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Finally getting relief

Jul 08, 2015 7:52 AM

Gone from constant range of highs and lows on pain I seem to have found the right amount of meds 4 Percocet a day and one oxicodine at night with flexeral when needed for cramping.
I hope everyone finds their formula for a low pain life
I may never be completely pain free but I can handle where I am now. My pain dr has been so helpful and judgement free
BTW. I do yoga and that really does help

Jul 08, 2015 9:21 AM

That's wonderful C29! I'm better than I was 2 years ago. I can't even try the yoga yet, but I want to. We have to find out what's causing my tremors and dizziness. I can bend over to get something, and when I'm coming up... Wham, my surroundings start swirling! I am walking on a treadmill daily, so it's a start. Praying for blessings that your pain will stay as it is, and that it won't be too bad during flares! 🙏🌼

Jul 08, 2015 12:09 PM

C29, I am so glad you have found a combination of mess that works for you. Unfortunately, I have been on a downward spiral and it scary and painful. I've never had other illnesses and lately my blood pressure had been way high but my breathing and heart rate are both normal. I made an appointment for the doctor for Monday morning and we'll see what happens I'm scared and afraid that he's going to blame my weight. I've been overweight all my life and NEVER had high blood pressure. I know I'm getting older and stuff but really. I'm also under huge strain because my best friend's sister is dying a slow and painful death so I'm "on call" for a funeral. I'm worried about my friend's health and she had a 98 year old Mom who is severely stressed by the situation as well (who wouldn't be?? I mean being 98 and watching your daughter die.. I can't imagine). So, sadly, I am the type of person who takes all this stuff on and then the stress of it overwhelms me. I can't take knowing someone I love suffering whether family or friend. Just having a rough go of it today and having a hard time keeping my anxiety in check. Menopause and feeling like crap isn't helping. Now see, I got off on a tangent and I apologize.. This was supposed to be a positive post and I started thinking of myself. I can't do that, I feel much better when I take care of y'all. Hope you have a peaceful and light pain day.

Jul 08, 2015 8:28 PM

AlwayZ, I'm sorry you're having so much stress. It's likely the cause of the high blood pressure. But your last comment is really an eye opener. You love taking care of others, but if you don't take care of yourself you won't be able to help any of us or others.

Honestly, I really do think we're genetically connected. Lol. I was exactly like you, taking care of everyone else until last year. I hit rock bottom with my own health while my siblings and dad were depending on me to be there for all of them. I became so mentally and emotionally distressed I thought I was going to lose my mind. A doctor identified the changes and took me off cymbalta because it was worsening the symptoms, but she also has a long talk with me.

Lord help me, my memory just glitched! Someone just reminded me and others to remember to say "No." That's what the doctor told me. As I began to do so my blood pressure and heart rate and anxiety began going down. Here I am a year later and I feel so much less stressed about being pulled in every direction. I'm now putting myself first and I'm better able to help others when I can. It's very hard to say no when you're afraid it will hurt others, but sometimes it just can't be helped. We don't need you getting sicker, not do you need it. Make sure your doctor is aware of all you are dealing with so he gets the full picture of what may be causing these new symptoms. (((Hugs))) & prayers for you.

And (((hugs))) & prayers for you too C29. 🙏🌼

Jul 08, 2015 8:54 PM

Thanks, Flappsy. I understand what you mean. I've also been driving my Mim every Tursday for the last 7 weeks 35 miles each way to go to the dentist for her dentures (which the lab keeps screwing up) and then this morning my Father asked me to take him to the VA Hospital on Wednesday for his audiology appointment and that's a 45 mile drive each way and then I've been taking my older Sister (who never, ever wanted anything to do with me growing up and always bad mouthed me) to her chemo doctor for her maintenance infusions every three weeks on a Saturday and on Mondays and Wednesday if it's not nice out, I was picking up my nephews from school and bringing them to my house while my sister is at work and she picks them up in her way home. I just spoke to my best friend and they took her Sister off of dialysis, she's barely conscious and can't speak any more, her brother in law was rushed to emergency surgery because he's been at his wife's bedside for the last 11 weeks and in his weakened state, a tumor that had been growing on his spine caused him to collapse and it was attached to his spine, intestine and kidneys and it turned out to be cancerous. Now he has to start chemo immediately and is in intensive care now 3 doors from his dying wife. I guess in also
Worried the doctor will want to take away even more of my pain meds and then my pain will escalate even more so I'm really over the edge with all this. I can see how this would all make my blood pressure wonky. You know,
It's funny, I have thought many times in reading your posts that we must be genetically linked somehow because we're so very much alike... I didn't say it because I figured you'd think
I was nuts.. LOL!!! Perhaps we were really good friends in another time and place and reunited through this community. I know I have to stay healthy or I won't be able to take care of others, it's hard because I said I'd be there for all of these things and when the day comes, if I'm in agony, I force myself to take care of what I said I'd do because the one time I had to cancel on my Sister and have her husband take her to the doctor, I felt so guilty I say and cried because I thought she would feel it was just an excuse and I just didn't want to take her. I really appreciate the chat, Flappsy. I DO need to put myself first because if not, how can I be effectively helping anyone in my family or any of you all in my wonderful community family. I have really good vibes about your trip to Mayo and I really think that being the way they are, they will dig until they get to the root of your tremors. God brought us together for a reason and I know that with His help and our support for one another, we can get through virtually anything. I've got to try to get some winks because I have to be up early in the morning. I hope you have a peaceful and restful sleep with minimal pain and sweet dreams. I'll be praying for you. 💕🙏🏻🌺

Jul 08, 2015 10:31 PM

Alwayz I am so sorry about everything your family and friends are going thru. It is hard when we are predisposed to be car givers. I have always had to take care of my family starting at 15 years of age. It is so hard to turn that off and think of yourself, but like Flappsy has told me the same as she is telling you we have to learn how to say no and think of ourselves for a change. I have started doing this and I think it has helped me a littlebit. I hope you and everyone else a Blessed night.

Jul 09, 2015 8:26 PM

Weezie & AlwayZ, I am a caretaker at heart, for many years and up until last year. When I hit rock bottom emotionally mentally & physically, it was because I was there for everyone else, forgetting about myself, even to the detriment of my health. And suddenly I realized that having siblings they needed to share the burden of our dad and stepmom and I told them so. I realized my special needs brother was much smarter and capable of doing more for himself, he just preferred not to. And last, I realized I was always there for everyone else, but no one was there for me. That's when it hit me, if I don't take care of myself no one else will. So I started saying no, I'm not available, I'm busy, have appts, I don't feel good...

Guess what? Life has gone on for everyone. Others have taken on more responsibility, and I'm not pushed and pulled in every direction. Want to know something else? Other than special reasons I rarely hear from them, unless I make the call. So to me that says I'm important as long as I was willing to drop everything for them. I don't feel guilty for taking care of myself. I feel really sad that my health now is likely worse because I neglected myself. 🙏🌼

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