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Fibromyalgia pain can anyone help I just want to feel normal!!

Mar 07, 2017 3:47 PM

I've been signed off work for 9weeks with no start date in sight!! due to fybro pain,brittle diabetes, chronic knee pain, and last but not least depression & anxiety

Mar 07, 2017 4:08 PM

Well i hate to say it but this is your new normal. There are things that can help and your symptoms can improve, but there is no cure.
I found cutting inflammation causing foods out of my diet helps, everyone has different intolerances so you have to experiment. I take magnesium malate and potassium to help with muscle cramps and soreness. I try to move as much as possible, while still resting as needed. If you don't use it you'll lose it and your muscles will atrophy which is a different kind of pain and you'll lose independence faster.
Epsom salt baths, colouring and or crafts for distraction.
Are you still getting paid? Massage and acupuncture keep me mobile, not everyone can afford it.
My therapist says I need to lower my self expectations, so what if I can't do everything. I did what I could without causing further damage to me and I need to learn to be ok with that. Are you seeing someone who can help with the anxiety and depression? Don't forget deep breathing exercises and meditation.
Work sent me away pending a medical review because I called my boss out on his power play of sending the sick, chemically sensitive person on 3 weeks of training offsite with less than a weeks notice even though 2 other people volunteered to go. I've been at home with no news from this 3rd party medical review company since January 25th. I have no idea what accommodations they are going to come up with (if any). I can't continue to work with people whose personal products make me sick and I can't continue to work in a building that continues to bring in harmful chemicals from outside (the cause of my sensitivity but since the chemicals are from the airport and were deemed safe in small amounts work refuses to upgrade the hvac and after a week straight of exposure at work i have no tolerance for anything. That was almost a year ago that 'poisoning' happened and they still think I'm just being a bother and making shit up). So i have no idea what's going to happen to me or if i will still have a job when this is over.
Take this time to take care of yourself the best you can.
You don't have to explain anything to anyone if you don't want to. No one gets it until they get it anyways. Perception only goes as far as that persons reality so unless they have shared experience they won't be able to even remotely understand.

Mar 07, 2017 4:10 PM

I completely understand where you're coming from I have fibro too plus depression and Post Traumatic Stress Syndrome . The ptss has only recently been diagnosed but the fibro and all that comes with it has been a few years now. After trying all the different drugs on the market the only one that just takes the edge off the pain is tramadol 200mg sr twice a day.
There is no normal for us unfortunately. Sometimes there will be a day, when the Tramadol kicks in, where I feel sort of normal and i will do what I can but then I pay for it dearly for a couple of days. I am still learning to pace myself instead of pushing and punishing myself.
When my pain does get too much I end up laying for the day which hurts as well as there is no position which is comfortable. A hot bath wirh Epsom salts and lavender oil helps or just sitting on a plastic chair in the shower.
I'm so sorry for your pain and yes there are lots of us out there who understand πŸŒΌπŸ€—

Mar 07, 2017 4:17 PM

And don't forget that weather changes will take you out so be prepared to pamper yourself on those days and try not to get frustrated with it. My new mantra has been 'this too shall pass' when im feeling particularly crappy and not handling it well.

Mar 08, 2017 12:34 AM

Thanks guys another wakeful night 😣 I tried an Epsom salt bath it was very relaxing and did ease my pain but I couldn't get out of the bath!! No strength in arms , right knee so thankful my husband was home had to shout for help!! Not a pretty sight!
Well here's to the start of another day Hospital appointment re Diabeties continues blood monitoring linked to my pump! Hope you all have a day with less pain I'm always hopeful!

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