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Fibromyalgia plus time of the month

Oct 13, 2015 3:24 PM

I have a hard time with fatigue normally but when it is that time if the month I can hardly stand it. All I want to do is curl up in a ball and not move. I am a stay at home mom with 3 boys so I do get a couple hours in the morning since my youngest started VPK. But after school when you have homework and dinner and bathes and trying to get kids to bed is when it is almost unbearable. Ugh!

Oct 13, 2015 3:31 PM

Chrystal, My children are grown with families of their own. I can't know how it is to deal with fibro raising children, not daily. I do have my grandchildren occasionally, and I don't always feel my best.

Just try to rest when you can, create quiet activities for your kids. You're in my prayers. 🐻((Hugs)))🙏🌼

Oct 13, 2015 3:55 PM

Thanks. I have had it since I was 19. I had no choice but to figure it out if I wanted children. Sometimes they do okay but you can tell they get frustrated too because I am too tired. I usually push until there is no more push.

Oct 13, 2015 4:49 PM

Doing your best is all you can do. But if you don't take rest periods to care for yourself, you won't be able to care for them. I had a post partum breakdown before my youngest was a year old, chemical imbalance. I also had bad neck discs and couldn't lift her by the time she was 2. She learned to climb in my lap, her carseat (with big sister's help). When she napped so would I. I rested quiet play times (15-30 minute periods, 1-3x a day), where they watched TV or colored, painted or did playdoh. During that time I rested with my legs up in the recliner.
As for the cycle, I used Midol, a heating pad or hot water bottle and 2-4 oz BlackBerry wine (mother in law's idea) a day. Another thing I did was when I felt my patience giving out because I felt bad, I went to "mommy's time-out.". I'd go in the bathroom and gather myself then go deal with the kids hyperness or bad behaviors. I hope you'll feel better soon. 🙏🌼

Oct 13, 2015 5:51 PM

Thank you so much! 💐

Oct 13, 2015 7:32 PM

Ahhh- I hear Ya Crystal! I am the same! I work during the week and it worse when I have to work!! Horriable

Oct 13, 2015 9:28 PM

@ Chrystal- I've had Dysmenorrhea since I started my cycle at age 9. That was horrific enough. Being diagnosed with Systemic Lupus, sjogren's syndrome, and chronic pain syndrome made my cycle take on a whole new level of "horrific disrespect". Although I have no children, I truly have an idea of what you are going through. Just know that you are not alone and this virtual community is here to support you.

Good Luck and God Bless 😇

Oct 13, 2015 10:01 PM

I can relate the monthly hormones cause me to flare. I have a 9 year old son at home with the homework, dinner, friends and so on. Mine is old enough when I feel better I teach him to do things. We had a family meeting and he got a whole list of little chores to help me from turning clothes right side out before putting them in the laundry to making himself a peanut butter sandwich occasionally for dinner. Even puts together his own school lunch bag. He actually loves it or the indepence and instead of asking him to do a bunch of little stuff I now just say you need to check your chore list. My only other suggestion is to be honest well as honest as you can for thier age I found out the hard way when my son called me out and said it was scary not knowing what was going on then knowing and understanding. Oh and as odd as this sounds it works 1 beer for bad monthly cramps. I hate beer but have had to have one occasionally.

Oct 14, 2015 7:54 PM

Hi Chrystal, I was told I had Fibro not officially diagnosed. I also have pmdd and irregular periods. I can barely stay awake during the days weeks leading up to that time of the month. I only sleep 2-3 hours a night as it is. I am sorry you are having these problems. I have a 3 year old and I feel like tearing my hair out at times. I hope you have a good gyno and they can do something to ease your symptoms. I think having a full hysterectomy would be a dream come true for me personally.

Oct 14, 2015 8:03 PM

Sorry to hear that 😯 I try to give myself short goals. I will tell myself "Okay, only this long until lunch" then after lunch it is only this long until... I feel my days don't seem as long that way if I break it down.

Oct 14, 2015 8:05 PM

That is a really good idea. Breaking your day up into segments. I'm going to try that! Thank you!

Oct 15, 2015 8:44 AM

Anomiious1971- I have fibro and PMDD too! My Dr is the specialist for North American. My treatment currently is a injection to stop my period and HRT. He said I need a hysterectomy but I am obese and he won't operate until I loose a lot of weight. My symptoms are completely cured since my period was stopped almost 4 years ago. Push to see a specialist and good luck!

Oct 15, 2015 9:18 AM

I was given the depro? Shot in 2007 to stop my period. After she gave me the shot, she said well hopefully you wont be one of the 1 in a million cases and have your period for 3 months. Lol never say that to me or anyone in my family. We have the luck of the anti Irish. I had my period for 3 months straight. Anyhow, I'm asking for a referral to an obgyn today at my doctors appointment. Fingers crossed/ praying. I'm ready to be done with this. I am glad to hear that the shots are helping you.

Oct 17, 2015 8:20 AM

I fogot to share this it is a rather corny cartoon but has good information it is called fibromyalgia explaining it to your loved ones. https:// youtu.be/hBcfhpwCOWU

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