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CatchMyPain Community and Pain Diary App to manage chronic illness

First time posting/ first day of official diagnosis.

Jun 29, 2016 10:07 PM

I just got my official diagnosis today and will be starting the first step of fatigue/pain management tomorrow. I'm a bit nervous about what the future will bring, but I'm glad to finally have answers and be moving forward.

Jun 29, 2016 10:17 PM

Hi blueeyedash, welcome to the pain people's app. I am using the newly released iPhone version. You don't say what your dx was?? It seems people who post have all kinds of different illnesses, accidents and some who still have no idea what is the matter with their body, with the common denominator being pain.
I hope you find what you need here. Nice to post to U

Jun 29, 2016 10:19 PM

Ah. Oops lol. I was diagnosed with Fibromyalgia.

Jun 29, 2016 10:28 PM

Can you tell us some about your trajectory that led you here? Did the fibro come on quick or was it small changes that got large over time? There are lots of folks here who have it to post to. Hope you find some good pain management here!

Jun 29, 2016 10:31 PM

Thank you. And it started as severe fatigue after I had mono when I was 16. I had horrible brain fog and memory loss first. Then the pain started to set in. It was mild in the first few years then has gotten very severe in the past few. I'm starting on antidepressants tomorrow to combat some of the pain and fatigue and I have been taking naproxen. It doesn't do much but anything helps at this point

Jun 29, 2016 10:43 PM

Yes, I take it, too, as well as Lyrica, Amitryptilene, Paxil & have been through a list of other medications. I have not seen the rheum. doc, yet. That comes in a few months. As far as I know right now I do not have it. Pain for 18 yrs. and getting a lot worse. I have DDD, OA, sciatica and scoliosis. Today I should have done my workout, but just felt so trembly and awful that I couldn't. Mostly collapsed in my chair. Did not even want to read. Just could not concentrate thru the pain.
There really is help here if you cruise the posts!

Jun 30, 2016 12:15 PM

Welcome to our community family BlueEyedAsh! I have many chronic pain illnesses, fibromyalgia being one. My symptoms started in 2007, when my blood work first started showing elevated inflammation markers. They found a large tumor and removed it in 2010, and I quit work to recuperate (5 in 1 surgery). I'm not able to return to work due to a runaway health train. V Fibro was officially dx in 2012, followed by memory loss/dementia, imbalance & dizziness, sjogrens, hypothyroidism, and many more. They tried me on several psych drugs for the Fibro & depression, but due to my long list of allergies & meds reactions i couldn't use them. After my sjogrens dx plaquenil was started, and it was a huge blessing! Not only is it helping the sjogrens, it has also reduced my daily avg pain from a 7-8 to a 3-4, except during flares. I have tramadol for flares/breakthrough pain, muscle relaxers, antidepressant & anxiety med, along with my asthma & allergy meds. After hoping this community I've found relaxation techniques are very helpful. Over the past 6 years I've also learned to listen to my body, resting between activity (pacing), resting when I'm flaring or just exhausted, and enjoying what I can when I can. I've also grieved the loss of my old life, accepting there are things I'll never enjoy again. In essence I feel like my body is aging 10-15 years ahead of others my age who are healthy. But this is my life and I'll do the best I can with what I've got. Trying to stay positive, reflecting on my blessings (like this community of wonderful supporting new friends), and my faith in God get me through every day. I take it one day at a time, one hour, one situation/activity, one step, doing the best I can. And when I can't I don't beat myself up. You'll find lots of support, suggestions, and friends who understands here. Hugs & prayers as you settle in & find the best coping methods that work for you! 🙂💕🙏🌼

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