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Fibromyalgia is real! Stop telling me it's not!

Nov 06, 2015 8:14 PM

I went to the urgent care this weekend over some feminine issue, and whole telling the Dr about my medical history i mentioned my fibromyalgia. He cut me of saying he doesn't believe in that, that he realizes i could be feeling some sort of discomfort but fibro is just an umbrella term lazy doctors use.

No. A thousand times, no.

Don't tell me is not real, just like the dozens of other doctors before. Like the employers that have written me off as lazy. Like the friends that have dumped me for not wanting to go out.

Don't tell me that there is no reason for my constant and sometimes debilitating pain. For my gnawing fatigue that always seems to be the even when i get over 9 hours of sleep. For my random twitches and jerks and ghost pain.

Just don't.

Nov 06, 2015 8:56 PM

That's okay, I have tried to explain to my significant other about fibromyalgia, I don't bloody well get how six months of explaining it abs he still doesn't understand. He doesn't get why the pain makes it dangerous for me to drive.

Or how the comorbid (love this term) diseases, such as chemical sensitivity affects me life and makes things as simple as shopping, makes me sick for days. Is he willing to help? No. I asked him to pick up bread (which he eats) & milk two days after my surgery, you know what he did? He called me on the way there and started in on me about how i knew i had surgery why didn't I Have everything prepared ?

Uhhhh, that's cuz i could not drive from the pain of fibromyalgia which impacts the way my body receives pain. Making my bladder disease, uterine disease etc etc etc even worse.

Yeah, it's real. Doesn't matter how many ways from Sunday that i explain it to some people they'll just never get it. (actually have to have my mother drive 3o mins or of her way to bring me my medicine bc he won't even though he does right by it EVERY day he goes to work). Think we're going to make it to our 7th month anniversary? Hmmmm..... Me thinks not.

Nov 06, 2015 8:57 PM

Sorry I totally understand your frustration. Didn't mean to hijack it with my b.s.

Nov 07, 2015 9:48 PM

I'm sorry the doc was like that Blacksheepmom. We've all been recipients of such attitudes, and sadly it doesn't get any easier. Fibromyalgia is real, but there are many in the medical profession (& outside of) who will never believe unless they go through it. We just have to stand out ground and stick together. 🙏🌼

Nov 07, 2015 10:06 PM

I am on the opposite side I was diagnosed with it 10 years ago and told the doctor, no really find out what is wrong with me. Over the next few years I would find i do indeed have numerous other health issues.

Flash forward to last year I started having pain seizures and again was told it was fibro. I accepted the meds only because it helped with my seizures.

A year later it comes to light I have multiple issues with my spine causing severe pain.

Do I have fibro? I am still not sure however I do believe it is a symptom that not everyone gets. I do know that if I would have sat back and accepted it 100% I would not have found out the major issues i have. I like most have tons of other diagnosis.

Please dont get me wrong i am not saying you dont have it. I think the most important thing is everyone has to find thier own journey and there is not one answer fits all.

Nov 09, 2015 2:31 AM

You know what I did? My one friend who didn't believe me, who said I just need to work out, who pushed all my buttons finally made me snap. I told him to stand up. I put an almost full glass of water in each hand and hold them both steady with the arms at 90 degrees.... for 15 minutes. It wasn't bad at first, but then he started to get restless. Then achy, by the time was up, he was in searing pain. I told him "this is what my body does to me, every, single, day. And it does it whether I exercise or eat better or lay around all day. And it does so against my will". He no longer gives me "helpful suggestions". Try it, maybe use peg weights that they have to walk all around the house for the rest of the day id you're really upset. But I guarantee you, that they will get it REEEEEEEAALLY quickly when the pain sets in.

Nov 09, 2015 7:29 PM

Mixerholly, what an awesome idea! Way to go!! 🙏🌼

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