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Finally getting somewhere!

Mar 10, 2016 8:20 PM

So I went to see my new neuro today and everything went great! I felt like he actually listened to me and took all of my symptoms into consideration, instead of just telling me this or that was "just anxiety related". They did a nerve conduction test in the office and are sending me out for a spinal MRI, EMG, a full blood panel, and he agreed with me that seeing a physical therapist was a good idea. My back and leg pain is eased by sitting or lying down and I can't walk for more than 20-30 minutes, so I'm hoping that the PT will fit me for a wheelchair.

As for the dx, he is thinking it is between fibro, MS, or transverse myelopathy. My family is very scared of these, and while I'm just ready to know what is going on with my body, they firmly believe I'm being attacked by evil spirits and can be fully healed with faith. I just really wish that were true.

Mar 10, 2016 9:13 PM

So happy you had such a good experience at the neuro! I hope they find out what's going on and can help you!

Mar 10, 2016 9:20 PM

Squints, May the devil COME out of you! (Giggling) did it work? I am playing, I hope they tell you soon. I know you are wanting to know so you can get on with recovery and life! Love and Blessings, Terri

Mar 10, 2016 10:18 PM

Shame on you TERRI... lol. SQuints so happy you had a doctor who actually listened to you. You are actually asking for. A wheelchair? WoW! You are a strong person. I could have used a wheelchair today. My legs hurt me so badly I cried and moaned at work today. Just awful. I had to take pain pills to make it through! I was worried because I had to teach a class tonight.... Me standing in front of a group of adults teaching under the influence of pain meds isn't a lovely sight! Peace & Grace.

Mar 11, 2016 11:57 AM

Terri, you kill me!! Almost wet myself again!! Squints, I'm glad the doc was helpful. I hope you get your answers and they are able to help you feel better.💕🙏🏻🌻

Mar 11, 2016 12:55 PM

All jokes aside, I pray you will get the answers and treatment you need. Hugs!

Mar 11, 2016 7:11 PM

Yay for finally getting somewhere!!!!!!!

Mar 11, 2016 7:35 PM

How many times over the last 41 years of struggling with a quagmire of medical conditions that cause a myriad of symptoms, have so-called well wishers reminded me that I'm disabled because I don't have enough faith to be healed. How arrogant and judgemental? ????? A true Christian understands that Paul asked that a thorn in his side be removed on three different occasions. It wasn't removed and it wasn't because he lacked faith. How pompous!!! Did Jesus lack faith when his prayer to have the cup removed wasn't granted? Kind of sounds like Job's so-called friends who proffered so many reasons for his then state. Our illnesses and pains are difficult enough to bear without others questioning our integrity and faith. How date they? Do I sound just a little bit upset?

Mar 11, 2016 9:56 PM

Donamel, I do understand where you are coming from on this, truly I do. At church I get told quite a bit by some of the older members to "just have faith and it will get better". All I can do is just sit there and silently question my own faith. I do have faith, but it's not getting any better. One person even told me, "God doesn't give us more then we can handle." To that I say, and pardon my French but horse shit. I've got more then I can handle right now, with more shit on top of it.

Mar 12, 2016 3:58 AM

That was how dare they? I didn't mean to get on a spiritual bandwagon, but the pain and other symptoms is more than most people can handle. Then why add anything else? It is only meant to shame or guilt a person. First, it's not true that our medical conditions have anything to do with a lack faith. Second, the identifying mark of a Christian is love. Do we show love by adding to the grief that we experience or do we show it by being supportive? My solution is to stay away from toxic persons. There are many people I like, but their view of my medical conditions is so negative. It's best to love them from a distance. Yes, it's a hard decision to make but I've even had to take that stance with two of my children. They can make such negative remarks about me, but don't even call to check on me when I had shoulder reconstruction surgery or when I had my knee replaced. I had to look at all of my relationships to determine who is or not supportive. What is left are the real people who not only accept me and my medical conditions unconditionally, but who help me and are otherwise supportive. Do I have a long list of close associates? Absolutely not. What is left are the most wonderful, warm and loving people. they are tried, true and trustworthy, I pray that each and every person who suffer like we do can have these kinds of friends. They can't take the pain away but help me to deal with it in a more dignified way.

Mar 13, 2016 4:44 PM

Donamel, I "get" what you are saying. I sense from the text reply that you have had your share of vain Christian well wishers. I am a lover of Jesus and can not undo the harm done to you. However, I can help you by being willing to beat those little MFers up!! Yet, I think that even that would not heal you. What I have learned as a human being, is Forgiveness. Please forgive all of us ...we stumble around and mostly focus in ourselves and when met with someone who is hurting in a way that makes us uncomfortable and uneasy, we respond superficially. I am sorry that with all the pain you suffer with that many people or friends have let you down. Therefore your list of friends is small. Being a Christian, love as you mentioned is the mark Jesus has made upon us. I would have to add the word , Forgiven to my mark. Please know that this group of people ,the Catchmypain friends, we are here to help heal and undo the hurts we suffer from the non- pain sufferers. You are loved and cared for by the lot of us! Sight unseen, we love you. Please please pray for the ignorant humans walking around consumed with what's happening in their own little world for they really do not know how really really special we got life..our pain binds us together. Our world of friends ever expanding now because we are finding each other here. We really are quite fortunate and blessed because of our suffering. ( but if you want or need I got your back girl!)much love, Terri

Mar 13, 2016 5:54 PM

Thanks for the prayers and support y'all. I got an MRI scheduled in one week and I'm waiting on them to call for my EMG and blood panel. My pain has cleared up a little bit now that the weather is back to being sunny.

I haven't made an appointment with a PT yet, but I think I'll wait until I get my diagnosis. My neuro is pretty determined to tell me what's going on in my next follow up a month out. For now, though I just have to deal with the pain. Does anyone else feel like their legs are being crushed to pieces when they stand too long? This happens to me a lot and I don't think it's related to weak muscles, since the amount of time before it sets in changes day to day.

Mar 13, 2016 6:04 PM

My legs often feel that way, especially these past few weeks.

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