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CatchMyPain Community and Pain Diary App to manage chronic illness

First video: Jennifer and me talking about chronic pain

Sep 02, 2016 5:31 PM

Dear community,

A couple of weeks ago, I had mentioned that I would like to create videos and write articles about chronic pain. Jennifer, a fellow chronic pain sufferer and community member, was kind enough to join me and we’ve just published our first video: https://www.youtube.com/watch?v=uo-AGIBSPUM

I think Jennifer did a wonderful job and I hope we will be able to do a lot more videos together in the near future. We are actually planning another recording session on next Thursday. Please let us know what you would like us to talk about next. One idea we have is a Q&A session. So, please post any questions you might have in the comments section on youtube. And please let me know if at some point you would like to share your story and talk about chronic pain on youtube ;-)

I hope you will enjoy the video. Please support us by sharing the video, giving it a thumbs up and subscribing to the Pain Companion channel :-) Let’s spread the word about chronic pain!

Kind regards,
Daniel

Sep 02, 2016 8:57 PM

Great job guys u covers all wide area of topics. I appreciate you both for taking time out to do this.
Maybe next time have a third person interview the two of you or each of you just takes urns interview f each other in a talk show format.
I though i like the casual conversation style you had this time but at times it felt as if things dropped off. I also think maybe doing a live version so that people can ask questions in the moment. But over all this was great and so awesome to hear that stories of others helps me and others not feel so alone. Thank you.

Sep 03, 2016 6:05 AM

Oh wow...😚 yes fantastic!
🐴 Well done our Daniel πŸ€—
I feel so proud of u, for a new platform of awareness... πŸ˜™its a beautiful thing πŸ€—
Oh yes i left a long comment over there 🐴

Sep 07, 2016 11:31 AM

Thank you so much for your feedback and for leaving a comment on youtube.

@newfibrogirl That's a very good idea about the asking questions in the moment. We/I will definitely do such a live Q&A soon.

Are there any specific topics you would like us to talk about? We've planned another recording session for tomorrow (Thursday).

Dec 07, 2016 8:08 PM

Nicely done! Looking forward to travel w/chronic pain as the vibration of locamotion is brutal for me. Among many thing, I am a writer and ache to visit Wales and London, the setting for my current book.

As you move through the series, and begin covering the different range of conditions, I am an expert on my condition - Chronic Myofascial Contracture & Pain and the epigenetic roots of the condition. I have been an advisor to newly diagnosed via referal of my phychatrist at Kaiser Permanente a non-profit research and medical group. Additionsally, I have been working on a teaching tool for epigenetics at the 6th grade/ESL (English as a Second Language) vocabulary level with a geneticist from CAL-UC Berkeley.

Currently the concept is only taught at the collegiate level, and only sporadically, though I found the California/West Coast universities are leadimg the pack, and Kaiser has embarked on a 15 year study on the impact of environmental trauma in which I am participating.

The goal is for everyone to understand epigenitic modification and chronic conditions, how to to maximize their genoplasticity, and be empowered to take ownership of managing chronic conditions through Self-Healthcare.

My dream is that the concept of trauma (repetitive accumulation or acute) chronic pain will be taught at a very young age and to individuals around the world so the doctors will know about it before they ever enter medical school.

It is my further hope that understanding how trauma affects the genes, brain and pain system, as well as how it is passed on in generations, will allow us to lobby with hard science to affect public policy for environmental trauma regulations for abuse, chemicals and modification of our food supply, and when and how we go to war.

Leveraging chronic pain for a more peaceful world has never been needed more than it is right now!!

Daniel, thank you for this app, thank you for the community, and thank you for the video. Here's the start of our teaching tool that is layer one of the drill down planned to emerge behind it. http://www.genoplasticity.com
To
know more about my background see the ABOUT page on my writing website which links to my CV on LinkedIn http://jscrail.com

Dec 07, 2016 8:08 PM

Sorry for all the typos, I'm just so excited to find you all!

Dec 24, 2016 2:02 PM

SaphiraJewel sounds like you have a lot in the works!! Chase those dreams and don't give up on them.. I hope your next book is fun to write after you've travelled to write it. Sending well wishes and positive vibes your way!!πŸ€—πŸ’•

Dec 27, 2016 9:34 AM

Daniel, I'd love to see a discussion on how to navigate family issues with chronic pain. Helping the patient understand the view point of the family and how our pain affects them. As well as how we as patients can better convey how pain has effected us.

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