerbated my health decline. I kept telling my docs (PCP, rheumy, psych, pain specialist) that something else was going on. All my labs kept coming back with inflammation and elevated wbc, but they all said it was the fibro, or my OA/DDD. Then last year I developed a patch of scaly tissue inside my cheek. I had a biopsy by the ENT doc and it came back Sjogrens. A month later I was put on Plaquenil, and my daily avg pain went from a 7-8 to a 3-4, and occasionally it's a 2. But I'm never totally pain free, and I think it's because of so many pain causing issues. I'm allergic to most pain meds so I reserve my rx meds for the really bad days/flares. I've learned to listen to my body and heed the warning signs. And I rest between activities so as not to overdo it. Like getting a shower, drying hair, and dressing wipes me out. I hope something I said is helpful. You will be in my thought & prayers. Hugs & love to a new friend in our community! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 19, 2016 9:38 AM

Thank you to all that replied to my post. I wasn't diagnosed with fibro until June of 2014, but I am certain it started after a car accident in 2010, possibly even earlier. I am so tired of being diagnosed with something new and I am sick of medications and their side effects. I'm on as few as possible and I intend to keep it that way as long as I can.

I'm hoping that my son is on the slow road to recovery as he is going to counseling, at least for now.

I am extremely grateful for this group. Knowing I am not alone and not losing my mind is of great comfort and gives me some peace of mind! Thank you all and God Bless each of you.

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