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Figuring this out.

Jan 20, 2015 4:51 AM

I just thought I'd share what I learnt myself a while back,maybe with a bit if humour too.. I participated in a pain program which included people with all different cases but all suffered with chronic pain, including myself. We did exercises to 'retrain your brain' and learnt about our brain signals. Suffering with back pain I then told my parents.. Really I don't need a new back, I just need a new brain!
Does anyone else feel this way.
I wish I could click my fingers to take away my pain or erase memories so my brain wouldn't signal pain.

Jan 20, 2015 6:57 AM

You know Harris- the more I read about fibro it truly is related to the brain and nerve signals firing wrong. How did you feel about the program? And how did they attempt to re-train your brain?!

Jan 20, 2015 7:41 AM

Harris, the neuropsychologist I saw yesterday said my fibromyalgia, chronic pain from many other issues & my memory are all battling for the same synapses. Therefore I ditto what you said about a new brain... Or maybe some synapses implants? Lol

Jan 20, 2015 4:41 PM

jesswoo76- they taught the group three things, the physical stuff, the stuff like sleep and nutrition, balance, stress and then the retraining and relaxing stuff. They thought us about problem thinking and our thoughts. If we could change the way we thought about our pain then it would decrease. We had to attempt to accept our pain. We learnt when the pain persists longer the brain hears too many messeges. We had little activities to try and help us self manage our pain.

Jan 20, 2015 4:41 PM

FlappysLady81- haha I know, it's weird to think of it like that but it's so so true!

Jan 20, 2015 5:48 PM

Harris- it sounds like CBT stuff (cognitive behavioral therapy). I am a counselor and have been researching like crazy for myself to help the pain, thoughts, etc. I am actually thinking about doing a 8 week pain management group.

Jan 21, 2015 1:18 AM

jesswoo76- Ooh ok,very interesting. What things have you tried already? I'd love to try some new things,see if it would help my pain out. You should do the program, anything is worth a try to escape pain. Mine went for two weeks,but like 3 days a week.

Jan 21, 2015 8:19 AM

Harris- Cfidsselfhelp.org has been helpful for me. I also have some great books I've found. maybe I should make a new post?!

Jan 22, 2015 4:39 PM

Thank you! @jesswoo76

Jan 22, 2015 4:45 PM

Wow so you mean my brain is messing up my whole body amongst everything else that is wrong

Jan 22, 2015 6:20 PM

vicky1224- it feels that way! Your brain signals the pain and triggers it.
As stupid as it sounds I've tried telling myself "I'm not in pain,I'm not in pain" to try and make my brain signals painless but it hasn't worked..I guess my pains been going to long. My brain knows (I guess you could say that). Ha.

Jan 22, 2015 9:01 PM

I wonder if our brain is to old to retrain lol

Jan 24, 2015 1:22 AM

Harris you have become my hrro. We share many of the same post scoliosis issues. Yes, your brain does play a big role. I believe the quote by Budda- you are the thoughts that you think. (short version ) I am up in the middle of the night because my hip is killing me. For once it is not my back or rrod. I am glad that you are trying everything offered. I as a mom are proud of you. You keep looking, searching asking questions and trying new things. You will find something that will give you some relief I am sure of that. Keep your core muscles strong I use pilates and modified yoga as well as biofeedback. I wish I had your tenacity at your age.

Jan 24, 2015 9:55 AM

That typo was supposed to be hero. You and I have written back and forth many times. I really feel for you. You are doing all kinds of research and I wish I had the Internet way back when I had my scoliosis surgery. Has your doctor ever said if it is an option for you to have the rods removed after the spine is stable? Also did they ever do any type of metal sensativity tests to be sure you are not having any reaction to the metal used? In theory you should not I think you told me that yours were titanium. However they usually still use stainless screws and hooks with wire occasionally. Metal allergies/sensativity can cause all kinds of inflammatory even rejection issues. They also did not have the abilities to test me before my surgery. It was back in 1981 before your time. Damn I feel really old right now. LOL

Jan 28, 2015 12:32 AM

LMB- I actually am tearing up, hearing you are proud and we barely even know each other means so much to me.. I seriously appreciate you not just for your helpful replies but as a person too. Thank you so much, I hope I find relief too.
Thank you:( yes lucky for the internet. My surgeon has told me the rods can be removed but it would be no difference, and I think I decided no because that a hole lot of recovering again. I'll have to check about the screws next time I see him.
Aha it's okay, you're not old! x

Jan 28, 2015 5:18 PM

Thanks LOL

Jan 28, 2015 5:24 PM

@harris. @lmb were as old as we feel in that case I feel verry scary old but even tho we don't know each other you always have a way to briteing up my bad days lol

Jan 28, 2015 10:48 PM

haha thank you @eddieray55

Jan 29, 2015 7:38 AM

Personally, I would like to have my metal removed I am pretty sure that it is adding to all of autoimmune problems and inflammation issues. Knowing that my stainless rod (316L) has shown corrosion in 67% of cases when removed....where is the rust going in my body. Maybe that is what my body is attacking and not really attacking me. It is something that I do think about seriously. We have all seen the hip replacement recalls causing metalosis same symptoms.

Jan 29, 2015 11:14 AM

I think you may be on the right track L, I know someone who had a knee replaced many years ago and his leg became excruciatingly painful, red, hot, swollen. My daughter does massage therapy on him and would not go anywhere near it and finally yd him she couldn't work on him until the issue was resolved. They opened his leg and the joint fell apart and was green! He's lucky to have survived I think.. He is now rebuilt and doing great! Let us know what you decide and best of everything to you!

Jan 29, 2015 10:31 PM

Wow,that's intense.
Will get it checked out.

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