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First outing with someone who us not use to disability

Jun 06, 2016 2:56 PM

So .y friend us in town we visited last night at my house and then she invited me out today. I almost didn't go because I didn't feel good at all the pain was high. But I did go and it was a good time. However, she has never seen me with my csne and I had a wicked case of pain sweats happening. She seemed to handle it well although she did make the typical comments of..i don't look that bad, I'm dressed so cute for me to be in so much pain . So I had to educate her a little bit. It's interesting since she knew about my illness.we talk often about it. However, this is the first time she has seen it. I'm not sure how i feel about everything. I suppose more importantly I wonder how she feels about the disease now.? I hope I explained things well enough for her.

Jun 06, 2016 4:46 PM

Talking about it and seeing it are very different things. I'm glad you were able to educate her a little.
Now that you have had some time to think, how do you feel about everything? Maybe next time you talk ask her how she feels about it. It's better to have things out in the open

Jun 06, 2016 4:50 PM

I think I will ask her once she gets back home. I think it went well..as far as I was concerned there were no awkward moments. Except for when she first saw the cane and she thought it was my dad's until she saw it was purple with glitter..ha...

Jun 06, 2016 5:26 PM

Good thing your cane is sparkly purple. I've seen people with the basic chrome ones and I've seen other people arguing with them about the cane being for their parents not them. Which is why i recommend for everyone who needs one to either personalize the chrome one with stickers or get a colored or wood one. We have a wood one, which is just a little too short for my bf after his knee replacements and just a little too tall for me. But it'll work in a pinch of either of us needs one again

Jun 06, 2016 8:51 PM

My first two canes matched our vehicles. LOL I had a red, silver and black swirled one to keep in our red truck and a black and silver swirled one for our silver Jeep. Now I have bright pink walking crutches that don't match the Jeep, but I still love the color of them!

Jun 06, 2016 8:53 PM

I'm glad you were able to enjoy yourself despite the pain.

Jun 07, 2016 10:04 AM

I'm glad you enjoyed your putting. And it's good your friend actually saw what you go through, and you were able to educate her. Hopefully she will feel good about the education and seek more info to give you support.

I have 3 canes. My solid black one is for inside my house, with a 4-footed rubber tip that gives a solid stance without being one of those ugly metal 4-footed ends. My old silver (hospital style) has a special large round flat bottom that allows me to walk out in the yard with better balance, and because the bottom is flat it doesn't get dirty up in crevices. My favorite is covered in various small birds, and I have the same rubber 4-footed tip on it as I have on the black one. This is the cane I use out and about, and it never fails to strike up a conversation. I can also tell my cane from others. And the 4-footed tip allows me to let go of the cane and it stands upright without falling over. If it gets knocked over, all I do is push my toes down on one side of the tip and it lifts the cane up for me to grab it. It also gives more surface for my weight to bear on, instead of those tiny round trips, which also helps with my tremors. And my dad liked it so much I bought the same tip for his cane (CVS). I love personalized canes.

Jun 07, 2016 6:47 PM

I have one that was rescued from the dump! It is wood painted black, or what began as black that is one peeling and scuffed. I have only had to use it a couple of times. I took it to the first appt. with the neurosurg. And I was so glad I did! I must have walked a few miles as they kept sending me here and there for tests, but when I would get there, someone else would say "oh no you should be at the hospital" which is where I came from.? I was so exhausted and hurting ever worse. So the doc says, "why are you using a cane?" Grrrrr

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