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Finally found something that helps, Dr won't prescribed it.

Mar 25, 2018 11:50 PM

So in my last appointment the specialist asked if any of the treatments tried have helped. I had to answer, unfortunately, "not really ".
A few weeks ago however I came across a pkt of oxycontin that was prescribed for my husband years ago and I thought "bugger it, I'm desperate enough to try anything!".
And after getting used to it (It's a pretty potent drug) I have had relief each time I've taken it. I discussed with someone the implications of both taking and going to the Dr and asking for such a drug and decided it was worth the try. I'm up for almost anything to get relief from this pain.
And wouldn't you know it, he said no.
I'm sick with frustration at this point.
I don't even want to say what I want to do right now.

Mar 26, 2018 12:01 AM

Oxycodone is a controlled substance abused by many. I know in the US if you need to be prescribed a narcotic pain med you have to see a pain specialist. You might look into the laws in your country and see if there is a protocol for that type of medication.

I understand the frustration though I went through the same thing woth my primary care Dr because I did not realize this was an issue. When I discovered what I needed to to I had her send a referral over and I have been seeing the pain specialist every 3 months for a little over a year. He helped find a medication combo that helped lessen my pain and he doesn't make me feel crazy when it comes to my level of pain.

I hope this information helps. Good luck.

Mar 26, 2018 7:56 PM

I totally feel for you katpain. This country is ridiculous when it comes to morality policing. If it works for you, you understand and accept the risks, and your Dr sees improvement in your quality life and vitals, then other ppl misusing pharmaceuticals should not be a reason to punish those of us with legitimate needs for these meds.

That being said, the makers of oxycotin were very shady in the info they released, so be careful with making sure you get unbiased and factual info about any drug, and always remember; drs rarely ever read the labels or keep up on unbiased info. They are too inundated with political nonsense and crony western medicine brainwashing.

And do consider finding a pain specialist. They will be very strict on how much of whatever they give you, so don't expect to have it easy (cause of course, even responsible intelligent patients must be punished for the crimes of the few), but if it's really relief that you seek and opiates that work, than you're pretty much out of other options unless you get cancer.

Mar 26, 2018 9:19 PM

It sucka that people who can benefit from opiods cant get them because of how regulated they are. I understand doctors are worried about their prescription license being taken away for giving too many people opiods and honestly that is also sad that the doctors are so worried that they feel they cant write too many Rx for it. Adding on top of drug seekers who have no actual pain it is so sad that people in pain who could benefit from cant. I been given a Rx for oxy before but pain killers of any strength do nothing for my pain. Dont give up hope. I hope you will find a doctor who can help you.

Mar 26, 2018 10:52 PM

I have been taking almost 2 years, long working oxycodone and now with the pain score of 9.5 also 3 times a day the short acting oxycodone, in addition to 3 x daily tramadol and amytriptyline 30 Mg 1x daily, this is only for pain control
The drugs are getting worse and better because short-acting oxycodone is very addictive

Mar 27, 2018 12:16 AM

I am aware of the addictive qualities of this drug, just as I was aware of the tramadol. And the fact I will become immune to it like I did with tramadol.
I realise it's a dangerous path and did discuss this with the Dr. And I appreciate his apprehension.
But as Bemaself says, if it works for me (and it's the only thing that does currently) and I understand the risks then why not let me have the relief I so desperately need.
I don't mean to be dramatic but most days I'd prefer to die than live like this.
I've struggled my entire adult life from illness (my initial injury being caused at age 18) and I'm well over it.
I fought and fought and I was able to get through but now I'm giving up.
I'm over 40 now, and have not achieved a thing other than survival.

Mar 27, 2018 8:22 AM

Very moving post and, yes, very familiar to my situation. The tramadol does more to keep me out of depression than helps with the pain but as I understand it the tramadol is also a schedule 2 drug and it keeps you on the national drug regester which also allows doctors a path to stronger prescriptions in the future. All new pain patients will now be taken down a non opioid pan management path. Opioids are being phased out. If you have legitimate chronic pain and have already been prescribed schedule 2 drugs you have a better chance of continuing to use them.

Mar 27, 2018 10:20 AM

Today I went to the surgeon and rushed to the pain relief, I can only go 9 April
I wonder what they can do, although the pain becomes bearable, as many here control your whole life.
I am glad to see recognizable symptoms, I even thought and still occasionally that I am going crazy.
I am almost 42 and I have a company with 25 staff, which has been done without me for a long time😓
I think we should take addiction risk for granted

Mar 27, 2018 12:05 PM

Agree. I'm not against opioids if they help me be productive and live a semi pain free life. But someone will still need to monitor me to ensure I don't slide in the wrong direction. I don't think people should expect a completely pain free life, just one that allows them to live a semi productive one. And opioids tend to do less over time unless you increase the dosage. It's a slippery slope for sure.

Mar 28, 2018 2:59 AM

My pain started 31 years ago and they called it myositis. It only worsened to times in bed for weeks. I was a guinea pig of all kinds of medications and feel like I still am. I'm tired of fighting. The pain is exhausting, unrelenting, and depressing. I now have small fiber neuropathy in my feet. It's like walking with blisters all the time. I am on cymbalta, tramadol er 200 mg, neurontin, effexor, robaxin, xanax, naproxen, Tylenol, and ibuprofen. I remain in pain and can no longer do anything, even plant flowers. I have always avoided opioids bc I had children. Now it's find some relief or leave this hell on earth. I'm tired

Mar 28, 2018 7:05 AM

I think at this moment for me the tramadol is working better than oxycodon
I hope the pain Center can help
me with medicatiin for a langer

Mar 28, 2018 7:06 AM

😳 longer Time

Mar 28, 2018 4:03 PM

I’ve been on oxycodone for 6 years along with morphine, Effexor, cymbalta, Valium and a couple others. I can’t take NSAIDS due to stomach issues. So nothing really takes the pain away. I have insomnia also, have been dealing with that for at least 5 years. I started taking Ambien about a year ago and that helps about 50-60% of the time. I’ve tried all kinds of otc meds to sleep and a couple rx meds and nothing worked before trying Ambien. Praying for you all. This is a very depressing and difficult life for us all...😕🙏🏻

Mar 31, 2018 1:20 AM

Right there with all of you. I am SpEd EA at a middle school and this week is spring break for me and ive been miserable the whole week with migranes and pain from my back to my ankle. My doctor doesnt help me much as id like him to with trying to help me sleep. Im exhausted from this flare.

Mar 31, 2018 8:48 AM

Spiderman, can you go see a behavioral counselor? Mine helped me get better sleep with a prescription. I also have an app like Fitbit that tracts my sleep data and trends. I start melatonin right before dusk and have a very dark and cool bedroom. Besides early osteoporosis I'm ADHD and am a very light sleeper. Lack of sleep is the worst and makes the pain double or triple.

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