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Fibromylagia

May 31, 2016 7:11 PM

Help....can't sleep or I feel I haven't slept. ...the pain is excursion can't shake it off ...does it get better because the way I feel is like getting worse ...nothing is helping me the more medication I take the worse it gets and on top of that my knee is constantly getting swollen. ..help

May 31, 2016 10:30 PM

Have you tried a naturopath? I see one and she has helped me more in the last 6 months than any doctor has for 11 years.

Jun 01, 2016 7:55 AM

No gotobef I may need to look into this. I am seeing Neurology, Pain Management and my primary at the current time. Thanks appreciate it advice. Mel

Jun 01, 2016 2:53 PM

Hil66, there's an actual word for when more medication causes more pain. But my fog brain won't let me think of it right now. When I was put on cymbalta for fibro it helped about 6 months then started hurting worse. The increased pain was a side effect of the cymbalta, but it also made me psych unstable so I was taken off of it, and put on gabapentin. It helped only minimally. I was later dx with sjogrens and put on plaquenil, and my fibro pain dropped from avg 7-8 to a 3-4. I started taking magnesium, vitamin D3, & potassium, plus I'm eating less processed or fast foods and decreased my sugar. I walk 15 min at least 5 days/week, and do relaxation. Those were suggestions from Gotobef & others, and it's helping. There is a big connection to sugar intake & inflammation. Not everything works for everyone, so be willing to keep looking and trying alternate things until you find the best relief method for you. Hugs & prayers you'll find relief soon! 🙂💕🙏🌼

Jun 01, 2016 3:21 PM

I think it's called rebound pain if I'm not mistaken. I have a bad migraine right now so I don't know if I have that right or not.💕🙏🏻🌻

Jun 01, 2016 7:26 PM

Yes, that's it! Thanks AlwayZ 👍 Wishing everyone as good a night as possible, or day for those not in the same continent time zone as USA. 🙂💕🙏🌼

Jun 01, 2016 8:46 PM

I'll just say what my rheumy tells me:
Drink plenty of water
Move (gently) as much as you can do comfortably
Eat nutritious food that's right for you ("healthy" varies, salads aren't for everyone)
Find something that makes you happy
Prioritise sleep. Tiredness and stress make pain worse, so you may need to arrange your pain meds differently to provide best relief around bedtime.

Jun 01, 2016 9:55 PM

The exhaustion is part of not being able to get deep restful sleep (common with fibro). The lack of good sleep also causes pain and it's a vicious circle because the pain can also prevent you from sleeping. Late last year it was recommended that I try trazadone to help give me restful sleep (there are several different ones that can be tried) and it has made a world of a difference. I actually fall asleep and feel rested the next day (most of the time, still have occasional bad days)
Anyway, worth asking about

Jun 06, 2016 12:58 PM

Yes I take Lunesta it helps. Hot baths with ebson salt's, ice the pain. No meds for the nerve pain work. I think we are SOL.

Jun 06, 2016 1:25 PM

I couldn't tolerate any fibro mess, however Marciano trigger point injections helped me for a couple years. Now I am on low dose naltrexone. I agree about seeing a naturopathic Doctor, they are much more open minded and treat the entire body and person , not just hand us band aid fixes that never work for long. Gentle hugs all

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