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Fibromyalgia feeling better! Now I can't stop being scared of next flare

Aug 05, 2015 11:34 PM

I have type 1 diabetes and now the pain is under 4. I can't seem to stop eating.

Aug 06, 2015 8:35 AM

Sweetiepie, have you left your doc know about it? Im out diabetic but I have hypothyroidism.
I get cravings for either sweet, salty, or chocolate foods. I'm trying very hard not to give in and eat because my weight keeps climbing. 🙏🌼

Aug 06, 2015 2:02 PM

My control is usually excellent. On the whole I eat carefully. I will see him next Monday. I'll tell him.

Aug 07, 2015 3:05 PM

Can I ask a question? May sound stupid.

Is fibro the same as lower back pain or it's something similar but different in terms of trigger points? All I saw on my file when the doc was going through it just says I have chronic back pain as my diagnose. I'm not even sure whether lower chronic back pain is a disease.

Sorry if I hijacked the thread. I've just never seen the term fibro till I joined this community, it sounds like what I have, but not sure what they call it here in Australia.

Aug 07, 2015 7:25 PM

Octobot, it is NOT a stupid question, it is quite legitimate. I have to say that even though your history says chronic low back pain, that is not the cause, that is the effect. Your doctor would need to run tests and through process of elimination, see if your pain is caused by Fibromyalgia. Fibro is generally widespread pain caused by overactive nerve signals being sent to the brain. (By the way, lower back pain is not a disease, and you didn't hijack the thread... LOL!!!) You would need to have different tests done by Neurologist, Rheumatologist, etc... They would be able after doing said tests if you have fibro or not. I hope that you find the answers you need and that your doctors in Australia can help you to get the help that you need to ease your pain and find out exactly what is causing it. I will keep you in my thoughts and prayers and hope that you find some resolution and relief to your situation.

Aug 07, 2015 7:41 PM

I have both lower back pain and fibromyalgia. Two different animals. Two different kinds of pain on me. My fibromyalgia is widespread and like a swollen pain all over. They both stink! But I'd rather the lower back pain.

Aug 07, 2015 7:49 PM

Octobot, I can't add anything except that I have both. My fibro started after two long years of health problems that caused inflammation to be high. You'll be in my prayers. 🙏🌼

Check out the websites and provide the info to your docs:

Aug 11, 2015 1:29 PM

I will check the sites and thanks flappy, Alwayz And sweetie for your replies and kind words. I was about to start a thread after reading the last thread and had this strange feeling I might have asked before till I clicked on this post *slaps head lol!

Past 4 years, I don't think I was really given any tests. First 6 months was constantly sent home and have paracetamol and ibrufen every 4-6 hrs. Went overseas to have an MRI scan by a relative GP. They've found I have a disc bulge in L4/L5 S1/2. I'm not even sure what it means entirely. First neurologist said its not a big bulge and recommend I live with it. Second specialists said I may need a disectomy and its my choice based on my previous MRI. Since then doctors never sent me to any specialists again. I did one year of intensive physiotherapy and hydrotherapy which stopped me limping.

Recently went to see a pain specialist myself which was 5000 miles away!, told me to do some stretches and pushed some trigger points which caused some pain, asked me to have cortisone injection as well as facet joint jinx a few days later. Saw me after a few days and I said I'm still feeling pain bending backwards, he did the radiofrequency neurotherapy. 2 months plus now since that surgery and still in unbearable pain. Now he won't see me until I get a new MRI done. If I go on the public system, I need to wait which could be many more months. My insurance won't cover it. If I pay myself, I'll be out of pocket by approximately $5000. There's no MRI facility on my island, so I need to take a flight out to the mainland which cost me $1000 one way!

So lost with my options now. The specialist I saw last trip cost me $10,000 out of my own pocket. Flights across the Australian continent because I heard good things about them. My surgery was paid by my insurance luckily or else that would add another $6000 to my expenses. Thinking back, no doctor or specialists had any diagnose or testings on me so I'm really blank with what I actually have.

