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Fibromyalgia questions

Sep 03, 2016 4:16 AM

Hi everyone. I've recently just started doing some research on fibromyalgia and I'm pretty sure that's what I've been suffering from for about 2 years now. I was wondering if anyone could just give me some insight on this, is there ANYTHING that helps (I'm in constant pain and have found nothing to relieve it), any tips on dealing with this or just dealing with chronic pain if I end up not being diagnosed with fibromyalgia. Thanks guys

Sep 03, 2016 5:48 AM

Hi Iys, fibro is hard to diagnose as it won't show on ulta sounds, xray or blood work. I've only had it since 2014 (well that's when it was diagnosed ), it started with severe headaches that went on for weeks at a time. Constantly feeling tired and lethargic. I had a constant aching pain throughout my whole body, it was like a really bad cold where even clothes irritate the skin. One day my mum came to visit me and I was having a bad day, my hips were giving out so were my knees. She took one look at me and booked me into her physio to see if they could help me. Well, it took about 12 months before a second physio, who I still see, diagnosed me with fms. There are around 18 points on the body that correlate with the pain. If 12 out of the 18 hurt then they know it is fibro. These points are shoulders, patrs of the back upper and lower, hips, knees, even hands. The joints are really sore to touch and put pressure on.
Currently I am on quite a bit of medication, although not as much as some of the lovelies on here! It's been a long gruelling road to find drugs that actually work. It's more of a trial and error with fibro pain as what works for some wont work for someone else. I am getting a bit of relief from Gabapentin, morning and evening plus Tramadol 200mg in the morning and then around lunch (they are slow release), plus two Amitriptalyne at night to sleep. Hah! When I do sleep. Thats another thing with fibro pain, you just can't get comfy at night.
Also a bit of slow walking when I can helps too. Stretching lightly as well.
Wow! Sorry to go on and on 😁
I just hope I've helped a little.
Sending very gentle hugs 😊🌻

Sep 04, 2016 8:05 PM

Welcome lys! Fibro is hard to get diagnosed. It share many common symptoms with other illnesses, except for the tender points; those are classic fms. I started suffering symptoms in 2007 but wasn't diagnosed until 2012, after my symptoms worsened following surgery. I had severe pain all over with achy joints and muscles, along with varying degrees of fatigue like a bad flu.

I try not to get stressed because that increases pain. I do warm showers to loosen up, as well as stretches. And I try to do some amount of gentle exercises (usually walking the treadmill) 4-5 days a week or more, 10-20 minutes. But when I don't feel up to it I rest without guilt. I've learned to listen to body signals and pace my activities with frequent rest periods in between.

Medicinally I was given voltaren gel to rub into joints and muscles. I also have muscle relaxers for very bad spasms & cramps I usually get at night. I have tramadol pain med for flare ups, but normally take Tylenol arthritis. I was dx with hypothyroidism and Sjogrens in 2015, and the plaquenil for sjogrens has helped my pain levels decrease, as the sjogrens is attacking my joints (a shared symptom with fibro). Fatigue is the hardest symptom to deal with, because sometimes no matter how much sleep I get throughout the night &/or day, any activity can drain every drop of energy I have, especially if I'm having a flare. There are many activities I've given up, hobbies, working too, because I'm no longer able to do them. I've learned to adjust and let go of my old life, to accept my new life; it was a long road traveled to get there. Make sure your docs listen and if they don't, or they don't seem to have your best interest at heart, search for a doc who will. Hugs, love & prayers you can find ways to help you better cope! 🙂💕🙏🌸

Sep 05, 2016 6:19 AM

Hi! I was DX with FMS in 2013 after a car accident I also have Lupus, Neuropathy & MS. But I have found that Epsom salt baths are nice, I enjoy the lavender and eucalyptus salts. They are very soothing! I have a TENS unit that I got from my pain specialist, but you can order them on Amazon. I'm not sure if anyone else experiences this but I tend to be extremely weather sensitive, my body is not a fan of cold. I tend to hurt more in the cold months, so I use a heating pad, heat wraps when I go out, I also like to wear topical OTC pain patches. I prefer the ones with capison only, if they have menthol they tend to be cold (this is a personal preference, but I will use the ones will menthol during the HOT summer days), my dr also writes me a prescribtion for a topical ointment 5% lidocaine, they do sell this OTC, but it's a cream, and I find it doesn't penetrate as well. I also am on a muscle relaxer, and Tramdol as well. It is a trail and error to find what works, but it's great to talk to everyone to get ideas! You can try many different things and everyone, I have found is more than happy to share their knowledge!

Sep 06, 2016 8:19 AM

KatyMarie18, welcome! I also suffer worse in the colder climate, and rainy climate. Simeon here told me about crafter's gloves that have open fingertips, and I use them a lot. 🙂💕🙏🌸

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