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fibromyalgia sucks!

Feb 23, 2016 12:17 AM

Couldn't sleep at all,am in a lot of pain it's 6am now been awake since 4am, ended up finding this app Yey.

Feb 23, 2016 12:46 AM

Good morning Channy. I am sorry to say that it is a good one. I am sure that it does not feel that way to you. It is terrible to be in pain and not be able to sleep on top of it. This is the time that we are suppose to heal some. So it makes the next day worse. It is like we know at that early in the morning that we have a bad start on our day and that our pain is going to be worse than usual. I am sorry that you are going to have to deal with this today.

I am also sorry that you have to deal with this disease and that you are in regular pain.

I want to welcome you to our group. It is a very nice group. You should have mentioned that you were new in your post. The friends would have taken the time to introduce themselves to you. But I don't think they will do that with that post. But I will take the time to welcome you for all of them. The nice thing about this place is that you can come on here and rant about how you feel and what you are going through today. Maybe you have someone at home who doesn't understand what you have to deal with and gives you the compassion and empathy you need. This place knows that you need that. You can post what is going on and we will listen to you and try to offer some kind words. Or mayber you are looking for some advice. There is someone here is always willing to give some. Then maybe you are going to need to have a procedure done and you are having some anxiety over it. You want to know what it is like. Most of the time, a couple of the friends have had that procedure done and they can tell you about it. Most of the time they can offer you comfort and usually let you know it is not as bad as you imagined. That is what is nice about our group. It really is a very loving group. So I just wanted to welcome you here. My best wishes to you.

Feb 23, 2016 9:04 AM

Welcome to our pain family Channy! I am so sorry you're in pain and suffering insomnia. I've been there, for about 6-7 years until I found what worked best for me. Do your docs have you on anything for the pain? You may need to try multiple meds, and various methods we all use to find what helps you cope and get through it day by day. It takes some time but trying suggestions from others can pay off.

I have had fibro since about 2007-2008, but wasn't dx until 2012. I was put on Cymbalta first, because I was also suffering depression, and it's used to treat both. But my depression worsened to the point of suicidal ideations and I was taken off, much too fast which caused horrible withdrawals. But others use it just fine. Long story short, concerning various meds I've tried, I'm on Plaquenil for sjogrens, which has reduced fibro symptoms also, Tramadol for flares, gabapentin for neuropathies, and Parafon forte for RSL/night cramps & muscle spasms. I loosen my joints & muscles with a warm shower; do gentle stretches 2x a at, try to get some form of exercise 15 min/day, use relaxation techniques (deep breathing, gentle/shift music, etc), and try to find ways to stay calm & relaxed. Tension & stress can bring on worse pain or start a flare.

I went through about 6 months of changing my habits from 3pm-bedtime. My doc (psych) increased my antidepressant (many if us are on something for depression & anxiety, and do counseling to learn coping mechanisms), & started me on 6 mg Melatonin/night (weaned to 1 1/2-3 mg as needed). I also advised stressful situations as much as I could, do not watch intense TV shows or read intense books after 5 PM (I record for day watching! Lol), and I play relaxing music as I fall asleep. It took me 6 months to adjust and sleep better & longer. I do still have insomnia but not near as often. The worst sleep issue I have now is walking to adjust positions from pain, multiple times a night. And although that's not great on the body either, it's easier than straight out insomnia.

http://www.living-smarter-with-fibromyalgia.com

I'm
going to post several links I hope will help you.

http://www.fibromyalgia-symptoms.org/forums/fibromyalgia_general_discussion/a_letter_to_normals_spreading_hope/


I
may have to post separately.

http://www.afsafund.org/fibromyalgia.html


We
are all here for you. Learning to cope with fibro, or any chronic illness requires grieving the loss of the old healthy lives, and then acceptance & learning to cope with our new normal lives. You don't have to go through it alone; we are here, and was added all pain warriors! Hugs, live, & prayers for strength as you go through the challenges to find what methods work best for you!

http://www.fmcpaware.org

Feb 23, 2016 9:04 AM

Only the last link worked properly... Oops! 🙂💕🙏🌼

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