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Fibromyalgia, Interstitial Cystitis, Exhausted & at the end of my rope!

Feb 12, 2017 1:20 AM

I have been "dealing with it" for years, just like everyone asks. Taking the meds, trying to ignore the pain, "walking it off", stretching, exercising, and putting on the happy face. Their advice, follow the dietary restrictions, hit the trigger points every day till the pain melts away (yea that's lots of fun) blah blah bla. Well, the lack of sleep, and years of pain have taken their toll. The brain fog is so bad, I have thrown in the towel and closed my business. I just can't wear that happy face any more. It has taken over my life. It's like there is no room for anything else.

Feb 12, 2017 4:05 PM

Wish I could say something to make you feel better. The brain fog is horrible. Is there anything you can take for sleep. Sleep deprivation exacerbates every other condition you have and increases pain perception. Please see you doctor about this. Sleep deprivation is no joke.

Feb 13, 2017 7:00 AM

Crisscross, I feel your pain, except I have Sjogrens Syndrome and DDD and bulging and or hurniated disc's, osteoarthritis in my back and hips and now it's spread to my knees and shoulders. I also have RA and nuerpathy in my feet brought on by the Sjogrens Syndrome, I also have Fibromyalgia like sensitivities brought on by my Sjogrens Syndrome as well. I can feel your pain on putting on the happy face that I too just couldn't do it anymore, I had a business in Georgia that wasn't successful at all and if it ever took off I just couldn't handle the increased pain and my partner had twins , so she couldn't handle it alone, so we decided that it was time to close up shop. I am very grateful for my business partner because she not only is my best friend, she also understand's my pain and call's to check on me daily. She was thier for me when my first marriage came crumbling down. I am greatful for a friend like that and this site because if not been for that
The kids I would have gone crazy and lost it along time ago. I will be praying for you daily like I do for all my pain family! Sending out lots of love support, hugs and sunshine to help you get through your day and darkest of days. 😘💖🙏🌞

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