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Fibromyalgia or what?

Nov 29, 2016 11:50 PM

I've been on this pain roller-coaster for too long and I need to get off. I live in a country where health care can be a bit less organised than it should be. I've been thrown from a diagnosis of chronic pain syndrome to one of Fibromyalgia to the last doctor I saw telling me it was in my head and I just needed to 'rest'. I wanted to punch him between the eyes and see how much resting would help him. I don't even care about a diagnosis anymore, I just need the pain to go away but nothing seems to be working anymore. I have sole care of my daughter so I have to fit my pain and hospital visits neatly into the time when she's at school. I'm so frustrated and don't know what to do next

Nov 30, 2016 6:22 PM

I'm so sorry you're struggling, especially with uncaring doctors! I have fibro along with many other chronic pain problems. There is never a pain free day. But through suggestions of this community I've tried relaxation, taking magnesium supplements, and reducing sugar & starches. It's been helpful for sure. After the fibro dx I knew there was more going on. It took pressing for a different doctor (several times) which has brought me to the place of better treatments and less severe, more tolerable daily pain. I still have bad days but they are less severe and less frequent. Winter is my worst season of pain. Try and be patient, while seek second or third opinions until you find a doctor who cares for your best. In the meantime take frequent breaks, nap when you can, use OTC pain ointments, use an ot Tens unit (drug stores), OTC pain meds, gentle stretches, and relaxation techniques to help get through it all. And know that you can come here anytime for questions, support, to vent, cry, laugh or just say hi. No one is judged because we've all been judged already too often. Sending you hugs love and prayers you find support and helpful suggestions as you seek diagnoses and treatments. 🙂💕🙏🌸

Nov 30, 2016 6:48 PM

I have fibro. If it's possible see a rheumatologist. They can dx fibro. Try soaking in Epsom salts. I went gluten free. It cut my pain level in half. I hope you can find out your diagnosis.

Nov 30, 2016 7:07 PM

Definitely see a rheumatologist, I suffered for years without knowing (but suspecting) that I had fibro but it does help narrow your focus when you have a diagnosis. Realizing that you can probably only do about 1/2 of what you plan to do each day and giving yourself permission to let the rest go makes a big difference. Stress of course is a major factor. We all live stressful lives but try to find ways to mitigate the stress. Small things like planning crock pot meals takes some of the pressure off. Finding ways to simply and ASK FOR HELP! It's hard to accept help but get it where you can. 💪🏼be well, I just found this app today and I'm so relieved to talk to people who get it 😍.

Dec 01, 2016 12:58 AM

I AM searching for a rheumatologist. We don't seem to have very many in my country and it's going to cost an arm and a leg when I do get an appointment. But I'll get there eventually 😊

Dec 01, 2016 7:06 AM

In the meantime, follow a clean diet (low sugar, gluten free, no caffeine) and do gentle exercise. B12 seems to be a big factor as well as magnesium, omega 3 oils and CoQ10/NADH. The biggest thing about fibro is self care, be gentle with yourself.

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