Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

First timer!

Sep 26, 2016 1:26 PM

Never used this before, recent diagnosis after 10 years of trying. But recently been referred to pain association Scotland, does anyone have experience with this? Did it help?

Sep 26, 2016 1:47 PM

Welcome to our community family Dorybrain! I have fibro, sjogrens, hypothyroidism, dementia/memory loss, DDD, OA and many other chronic pain issues. I've spent the last 6 years accepting my whole health situation and trying to find ways to cope and still enjoy life. Today I'm having a very base stress day and can't think of suggestions. But I'm sure you'll hear from others soon. Hugs love and prayers you'll get the support and coping methods you need! πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 26, 2016 1:55 PM

Aww thank you 😊 that was some list, wishing you a better day tomorrow.

Sep 26, 2016 2:17 PM

Welcome to the community. Am.so.glad you found us.

For me - finding the right pain specialist made a world of difference. I live in the US. I hope the pain specialist can help you get your pain levels down to a liveable level.

We are here to share with, talk with, ask questions with and - very important - laugh with. Come on in and join in.

Sep 26, 2016 2:18 PM

Flappy -
Am so sorry today's a bad day for you hun. (((gentle hugs))

Sep 26, 2016 2:46 PM

All they told me was they teach you ways to deal with pain in everyday, I think relaxation is their big thing.

Thanks for your reply and welcome ☺️

Sep 26, 2016 2:51 PM

Oh. That's different than the pain clinic I go to here. Mine will try different things to help us reach a place where the pains tolerable. They have done trigger point injections, epidural and .. I forget the name - they have gone in to burn the nerves in the areas most painful. They also prescribe my pain medication.

Sep 26, 2016 3:06 PM

I think I would have to be referred to the doc for all that and they are quite stingy and rarely believe the severity of the pain, hence why it took so long to get to this point.

Sounds like your pain clinic is much more helpful.

Sep 26, 2016 4:25 PM

The one I had in Fargo was awful. I still laugh because he sent me to a psych doctor... Saying depression was my problem. The Psych doctor told me and sent him.a letter stating that if he would treat my pain I wouldn't be dealing with depression. He was not impressed when I have him the note. Never went back. So there my Rheumatologist treated my pain issues. Here in Arkansas I have the pain clinic, my primary doctor, my Rheumatologist and up until this wreck I had a Neurologist. Each treated a different issue I was dealing with but keep in touch of what's going on with each Dr.

Sep 26, 2016 4:39 PM

Welcome and gentle hugs to you! So glad you found such a wonderful family. I am with a Rhumatologist and pain clinic here in the uk. Two different stories from both lol I am still getting used to it all. Fibro Raynaurds syndrome motor function issues and more ths family have been very supportive and welcoming I feel I can be me here no hiding and I am mentally getting better because of it. The first doctor I told laughed at me said it was in my head. I complained his name doesnt even get said anymore lol the fog has settled and I cant remember what I was going to say lol anyway welcome x

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