Hi I'm on a lot of pills for the pain is there some one out there that takes this number of pills I take lofepramine 140mg a day amitriptyline 100mg oxycodone 90mg pregalin 600mg and oramorph when needed is there someone out there with the same pain
I have fibromyalgia and interstitial cystitis. I'm taking Oxy 80 mg 2x Daily, dilauded 4mg every 4 hrs, lyrica 300 mg daily, klonopin 2 mg at bedtime and Zoloft 100 mg Daily. Most of the meds are for my Interstitial cystitis as far as my fibro pain Lyrica has helped the most. I've been living with pain for 15 years and will never give up or give in. I've tried a few of the meds you mentioned and they did nothing for me. but everyone is different. I also stretch a lot and have added yoga to my regimen. swimming helps out too. stress is a major factor with fibro. I wish you all the luck in the world. keep your faith and stay strong.
Hi there and thanks for getting back to me I take all the meds but I'm still in lots of pain and the doctors will not put the meds up I no there is some thing up but the doctors just put it down to the fibmyalger they can't see past it the more I do the more pain I have so don't no where to go from here
Gary, Go to another doctor or even a research center. If you are not getting the help you need, look elsewhere. There are Fibro Meds that will give you relief, just hang in there because it's different for everyone.
I take tinizidine 1/2 during the day 2 at night, tramadol 2 at night, I have Percocet as needed durind the day. I take effexor 225mg, magniesum 400 mg, verapmil, 2 times a day (for cluster migraine) buprion 1 time a day for anxiety. I also take iron, vitamin B, C, probiotics 2 times a day, levothyroxin one time a day. none of the recomended meds wotk for me.
I still have very bad pain 24/7 on all the meds I'm on and the doctors are not sorting out the pain or my depression the pills don't work is there anything out there that someone can tell me about please
Gary- have you had tests done for other conditions? I can't believe with all the meds you are on that you are not getting any relief. that is horriable! I really hope you get some relief soon. do you work or do a lot of activities?
IMHO... if Fibro is your only problem, Hydrocodone won't help. ask for Tramadol. That's also not enough Cymbalta, and you might want them to throw some Lyrica in the mix. Hydrocodone is most addictive. Plus, it doesn't help on the kind of pain that Fibro puts you in. Do not take it regularly. do take care and let us know how you are doing.
Hi all for giving me some hope I have been in this pain for two years now and it's getting me down my pain is down the right side the most from my toes to my head the pain is in my bones and and muscle's my left side is getting effected but this is because my right side is so bad I'm starting to think I don't just have fibromyalgia can someone please let me know what they think thanks
hi Gary. I am on quite a few meds too. I have found that since I added Cymbalta 60mg in the am, I can deal with the pain. I don't get so depressed about it. it isn't for everyone though. I know of many people who had terrible side effects, the least of it was weight gain. I did gain weight which I needed but then leveled off. I'm 5'5" and hover around 130lbs which is ideal. I also take 2 1/2 Percocet per day but not after 6:00pm or I can't sleep. I'm also on Celexa 40mg at night for depression and 2 clonazepam at night to help with anxiety and sleep issues. the clonazepam I also take a half pull if I'm really stressed. I'm sorry for your suffering. butterfly hugs.
Most of you probably have Lyme disease. I was missed diagnosed with fibromyalgia for 10 years. Lyme disease is caused by bacteria. If you don't treat the cause you can't expect the pain to go away. Contact your local lyme disease organization and ask for a referral. Most doctors don't know much about these disease.
Thanks for your advice I'm off back to the doctor's as my pain never goes away I get some relief from the pain meds but just so I can get out of bed but if I do to much I know about it so there must be more than fibromyalgia if you think the same can you drop me a line as I'm writing this my mind is going blank I would like to find out more just so I don't think I'm going mad
Can someone tell me what is it with doctors the one of them seen me twice and told me I had fibromyalgia some blood test but that was that so how can this be the pain is just down my right side but my left side is now getting the pain but the pain in my bones it's like someone is putting red hot metal up them and my brain has just stopped working if I just read for a little bit or just think to much it stops working I just don't know what is going on if I go to the doctor's they just say it's fibromyalgia but I'm in pain the same pain all the time I'm just not getting the right answer
Your body gets used to the pain meds which is why you have to keep upping the dose to get the same relief. At some point doctors will not add additional pain meds because it will put you in respiratory distress. I went to a behavioral pain management clinic that focused on meditation, relaxation, and very light physical therapy to manage pain. It really worked especially learning to understand your limits, manage stress, and stopping to relax and meditate when your pain levels start to go up.
