Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness


Feb 03, 2015 10:17 AM

Has anyone heard of, researched, or used this supplement?

Feb 03, 2015 11:00 AM

Which supplement Jess?

Feb 03, 2015 1:04 PM

Jesswoo76. Tell us more. You left us hanging.
I use sublingual b-12 and Ubiquinol this is a enhanced bioactive type CoQ10. Both seem to help me with muscle pain. I get huge muscle knots. The days that I have forgetting to take these I pay dearly the next day. For me I take both twice a day. That works the best for me. I also have cut out processed food and anything that is not real sugar. I avoid high fructose and opt for real sugar whenever I can. Cutting processed food has helped my inflammation and autoimmune issues.

Feb 03, 2015 2:47 PM

I dont know if it works. Is this the product?

Feb 03, 2015 6:28 PM

Yes Flappy! You got it! It is on the healing fibro posts on facebook. LMD I think both of those are in this supplement as far as a lot of other things! You should check it out guys and let's talk about if we should try it!
LMD I totally think very limited sugar, high fructose, and processed foods are not good for us as well. I have limited them but not cut them totally out :(

Feb 03, 2015 7:17 PM

LMB, what's the best form of real sugar? I know it may sound dumb, but I thought sugar was "white - granulated or powdered" & "brown- dark or light." Are there other forms? 😮

Feb 03, 2015 8:47 PM

Flappyslady, I use stevia for my sugar. I put it in my coffee, etc. Love it!
So are you guys talking about mucinex for fibro pain? I just read the sight you posted jess...I have never heard of using mucinx for pain.

Feb 03, 2015 9:23 PM

I use 'raw sugar' it is brownish. When I bake I use applesauce and local honey tastes great and it is healthy plus fiber...bonus. I just try to use the least processed products available. I have friends that use agave- I have not tried it yet. I really hardly need sugar. Looking at OUR pain/inflammation problems I do not think they were as prevalent in past generations so what changed? Environment and processed foods. Personally, I am just taking everything back a few steps. At this point I have nothing to lose and everything to gain.

Feb 03, 2015 11:52 PM

Everyone is different. The 'raw sugar' causes more pain and inflammation for me. I use honey.
And I've never looked into fibrorelief

Feb 04, 2015 12:57 AM

FlappsyLady, I was watching Dr. Oz the other day and part of the show was dedicated to food remedies for inflammatory relief. Dark leafy greens, legumes (and the added bonus of these is the protein and fiber) natural sugars in fruits are the best!! You won't find things like that for cooking or baking so you have to see which sugar doesn't cause you make or horrible!!!!!

Feb 04, 2015 1:51 AM

I heard the mucinex treatment was a hoax here is an example: Guaifenesin is a cough syrup expectorant, but there is a popular theory that it works to help with the pain and other symptoms of fibromyalgia. Now that guaifenesin is also available over-the-counter, it is all the more important that patients be armed with the research on this study. Yes, there was a research study conducted to look at the potential effect of guaifenesin in people with fibromyalgia. Due to the negative results, the study was never published in a peer-review medical journal (so it is not on PubMed), but Fibromyalgia Network interviewed the lead author of the study and wrote the article Guaifenesin … Is One Placebo Better Than Another? below.

After the study showed that guaifenesin performed no better than a placebo, and the blood/urine tests revealed that it could not possibly work as suggested by Paul St. Amand, M.D., the guaifenesin controversy is still alive.

Feb 04, 2015 7:04 AM

Mucinex?? That's not listed in the product.

Feb 04, 2015 7:27 AM

Blessed, AlwayZ, LMB, & gotobef, thanks for the sugar info. I've heard about using applesauce in recipes.

I have to be careful using mucinex because it drops my bp; I actually fainted in front of a doctor from it. I avoid mucinex-d altogether, and the muc-dm I can only use 3-5 days.

Feb 04, 2015 7:29 AM

Oops I hit "add reply" too soon. The ingredients in the Fibrorelief is many natural compounds like tumeric. I've actually considered trying it.

Feb 04, 2015 7:36 AM

FlappsyLady... Turmeric was actually the one thing I couldn't think of in the middle of the night!!! LOL... It has really strong anti-inflammatory properties.

Feb 04, 2015 7:46 AM

That's ok AlwayZ, we all do that! Lol

Feb 04, 2015 8:45 AM

OK, I am the one confused...doesn't take much these days. There is some research on mucinex and fibro relief, then there is the product called fibro relief that you mentioned jess. The fibro relief looks like a good one to try! It definitely has all the supplements that I try to take on a regular basis.
I tried Fibromalic and had no change or relief....

Feb 04, 2015 11:19 AM

Hi. True there is a research study that was performed.
I'm slowly becoming an advocate of the Guaifenesin protocol. Here are a couple links you may be interested in:

search this on YouTube:
Fibromyalgia: Getting Our Lives Back--Success Stories on the Guaifenesin Protocol

I've seen Dr Congdon and been on the protocol almost a month. The FMS is behaving just as predicted. There are 1000s of testimonies that the treatment works. Dr st Armand also has a few books I'm sure you can get at the library. Blessings on your journey!

Feb 04, 2015 11:42 AM

Just know that for ever positive study you will find a negative study. Who has fiancially sponsored the study? Every vendor wants you to believe their product is best. What is the 'p value'? Was it a blind study, a double blind study. Peer reviewed is important to me but I just read an article on several medically peer reviewed articles that were not. It was a computer program and yes these articles made it into blood journals, pub med, jama, surgical journals shall I continue...just do a google search for fake peer reviewed medical articles you will be shocked and it is shameful. I guess it shows that nothing is perfect. Last night on national news there was an article about herbs found at GNC, Walgreens, CVS and Walmart that contained none -zero of the herb listed. It is getting harder to be an informed consumer these days.

Feb 04, 2015 5:16 PM

Dr st Armand explains at length some of the faults of the debunking experiment and why it is nearly impossible to do a double blind study on this because of the huge range of variables that can't be accounted for. He goes into it in his book in depth and in the first article I posted above.

Sep 14, 2015 10:53 AM

Apparently, I was caught up in the news drama and did not listen care fully or it just was not said . What was failed to be explained- is the supplements that were tested were "extracts " not dehydrated herbs. Well in basic chemistry when you extract all the plant material to make a tincture you will not have plant matter that has any DNA in it because you extracted it. If I lost you I am sorry. There are many great videos on YouTube on extractions. Short version our government that had their scientists test the products failed us again, the scientists doing the test SHOULD have known no DNA is left in an extraction but then again if they did say herbs are good how would pharmaceutical companies make their money. If you use herbs stick to tinctures or the name brands. You will have better quality. There are plenty of other countries that do value plants/herbs as medicine. I do believe that for every problem there is a plant to heal it.

Ready to start relieving your pain?

Join Community