Finaly a doctor who pulls the strings together. Today I had an appointment with a dermatologist. She looked at all my rashes and took some photos. And for once (!) my butterfly-looking rash didn't dissappear before an appointment. This dermatologist called the superior dermatologist to look at me. She wanted the superior dermatologist to check the rashes and a discoloured toe. The conclusion was that this might be lupus and/or sjogrens syndrom and the discoloured toe might be from raynauds syndrome. Before I could go I took some new bloodwork for ANA and some more lupus related tests.
The results and conclusion will be sent to the rheumatologist I am going to see in may.. It feels good to know that someone finaly sees the problem and believes what I am telling them.
I feel some type of relief for hearing from a specialist that this is actually something.
My fiancé on the other hand react in a much different way.. He is scared. He cried today and I asked if it was something I could do to make him feel better. His answer was "please don't have lupus"(he does not know anything about lupus other that it is a serious condition) and the next thing he said after a short break "I don't want to loose you". He is really emotional about me being sick, because of several experiences where they was not sure I was going to make it.. I used the rest of the day to calm him down..