I don't know how you all can take so many pain meds and compare that to your pain. Yes pain is no fun I have lived in major pain most almost all of my adult life. In the past I took all the pain meds you all deal with every day. The pain meds where kill me as much as the pain. Now I take a heart meds, meds for PTDS, depression and Acid reflex. I still take usually one pain med a day to cut the edge on getting myself upright. I feel for you all as I do feel the pain every day. I wish you all the best in your journeys thur life and I hope I can continue to have the strength to live life without pain meds destroying my life as well as the pain try's to every day.
Hi there the thing with me is i don't know what I have got I seen the? I was seen 3 times in two years and they did blood test 2 times and I have seen the pain clinical one's in all the time I don't think they know what there doing there putting all my pain down to fibromyalgia I just don't know?!?!?!
Gary, If they don't test, they can't diagnose. Have you seen the results of your blood tests? Do you have family or a friend you can take with you to help facilitate communication between you and the doc? Figure out how to get the results from tests you have taken, or better still, a copy of your medical chart to study & review on your own or with a friend or family member. Use the Internet and search engines to find symptoms of suspected problems. Find out what the diagnostic criteria are for a suspected condition. Make a written list of questions for your doc before you get to their office. Take notes when the doc talks. If they say something you don't understand, ask. If you still don't get it, ask again. Make them spell it. Docs generally like it when you ask questions because they like to be the authority on things. Phrase your questions as questions, not statements. Be interested in your condition. Convey your desire to overcome your pain to the doc. If they say you have a specific condition, ask them how they determined it. If they can't figure out what you have, ask them if they know someone else who might be able to help you. See if they can make a personal introduction. Get copies of their records and notes to take with you to a new doc.
I don't need to tell you this but your pain level is unacceptable. Docs seem to take you more seriously when you have someone with you. After years with few good results, I finally started seeing some improvement after I took hubby with me into exam. He said very little, but the doc said more and has treated me better since then. Follow EVERY instruction the doc gives you to the letter. For example, if they tell you to lose weight, ask them how -- and follow their instructions. Note what you do, when you do it, and how you feel. Use this app to track pain and show it to your doc.
Never miss an appointment or be late, especially if you think you can't go because you don't feel like it. That is precisely the reason you are going. It takes a lot of hard work while you are in severe pain to get results. It is hard, but you must do it to get the help you need. Have courage. We're here and most of us have been where you are now at some point. Don't despare. Anxiety and depression are to be expected; they are best friends with pain. Get your mind right and you can do this. All the best wishes from the bottom of my heart. Keep us in the loop!
Oh, and if you can't do something they tell you to do, tell them why you can't do it. Demonstrate if possible. Document times you try and can't. You really need to communicate with them better. I have fibro, but I also have Lupus and RA, plus some other minor things. Does your family support you? If they don't help you out, tell the doctor that as well. You can get to the bottom of this and climb out. I did, and I'm not 100% for sur, but I feel better and at least more involved - and that makes me feel like at least I have some power over the pain. I am smarter and stronger than it is, but it has taken a lot of work to get there. Go, Gary, Go!
Until recently I was on an epic lyrics long list for my fibromyalgia, endometriosis, interstitial cystitis and chronic migraines, but I have cut way back and could do so because of extended release morphine. Before I took mobic, Topamax 2 pills twice a day, prozac with a kicker of Abilify, Clonapin for sleep usually 1 1/2 to 2 pills, cyclobenzaprine at least three times a day, and percocet up to 8 pills a day. Plus my migraine meds of imitrex injections and maxalt oral dissolving pills and zofran for nausea. Now I take 1 morphine in the morning and 1 at night along with my 1 lunesta for sleep. And bam, no more pain on waking or in the night. No more spikes or peaks and valleys in my pain pill coverage, just smooth sailing. I have percocet for any emergency break through pain but rarely need it. I still take my prozac but no longer need Ability or Clonapin. I still take Topamax but a lower dose. No more mobic, which was death on my stomach anyways. And now cyclobenzaprine only as needed. Far less of a pill salad being consumed these days! It is possible but it took begging and pleading with multiple doctors on my pain team to get everyone on board to try this new treatment.
lbravo is very correct about following instructions and doctors orders. It was only after following a set plan for a year that included my becoming more active, losing weight, tapering down off my percocet, etc... that my team even considered the new pain management plan for me. It was a deal we had struck and I had to hold up my end of the bargain, even if it was hard to even remember agreeing to anything at the time due to Fibro fog and the desire to do anything to feel better. Do your homework, do your part. It really does pay off.