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Flare or not?

Aug 17, 2016 6:42 PM

How do I tell if I'm having a Sjorgren's flare or if I'm having a fibromyalgia flare. I always run a low grade temp between 99.1 and 100.0. I have pain everyday because I'm not on any pain meds at all cause of no insurance. And Sjorgren's affects my joints the most, I really don't have dry eyes but I can't wear contacts anymore because then my eyes do dry out. The past 2 weeks my knees have been hurting bad were I can't even climb 3 steps to come out my bedroom. I noticed right behind my ear that it's swollen, like a little lump. I have joint pain and back pain everyday. And some days are more bearable than others. My aunt gave me some pain meds to take and it's helping a little bit. I just can't tell when I'm in a flare and which flare am I having. I know I need some steroid shots in my knees as bad as it hurts as well as an oral steroid for my other joints. I need some advice support family!

Aug 18, 2016 10:19 AM

Hello PL 🌷
I have no idea hunni... πŸ€—but someone will have better 😊knowledge of it than i do.πŸͺ
This will take the post to the top again 🐫on the discussion board... then someone will see 😚 i send gentle hugs πŸ€—
And flowers 🌷🌷🌷

Aug 18, 2016 8:20 PM

Oops...lol! Let me start over...

Painedlady, I have both fibro & sjogrens. I don't run fever but instead my temperature drops and I have chills. When I'm having a sjogrens flare my (already dry) eyes, nose & mouth worsens. And I get tiny burning blisters all inside my mouth for days, feeling more tired than normal. A day or so later I get swelling & painful joints in my hands, feet, and hips. A day or so more and my fibromyalgia flares with painful muscles, tendons & ligaments all over my body, especially in the tender point areas. Then comes the sheet exhaustion & fatigue, especially following any activity. My fibro symptoms started in 200 but wasn't officially diagnosed until 2012. My sjogrens wasn't diagnosed until 2015 by an oral tissue biopsy, but looking back in my medical records In certain I've been fighting it since 2000-2001, just in the form of dryness. This is pretty much how mine goes every time now, since 2015. Before that I only knew I had fibro, but suspected I was battling more for several years. I knew I felt way to lousy, but the docs didn't want to listen since "you have fibro, what do you expect?" I hope this is helpful. Tracking every symptom, and how long they last, start, stop, that should help you start to see a pattern if there is one. Hugs love & prayers it's short whichever it is! πŸ™‚πŸ’•πŸ™πŸŒΈ

Aug 18, 2016 8:32 PM

Oh, I forgot to add, rest and sleep is important. If you have trouble sleeping try Tylenol PM, Advil pm or melatonin; it's a natural brain chemical that our bodies are usually in short supply of, and it can't harm you. I have pain med allergies so I am limited on meds. I normally take Tylenol arthritis daily, and tramadol for breakthrough pain. And I reserve stronger meds for surgery post op, which I'm in right now. My surgeon gave me Fentanyl patches, which I've never used before. They're working so well I'm not even having to take Tylenol right now... And I've had no reactions to it! Yay!! I use voltaren gel for muscle cramps & spasms, neck & back pain, joint pain. I also have muscle relaxants if spasms are bad. πŸ™‚πŸ’•πŸ™πŸŒΈ

Aug 18, 2016 10:22 PM

Thank you Flappy'sLady, right now my nose is extremely dry but my eyes not so much. My joints are in so much pain especially my knees. And yes I'm so exhausted and fatigue too. I'm trying to document all my pain using this app but it's so much to remember to write. Thank you guys for the prayers.

Aug 19, 2016 11:33 AM

Ok I honk I am definitely in a SjΓΆgren's flare. I woke up with dry nose and throat which I am also hoarse. My sinus are so dry that I am going to do a sinus rinse. I have a cough that hurts my back. All of my joints are killing me, and they are swollen too. I hate to go to the ER but I think I definitely need some steroids.

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