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Fibromyalgia, SLE, etc. Do they run in families?

Jul 02, 2015 10:05 PM

This is an interesting thing about my health issues. My father and my Mom and my aunt and uncle each had babies October 30, 1957. My father and aunt are brother and sister and I know I got most of my traits from my father and my 1st cousin Teri got most of her traits from her Mom.. So we have always had an unusual connection... Having the same thoughts at the same time, finding so many similarities as we grew up. Here is the part I find interesting.

Cathie - systemic lupus....... Teri - discoid lupus and systemic lupus.
Cathie - fibromyalgia........... Teri - fibromyalgia
Cathie - Sjogren's ........ .......Teri - Sjogren's
Cathie - IBS...........................Teri - IBS
Cathie - OA to be tested for RA soon. ........ Teri -has RA
Both with anxiety and depression, heightened pain syndrome...

Does anyone else have relatives with the same disorders? Ours does not
go from a generation to the next, it goes sideways between first cousins. I just think it's funny. When we were little we thought people couldn't tell us apart...(anyone remember the old Patty Duke show?? "Cousins, identical cousins ".......). we always wanted to be like the other,, but don't you think this is taking it a bit too far? You know, sometimes you have to dig hard but sometimes you, too, can ramble on about whatever "floats your boat"!! It is very freeing to know I won't be judged for my inanities.. I have always figured "If we weren't all crazy, we'd all be insane"!!

You know another thing Teri and I have in common. Our emotions. I think we have got to be two of the most sensitive girls in the whole world... As in getting feeling hurt Over something that would not bother anyone else but us? It's like someone has cut us to the quick..... I have had fibromyalgia I believe for my whole life. Growing pains that have not stopped yet!! 57 years old.

Really just curious if this kind of stuff is experienced by other fibromaniacs, other chronic pain sufferers or if (and this may be a possibility......)!she and I are just a couple of coco-nuts. Haha.

I am heading to sleep... Going to try for a ride on my husbands new motorcycle tomorrow. It's a big one a Honda Goldwing and very good shocks and suspension. And we're working on how to get me comfortable in the seat behind him with padding, etc. I refuse to give up motorcycling with my husband. I am not riding my own bike now but I want to be in a place where I can go on short rides on mine. I will not feel like I am losing everything. Because I am not. There is so much more to my life than this durn pain. There has to be .... And I plan on looking for it everyday. A scavenger hunt! Oh boy!!!

Anyways everyone rest easy tonight... Think peaceful thoughts... Any one tried guided meditation?

Enough of my mouth running on, ... May Peace And Serenity be with you as you try to rest your weary body. Oh no, now I have to say the Serenity Prayer... Then I will sign off....

Lord, (or whoever)' grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

Good night my wonderful new friends. πŸ˜΄πŸ˜΄πŸ’€πŸ’€πŸŒŒπŸŒ 

Jul 02, 2015 10:37 PM

Justbcuzz I don't think that you are crazy at all. I hope you can enjoy your ride tomorrow and that it doesn't hurt. Have a good nights rest, hope it will be peace full and with less pain.

Jul 03, 2015 10:22 AM

Thanks Weezie, just getting ready to go. Took my morning melds and Vicodin. Should kick in just about the right time. I'm learning it's about planning which has not always been an easy thing for me. My brain certainly dances to its own drummer and I usually just dance along... Anyways it is a gorgeous day to spend with my hubby. We've been having such a hard time... And I'm sorry I can't remember which of you wonderful women said to sit him down and have him imagine his worst pain ever... We discussed it and I said... That's how I feel 24/7/365..... So I reminded him a few times that day to imagine he was still having that pain..... And every couple of days I have reminded him and I think he's getting it!! Glory Hallelujah !!! Our 20th wedding anniversary is the 1st of September... Maybe we will have something to celebrate.
I wanted to explain to you folks that Vicodin is basically the only pain med I can take besides cymbalta type med. I was put on piroxicam for my lupus and while I was on it, thank you very much, it damaged my kidneys a bit and I am to declare an ALLERGY TO NSAIDS.. so that really limits the options. Tried lyrica... No way..bad side effects. My pain never goes away but Vicodin 5/325 I'm supposed to take 2 three times a day but I take 3 two times a day. It keeps me around a 7-8 pain but without it it is a 9-10. Constantly. The never-ending story. That's what this is turning out to be.
I am planning on having a wonderful day and I hope you are able to do the same. πŸ’πŸŒΊπŸŒΉπŸŒΈπŸŒ·πŸŒΌπŸŒ»
Where was I??? Oh yeah, thanks Weezie for checking in with me. It means a lot.

Jul 03, 2015 10:53 AM

Justbcuzz I hope y'all have a great day together

Jul 03, 2015 12:54 PM

JustBcuzz, I don't think that you're crazy at all. Not in the slightest. I can only imagine that these are definitely traits you and your cousin sure don't want to share. I hope that today brings some joy to your day, that you've had a restful night and have less pain today. May your drive be fun and not painful... Enjoy!! ❀️

Jul 03, 2015 8:28 PM

JustBcuzz, I hope your ride was relaxing & fun. You're not crazy. I have first cousins on both sides of my family, two on my mom's & one on my dad's, that have the fibromyalgia and hypothyroidism I have. There are multiple, and I mean many, with knee & shoulder joint problems, asthma & heart issues. There truly is more to genetic links in illnesses. Goodnight & sleep peaceful! πŸ™πŸŒΌ

Jul 03, 2015 9:40 PM

I'd say things do run in families.
I know one of my friends has lupus, along with her mother and brother.
My aunt and I both have CRPS. MTHFR gene mutation C677T runs in the family, along with hypothyroidism, fibroids, teeth coming in sideways, autism, personality disorders, heart issues (requiring surgeries), early arthritis that usually shows up in the late teens or early twenties. My grandma, sister, aunt, dad, and I all get chronic migraines, chronic nausea, fainting spells, dehydration, and difficulty sitting up/standing quickly.
We all have allergies, but they show up in different ways.
My grandma has a bird allergy which would have made her blind. She wanted to become a doctor, but she's athletic to a chemical used in the training.
My aunt is allergic to Soy, most medications, and grains. She also had chronic nausea that made her puke every time she rode in the car (even if only for a minute or two) when she was younger. She had the double MTHFR C677T gene mutation, had needed many surgeries, and gets really bad rashes from most metals and chemicals/fragrances.
My sister can't eat most foods, and has chronic nausea.
I'm allergic to cats, milk, dairy, grains, Tylenol, other meds, dust, latex, chemicals and fragrance (even in band aids and doctor hand sanitizers).
So yeah, genetics are definitely a factor.

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