Just seeing the affected areas of pain from the members with fibro, it doesn't seem I have it as my pain are quite specific. I really feel a lot of hurt when I see your profile pics. It breaks my heart to see so many people with unbearable pain. My heart goes to you all and I'm so glad I've found you guys. Many thanks for the great advice, empathy and loving support! Kudos to all of you who have a great heart in helping people!

Aug 11, 2015 2:16 PM

Octobot I Have a herniated disk @L4S1 they say it's not bad enough for surgery. It sure hurts to do anything I have short quick stabbing pains in it,if I do any sweeping,moping,or doing any lifting kills me. I also have a lot of pain in my neck,and upper back all the way down to my tailbone. I have Syringomyelia,Fibromyalgia,Osteoarthritis and a Syrinx in C7-T12, this is fluid inside the spinal cord.

Aug 12, 2015 9:20 PM

Weezie, your description of pain is really like mine except the pain in the neck area. All along I have pain in my mid back but never realised it till my pain specialists pressed some trigger points there, all along I thought it was pain radiating from the lower back.

Yes anything I've done like what you've described above really cause this severe non stop stabbing pain. Constantly throbbing and no meds really help. Only relief I get is lying on the floor and pitting my feet up on the sofa while doing that. I can't lay flat on my back, almost immediately that throbbing pain starts right away.

Do you think it could possibly be fibro? I've never heard anyone whom I met during appointments or friends used that term before. Not sure whether the doctor here knows what fibro is.

Aug 12, 2015 9:49 PM

Octobot if u don't fibro now,u will, if u have surgery. Fibro is generally caused by a trauma, like surgery an accident, a fall. I don't know how old u r most women with any trauma in they're life will end up with fibro.

Aug 12, 2015 10:07 PM

Octobot I am so sorry that you are having to go thru this . I know what you are going thru. Before I had my anteriordiskectomy on 5,6,7 my pain was constant nothing helped me at that time my pain levels stayed at a constant 10 with all kinds of treatments and meds. Nothing helped me. I had a MRI and they found the Syrinx inside my spinal cord it started @ my L S went up into my T S and into my C S. I saw a Neuro Surgeon and he just brushed me off. I asked for a second opinion and saw a Dr in another city 80 miles from home. He looked at my MRI and said you need surgery right now. My neck was causing a lot of the pain and I didn't even realize it. I was having what they call refered pain when I hurt my lower back all the pain from my neck transfered to my lower back. They went in thru my throat and took out the damaged vertibrae and replaced them with vertibrae from the bone bank. After a I got over the surgery my pain levels went down about 20 % it was amazing to me. The surgery was done in 05 and he told me after he got in there I needed to remove 1morebut he only requested 3 vertibrae from the bone bank. And I would probably have to have another surgery down the road. I think the time has come for it. Any way you may have something going on in your upper back that you are not aware of. If there is any way you could get a second opinion they might find something causing u our pain. God Bless you I will keep you in my prayers, sending you hugs.

Aug 14, 2015 1:54 PM

Weezie, you have just opened my mind about what you've went through about how pain can be referred to the lower back. Thanks heaps for your experience! I'm currently waiting to get an MRI done so my pain specialist can see me again, but going through the public system I need to wait. I'm on a lose lose situation right now. As I'm from a little island, we don't have such facilities and I need to travel to the mainland for it. Going there just for the MRI privately would set me back $3000 for 4 days. But waiting in pain is not an option I want. Waiting for the public system won't cost me a cent but may take several months till my turn. Then after reviewing my MRI by my pain specialist, to make an appointment will be mo this after that. Just to get diagnosed can take 6 or more months turn around time.

Also recently I have lost 2 employees....both of them due to health. Sigh, no one applying for any work at the moment and with my health, I have to do light labour duties and forklift driving. Family business, if I don't do it. No body else will.

Beauty1004, I'm currently 35 this year. I'm going to ask my doctor probably on Monday or Tuesday, missed my appointment today due to stress and body crashing out lately.

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